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Our 2026 Manifesto sets out what must change on Long Covid diagnosis, care, jobs, public health & support
Help us act:

✅ Share our posts
✅ Raise it with politicians
✅ Volunteer

International Long Covid Awareness Day is 15 March #LongCovid #LongCovidScotland

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Infographic titled The Financial Impact of Long Covid in Scotland. It shows that 63% of Scots with Long Covid need help with personal care. The image includes an icon of hands being washed and states that Scottish Government funding for Long Covid is only £9.70 per patient per year. Produced by Long Covid Scotland.

Infographic titled The Financial Impact of Long Covid in Scotland. It shows that 63% of Scots with Long Covid need help with personal care. The image includes an icon of hands being washed and states that Scottish Government funding for Long Covid is only £9.70 per patient per year. Produced by Long Covid Scotland.

🧼 63% of Scots with #LongCovid need help with personal care - things like washing, dressing, or cooking a meal.

Yet funding is now just £9.70 per patient per year
People are left without dignity or support.

#LongCovidScotland #Disability #ChronicIllness #Scotland

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Infographic titled The Financial Impact of Long Covid in Scotland. It shows that 64% of Scots with Long Covid need help with travel and transport. The image features icons of a wheelchair user and a bus, with text noting that Scottish Government funding is only £9.70 per patient per year. Produced by Long Covid Scotland.

Infographic titled The Financial Impact of Long Covid in Scotland. It shows that 64% of Scots with Long Covid need help with travel and transport. The image features icons of a wheelchair user and a bus, with text noting that Scottish Government funding is only £9.70 per patient per year. Produced by Long Covid Scotland.

🚗 64% of Scots with #LongCovid need help with travel and transport.
People can’t drive or even leave home yet government funding is just £9.70 per patient per year.
That’s not mobility. That’s abandonment.
#LongCovidScotland #Disability #ChronicIllness #Scotland

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Infographic titled The Financial Impact of Long Covid in Scotland. It shows that 82% of Scots with Long Covid need help with shopping. The graphic includes a yellow shopping trolley icon and text noting that Scottish Government funding for Long Covid is only £9.70 per patient per year. Produced by Long Covid Scotland.

Infographic titled The Financial Impact of Long Covid in Scotland. It shows that 82% of Scots with Long Covid need help with shopping. The graphic includes a yellow shopping trolley icon and text noting that Scottish Government funding for Long Covid is only £9.70 per patient per year. Produced by Long Covid Scotland.

🛒𝟴𝟮%of Scots with #LongCovid told us they need help with shopping.
People are struggling with basic tasks but government funding is now just £𝟵.𝟳𝟬 per patient per year.

We're telling That isn't enough.

#LongCovidScotland #Disability #ChronicIllness #Scotland

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Infographic titled The Financial Impact of Long Covid in Scotland. It shows that 89% of Scots with Long Covid need help with household chores. The graphic includes a yellow spray bottle icon and notes that Scottish Government funding is only £9.70 per patient per year. Produced by Long Covid Scotland.

Infographic titled The Financial Impact of Long Covid in Scotland. It shows that 89% of Scots with Long Covid need help with household chores. The graphic includes a yellow spray bottle icon and notes that Scottish Government funding is only £9.70 per patient per year. Produced by Long Covid Scotland.

🧹 89% of Scots with #LongCovid need help with household chores.
Many can’t cook, clean, launder without support yet funding is just £9.70 per patient per year?!

Hey ScotGov That’s not care. That’s neglect.
#LongCovidScotland #Disability #ChronicIllness #Scotland

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Infographic titled The Financial Impact of Long Covid in Scotland. It shows that many Scots with Long Covid are paying privately for treatment, with bar chart data indicating high spending on supplements (84%), alternative therapies (59%), medication, and private health appointments. The text notes that Scottish Government funding is only £9.70 per patient per year. Includes the Long Covid Scotlan

Infographic titled The Financial Impact of Long Covid in Scotland. It shows that many Scots with Long Covid are paying privately for treatment, with bar chart data indicating high spending on supplements (84%), alternative therapies (59%), medication, and private health appointments. The text notes that Scottish Government funding is only £9.70 per patient per year. Includes the Long Covid Scotlan

In Scotland, the disabled pay TWICE

🏥 84% of Scots with #LongCovid pay for supplements.
59% for alternative therapies. 41% for private appointments.
...Because Scottish Government funding is only £9.70 per patient per year

#LongCovidScotland #ChronicIllness #Disability #Scotland

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Infographic titled The Financial Impact of Long Covid in Scotland. A pie chart shows that 4 out of 10 Scots with Long Covid (37.7%) are unable to work, while 21.3% work fewer hours. The text highlights that Scottish Government funding for Long Covid is only £9.70 per patient per year. Includes the Long Covid Scotland logo and data sources from the 2025 Long Covid Scotland Survey.

Infographic titled The Financial Impact of Long Covid in Scotland. A pie chart shows that 4 out of 10 Scots with Long Covid (37.7%) are unable to work, while 21.3% work fewer hours. The text highlights that Scottish Government funding for Long Covid is only £9.70 per patient per year. Includes the Long Covid Scotland logo and data sources from the 2025 Long Covid Scotland Survey.

📊 4 in 10 Scots with #LongCovid told us they can’t work at all.
Another 2 in 10 are forced to cut their hours.
Meanwhile, Scottish Government funding is just £9.70 per patient per year.
People are losing livelihoods while support lags behind.

#LongCovidScotland #Disability #Scotland

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Infographic titled The Financial Impact of Long Covid in Scotland. It shows that Scots disabled by Long Covid have lost over £50,000 in earnings on average, while Scottish Government funding is only £9.70 per patient per year. Includes the Long Covid Scotland logo and a note citing survey data and government reports.

Infographic titled The Financial Impact of Long Covid in Scotland. It shows that Scots disabled by Long Covid have lost over £50,000 in earnings on average, while Scottish Government funding is only £9.70 per patient per year. Includes the Long Covid Scotland logo and a note citing survey data and government reports.

Scots disabled by #LongCovid have lost over £50,000 in earnings on average.
Scottish Government funding? Just £9.70 per patient per year.
People are paying the price — not the government.
#LongCovidScotland #ChronicIllness #Scotland #MECFS

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“Seen But Not Heard”: Why Long Covid Charities Resigned in Scotland
“Seen But Not Heard”: Why Long Covid Charities Resigned in Scotland Why Long Covid Scotland and Long Covid Kids Resigned from Scottish Government Group | STV News Segment (5 Aug 2025) In this STV News segment aired on Tuesday 5th August 2025, Cass MacDonald and Jane…

I volunteer with #LongCovidScotland and this hasn't been an easy decision for them, but desperate times...

#ScotGov #LongCovid #Covid
youtu.be/AyplCewFjog?...

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New Covid strain spreads across UK with unique symptom The XFG and XFG.3 variants currently account for around 30 percent of Covid-19 cases in England

🚨𝗧𝗵𝗲𝗿𝗲'𝘀 𝗮 𝗻𝗲𝘄 𝗖𝗢𝗩𝗜𝗗 𝘃𝗮𝗿𝗶𝗮𝗻𝘁 𝘀𝗽𝗿𝗲𝗮𝗱𝗶𝗻𝗴 𝗶𝗻 𝘁𝗵𝗲 𝗨𝗞: 𝗦𝘁𝗿𝗮𝘁𝘂𝘀 𝗫𝗙𝗚.

Key symptoms:

‼️Sore Throat
🔇Hoarse Voice
😓Fatigue

www.independent.co.uk/news/...


#StratusXFG #LongCovid #CovidIsNotOver #HealthAlert #UKNews #LongCovidScotland

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Long Covid Scotland's Guide to the Scottish Public Consultation If you’re living with Long Covid, you already know how hard it can be to feel seen, heard, or taken seriously. Many of us have had to fight just to get a diagnosis, let alone the careor support we nee

I #volunteer with #LongCovidScotland and helped write this free guide to answering the Long Terms Condition public consultation.

If you have #ChronicIllness and are in Scotland I hope it's useful #LongCovid #ME #Diabetes #Scotland

buymeacoffee.com/morewretchthansage/e/409595

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Genome-wide association study of long COVID - Nature Genetics A genome-wide study by the Long COVID Host Genetics Initiative identifies an association between the FOXP4 locus and long COVID, implicating altered lung function in its pathophysiology.

A new large study suggests gene FOXP4, which helps control our lungs, is involved in long covid . It’s a different gene than the one linked to severe Covid, showing that Long Covid is its own condition, not just a “slow recovery”.

www.nature.com/articles/s41... #LongCovid #LongCovidScotland

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Long Covid Scotland Large Yellow Sticker See Us. Treat Us. Study Us. This bold yellow sticker does more than make a statement – it demands visibility, care, and research for everyone living...

😡Tired of people telling you where to stick it?

✊Well now you can raise awareness of Long Covid, and Stick it wherever you want!

100% of profits from every sticker are donated straight to supporting #LongCovidScotland

longcovidscotland.shop/prod...

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Time To Tell ScotGov The Truth About These Five Things — Long Covid Scotland We’re up against conditions with decades of advocacy power behind them — heart disease, diabetes, ME, and more. It’s wrong that we’re forced to compete for attention. But if we want Long Covid to be heard and not absorbed into services built for othe

Time To Tell ScotGov The Truth About These Five Things...

#LongCovid #LongCovidScotland #PublicConsultation

www.longcovid.scot/blog/the...

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Two panel meme. Top panel is a book that say "List of easily accessible treatments for Long Covid Patients" , bottom panel is headlined "Every Scottish Long Covid Patient" and shows the cartoon cat Tom from Tom & jerry looking at the book with a red angry face!

Two panel meme. Top panel is a book that say "List of easily accessible treatments for Long Covid Patients" , bottom panel is headlined "Every Scottish Long Covid Patient" and shows the cartoon cat Tom from Tom & jerry looking at the book with a red angry face!

IT. SHOULDN’T. BE. THIS. HARD. 😡
There’s no magic bullet for #LongCovid, but there ARE things that help—yet thousands are losing out due to a postcode lottery of care.


🚨 Are you getting the care you need?
#LongCovidScotland #SNHS #PostcodeLottery #InvisibleIllness #HealthcareCrisis #DoBetter

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Graphic promoting Long Covid Scotland’s public consultation response campaign. The background features overlapping cut-out silhouettes of people in pastel colours, some with virus-like symbols. Bold white text reads: “Why It's Important You Respond To The Public Consultation.” Smaller text at the bottom says: “Your voice matters. Read our article to find out why, and how, to respond.”

Graphic promoting Long Covid Scotland’s public consultation response campaign. The background features overlapping cut-out silhouettes of people in pastel colours, some with virus-like symbols. Bold white text reads: “Why It's Important You Respond To The Public Consultation.” Smaller text at the bottom says: “Your voice matters. Read our article to find out why, and how, to respond.”

📣Later this year The Scottish Government is running a public consultation on Long Covid.
This is your chance to be heard.
👉 Read our short article to find out why this matters and how to respond once it's live.
#LongCovidScotland #LongCovid
www.longcovid.scot/blog/pub...

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Patients with long Covid regain sense of smell and taste with pioneering surgery Surgeons believe the technique called functional septorhinoplasty (fSRP) ‘kickstarts’ smell recovery in patients

🐽 SMELL BREAKTHROUGH? 🚨
Doctors in London have restored smell & taste in #LongCovid patients with pioneering surgery. Could this be a game-changer for those still suffering? Read more:

www.theguardian.com/society...

#LongCovidScotland #fSRP

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Some people out there really need educated there is no such thing as 'mild covid'

#LongCovid #Meme #LongCovidScotland

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🤰 𝗡𝗲𝘄 𝗦𝘁𝘂𝗱𝘆 - 𝗣𝗿𝗲𝗴𝗻𝗮𝗻𝗰𝘆 𝗔𝗳𝗳𝗲𝗰𝘁𝘀 𝗟𝗼𝗻𝗴 𝗖𝗼𝘃𝗶𝗱 𝗥𝗶𝘀𝗸
Pregnancy affects Long Covid risk – and we don’t know why. This is why we need more Long Covid research
jamanetwork.com/journals/ja...
#LongCovid #Pregnancy #MaternalHealth #ChronicIllness #LongCovidScotland

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