Booklet: Management: 10 Key Aspects
This booklet brings together the 10 most important aspects to managing your ME/CFS and is consistent with the NICE Guideline on ME/CFS.
meassociation.org.uk/literature/i...
#pwME #MECFS #MyalgicEncephalomyelits #MEAwarenessWeek #MEAW2025
Belfast Media: Event hears powerful accounts from those suffering with ME
"Myalgic Encephalomyelitis is a neurological condition that affects approx 7.8K people across the North, including West Belfast Sinn Féin councillor Siobhán McCallin …..."
belfastmedia.com/event-hears-...
#MECFS #MEAW2025
Newry.IE: Bessbrook Charity Host World M.E Day at Stormont
"Hope 4 ME & Fibro NI hosted a World M.E. Day awareness event at Parliament Buildings, Stormont this week …….”
www.newry.ie/articles/new...
#MECFS #MEAW2025
Help us this ME Awareness Week, by sharing these real stories & reminding people with ME/CFS that they are not alone.
https://meassociation.org.uk/what-is-MECFS/
*If sensitive to sound, please turn down the volume as the video has music'*
#MEAW #MEAW2025 #MEAwarenessWeek #MECFS
IMAGE DESCRIPTION: A blue and green world map with pin points in Canada, USA, Portugal, Brazil, Spain, UK, Germany, Austria, Israel, Australia. Wording - Global Footprint of UKMEB Samples. London school of Hygiene and Tropical Medicine logo, and CureME logo.
The UK ME/CFS Biobank samples have been sent from London to labs worldwide, helping to aid research across the globe.
The CureME team's new campaign is offering free biological samples and data to researchers through a special competition.
Apply: https://tinyurl.com/mp96zzwp
#MECFS #MEAW2025
IMAGE DESCRIPTION: Photo of three teenage students walking out of the school gates. The image of the girl on the left is greyed out. Wording - ME/CFS: The Hidden Crisis. "ME/CFS stole my daughter’s education" ME Awareness week 12th - 18th May.
Millions are affected by ME/CFS—a debilitating and often invisible illness. Yet despite its profound impact, it continues to be misunderstood and underfunded.
Help us make a difference this ME Awareness Week: https://meassociation.org.uk/nc65
#MECFS #pwME #HiddenCrisis #MEAW2025 #MEAwarenessWeek
IMAGE DESCRIPTION: Photo of a couple on their wedding day, dressed up in a tux and a wedding dress. The woman's picture is greyed out. Wording - ME/CFS: The Hidden Crisis. "ME/CFS stole my wedding day, my career, my freedom – my life." ME Awareness week 12th - 18th May
Millions live with ME/CFS—an often invisible and life-altering illness. Despite its impact on quality of life, it remains critically underfunded and often overlooked.
Join us to call for the support that patients urgently need: https://meassociation.org.uk/nc65
#MECFS #pwME #HiddenCrisis #MEAW2025
The ME Association has published an updated and comprehensive booklet on everything you need to know about ME/CFS.
Written by Dr Katrina Pears, it covers many important areas and provides expert information for people with ME/CFS.
Download: https://meassociation.org.uk/m7iq
#pwME #MECFS #MEAW2025
IMAGE DESCRIPTION: Photo of a female scientist processing blood samples. ME Association and CureME logos.
This ME/CFS Awareness Week, the ME Association is proud to support the CureME team’s call to action for researchers.
In a special campaign, researchers can apply for free blood samples and data from the UK ME/CFS Biobank here: https://tinyurl.com/mp96zzwp
#MECFS #MEAwarenessWeek2025 #MEAW2025
IMAGE DESCRIPTION: Photo of the front of Brighton Sea Life Centre. Wording reads: Brighton Sea Life Centre lit up blue for ME Awareness Day! MEA logo bottom right.
IMAGE DESCRIPTION: Photos of the inside of Brighton Sea Life Centre lit up blue, in a collage. MEA logo bottom right.
Brighton Sea Life Centre was lit up blue on Monday 12th to mark International ME Awareness Day!
Thank you to all organisations and businesses that have lit up blue for ME/CFS, or marked ME Awareness Day/Week in their own way.
#InternationalMEAwarenessday #MEAwarenessWeek2025 #MEAW2025
"Belle and Sebastian’s Stuart Murdoch will join campaigners at The Scottish Parliament on Wednesday calling for urgent action on pledged funding"
https://tinyurl.com/3utm8wdr
#pwME #MECFS #MyalgicEncephalomyelitis #MEAW2025
Suffolk News: Life-altering battle with long Covid inspires nurse, of East Harling, near Thetford, to lead changes at NHS trust (paywalled)
https://tinyurl.com/3tusj42f
#MECFS #LongCovid #MEAW2025
IMAGE DESCRIPTION: Photo of a mum and her three kits lighting a candle on a birthday cake. The image is bright and colourful, but the mum is greyed out in black and white. Wording - ME/CFS: The Hidden Crisis. "ME/CFS stole time with my mum". ME Awareness Week 12th - 18th May.
ME/CFS is a hidden crisis affecting millions, leaving many bedbound and unseen. This debilitating illness robs people of their health, yet research and medical support remain critically inadequate.
Join us in demanding urgent action: https://meassociation.org.uk/nc65
#MECFS #HiddenCrisis #MEAW2025
IMAGE DESCRIPTION: Photo of a female scientist holding up a vial with a red liquid.
This #MEAwarenessWeek we're proud to support the incredible work of the UK ME/CFS Biobank
The CureME team's new campaign is offering free biological samples and data to researchers through a special competition.
Apply here: https://tinyurl.com/mp96zzwp
#MECFS #MEAwarenessWeek2025 #MEAW2025
