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ME Association
ME Association
@meassociation.org.uk
10 months ago
IMAGE DESCRIPTION: Photo of the front of Brighton Sea Life Centre. Wording reads: Brighton Sea Life Centre lit up blue for ME Awareness Day! MEA logo bottom right.

IMAGE DESCRIPTION: Photo of the front of Brighton Sea Life Centre. Wording reads: Brighton Sea Life Centre lit up blue for ME Awareness Day! MEA logo bottom right.

IMAGE DESCRIPTION: Photos of the inside of Brighton Sea Life Centre lit up blue, in a collage. MEA logo bottom right.

IMAGE DESCRIPTION: Photos of the inside of Brighton Sea Life Centre lit up blue, in a collage. MEA logo bottom right.

Brighton Sea Life Centre was lit up blue on Monday 12th to mark International ME Awareness Day! 

Thank you to all organisations and businesses that have lit up blue for ME/CFS, or marked ME Awareness Day/Week in their own way.

#InternationalMEAwarenessday #MEAwarenessWeek2025 #MEAW2025

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Ben Nevis
Ben Nevis
@bennevis.bsky.social
10 months ago
Preview
Tribute to Sarah-Jayne Lewis, 1974 - 2024 Dedicated to the memory of Sarah-Jayne Lewis

@investinmeresearch.bsky.social

This should not happen

𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗠𝗘 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆

Sarah-Jayne Lewis (SJ) was a great supporter of Invest in ME Research

sarah-jaynelewis.muchloved.com
#mecfs #MEawareness #InternationalMEawarenessDay

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Ben Bridges
Ben Bridges
@falconer084.bsky.social
10 months ago
Umbrella Name: Systemic Exertion Intolerance Diseases ME (Myalgic Encephalomyelitis). Sudden onset of symptoms coming in the form of outbreaks with no known virus detected so far. Many outbreaks have occurred during polio epidemics. PVFS (Post Viral Fatigue Syndromes), sudden onset after known viruses. CFS (Chronic Fatigue Syndrome). Multiple types of onset. Some examples are: epidemic onsets (PVFS CFS); gradual onsets, sudden sporadic onsets, small cluster onsets, and trauma onsets. Lyme disease. Illness following a tick bite. Bulls-eye rash at onset. GWI (Gulf War Illness). Affecting soldiers who went to the Gulf War. Long COVID aka PASC (Post Acute Sequelae COVID-19). Illness following COVID-19 infection. Graded Exercise Therapy (GET) is contraindicated.

Umbrella Name: Systemic Exertion Intolerance Diseases ME (Myalgic Encephalomyelitis). Sudden onset of symptoms coming in the form of outbreaks with no known virus detected so far. Many outbreaks have occurred during polio epidemics. PVFS (Post Viral Fatigue Syndromes), sudden onset after known viruses. CFS (Chronic Fatigue Syndrome). Multiple types of onset. Some examples are: epidemic onsets (PVFS CFS); gradual onsets, sudden sporadic onsets, small cluster onsets, and trauma onsets. Lyme disease. Illness following a tick bite. Bulls-eye rash at onset. GWI (Gulf War Illness). Affecting soldiers who went to the Gulf War. Long COVID aka PASC (Post Acute Sequelae COVID-19). Illness following COVID-19 infection. Graded Exercise Therapy (GET) is contraindicated.

Mum drew this and wrote the original. #internationalMEAwarenessDay #LymeDisease #GulfWarSyndrome

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Ben Bridges
Ben Bridges
@falconer084.bsky.social
10 months ago
If a blind person needs me to write this all out, please ask me under the post. It’s too long for the ALT text.

If a blind person needs me to write this all out, please ask me under the post. It’s too long for the ALT text.

Post image Post image

#GreatestMEdicalScandal #MyalgicEncephalomyelitis #PwME #MECFS #MedicalMisogyny #InternationalMEawarenessDay

Written by my mum then digitised by me, as she struggles with computerised devices.

Myalgic Encephalomyelitis- Valerie B’s Story, originally written on September 2024

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ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#12Mayo #DíaMundial #DíaInternacional #MyalgicEncephalomyelitis #pwME #MEawareness #MEawarenessmonth #May12awareness #bringMEoutoftheshadows #SácaMEdeLasSombras #MEawarenessDay #WorldMEDay #InternationalMEawarenessDay #MedEd #MECFS

0 0 1 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#12Mayo #DíaMundial #DíaInternacional #MyalgicEncephalomyelitis #pwME #MEawareness #MEawarenessmonth #May12awareness #bringMEoutoftheshadows #SácaMEdeLasSombras #MEawarenessDay #WorldMEDay #InternationalMEawarenessDay #MedEd #MECFS

0 0 1 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#EncefalomielitisMiálgica #12Mayo #DíaMundial #DíaInternacional #MyalgicEncephalomyelitis #pwME #MEawareness #MEawarenessmonth #May12awareness #bringMEoutoftheshadows #SácaMEdeLasSombras #MEawarenessDay #WorldMEDay #InternationalMEawarenessDay #MedEd #MECFS

0 0 1 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#12Mayo #DíaMundial #DíaInternacional #MyalgicEncephalomyelitis #pwME #MEawareness #MEawarenessmonth #May12awareness #bringMEoutoftheshadows #SácaMEdeLasSombras #MEawarenessDay #WorldMEDay #InternationalMEawarenessDay #MedEd #MECFS

0 0 1 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#12Mayo #DíaMundial #DíaInternacional #MyalgicEncephalomyelitis #pwME #MEawareness #MEawarenessmonth #May12awareness #bringMEoutoftheshadows #SácaMEdeLasSombras #MEawarenessDay #WorldMEDay #InternationalMEawarenessDay #MedEd #MECFS

0 0 1 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#12Mayo #DíaMundial #DíaInternacional #MyalgicEncephalomyelitis #pwME #MEawareness #MEawarenessmonth #May12awareness #bringMEoutoftheshadows #SácaMEdeLasSombras #MEawarenessDay #WorldMEDay #InternationalMEawarenessDay #MedEd #MECFS

0 0 1 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#12Mayo #DíaMundial #DíaInternacional #MyalgicEncephalomyelitis #pwME #MEawareness #MEawarenessmonth #May12awareness #bringMEoutoftheshadows #SácaMEdeLasSombras #MEawarenessDay #WorldMEDay #InternationalMEawarenessDay #MedEd #MECFS

0 0 1 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#12Mayo #DíaMundial #DíaInternacional #MyalgicEncephalomyelitis #pwME #MEawareness #MEawarenessmonth #May12awareness #bringMEoutoftheshadows #SácaMEdeLasSombras #MEawarenessDay #WorldMEDay #InternationalMEawarenessDay #MedEd #MECFS

0 0 1 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#InternationalMEawarenessDay #MedEd #MECFS #MillionsMissing #BiomedicalResearchNow #NeuroDisease
#PublicHealthCrisis #InvisibleDisabilities #EconomicDrain #JusticeForME
#InternationalMEDay #MEAwareness #InvisibleIllness #ChronicIllness #EndME
#ChronicIllnessAwareness

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Quadram Institute
Quadram Institute
@quadraminstitute.bsky.social
10 months ago
Preview
Research exploring the role of viruses in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; Introducing Dr Krishani Perera’s fellowship - Quadram Institute Dr Krishani Perera studies ME/CFS through a microbial lens. We catch up to learn if and how microbes contribute to the debilitating condition.

Today is #InternationalMEawarenessDay 📣

We catch up with @investinmeresearch.bsky.social LunaNova Fellow Dr Krishani Perera who studies ME/CFS through a microbial lens 🧪

Read more about her research ⤵️

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ME Association
ME Association
@meassociation.org.uk
10 months ago
Preview
Victoria Tower at Castle Hill to be lit up in blue to mark ME Awareness Day - Huddersfield Hub Kirklees Council granted the request made by the Kirklees & Calderdale Independent ME Support Group

The Victoria Tower at Castle Hill, Huddersfield, will be lit up blue today to support International ME Awareness Day, thanks to Kirklees Council and Kirklees & Calderdale Independent ME Support Group. 

Read more here: https://tinyurl.com/yc3mz5sa

#WorldMEDay #InternationalMEAwarenessDay #MECFS

4 0 0 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#InternationalMEawarenessDay #MedEd #MECFS #MillionsMissing #BiomedicalResearchNow #NeuroDisease #PublicHealthCrisis #InvisibleDisabilities #EconomicDrain #JusticeForME #InternationalMEDay #MEAwareness #InvisibleIllness #ChronicIllness #EndME #ChronicIllnessAwareness

1 1 1 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#InternationalMEawarenessDay #MedEd #MECFS #MillionsMissing #BiomedicalResearchNow #NeuroDisease
#PublicHealthCrisis #InvisibleDisabilities #EconomicDrain #JusticeForME
#InternationalMEDay #MEAwareness #InvisibleIllness #ChronicIllness #EndME
#ChronicIllnessAwareness

0 0 0 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

#EncefalomielitisMiálgica #12Mayo #DíaMundial #DíaInternacional #MyalgicEncephalomyelitis #pwME #MEawareness #MEawarenessmonth #May12awareness #bringMEoutoftheshadows #SácaMEdeLasSombras #MEawarenessDay #WorldMEDay #InternationalMEawarenessDay #MedEd #MECFS

0 0 1 0
ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago

Hoy, #12Mayo queremos crear conciencia.

#12Mayo #DíaMundial #DíaInternacional #MyalgicEncephalomyelitis #pwME #MEawareness #MEawarenessmonth #May12awareness #bringMEoutoftheshadows #SácaMEdeLasSombras #MEawarenessDay #WorldMEDay #InternationalMEawarenessDay #MedEd

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EndMalnutritioninME
EndMalnutritioninME
@malnutritionme.bsky.social
10 months ago

Today, 12th May, is #InternationalMEAwarenessDay and #InternationalNursesDay. This day was chosen because it is the birthday of Florence Nightingale, who had a debilitating disease which is now thought to be #ME.
#MEAwarenessDay
#InternationalNursesDay

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ONG PEM
ONG PEM
@asociacionpem.bsky.social
10 months ago
Post image

🟦 En #InternationalMEawarenessDay EMEA insta a #EU @europarl.europa.eu a iniciar un esfuerzo paneuropeo para resolver décadas de problemas con la investigación y el tratamiento de la #EncefalomielitisMiálgica

#12Mayo #DíaMundial #MyalgicEncephalomyelitis

europeanmealliance.org/emea-meaware...

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UK Charity Invest in ME Research
UK Charity Invest in ME Research
@investinmeresearch.bsky.social
10 months ago
Preview
Tribute to Sarah-Jayne Lewis, 1974 - 2024 Dedicated to the memory of Sarah-Jayne Lewis

8/8
𝑻𝙝𝒊𝙨 𝙨𝒉𝙤𝒖𝙡𝒅 𝒏𝙤𝒕 𝒉𝙖𝒑𝙥𝒆𝙣

𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗠𝗘 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆

sarah-jaynelewis.muchloved.com

#mecfs #MEawareness #InternationalMEawarenessDay

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UK Charity Invest in ME Research
UK Charity Invest in ME Research
@investinmeresearch.bsky.social
10 months ago

7/8
Despite being ill for many years Sarah-Jayne had managed to save funds that her family has decided to donate to IiMER

We are deeply appreciative of this kind gesture
#mecfs #MEawareness #InternationalMEawarenessDay

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UK Charity Invest in ME Research
UK Charity Invest in ME Research
@investinmeresearch.bsky.social
10 months ago

6/8
....
Her compassion extended to those facing mental health challenges, offering understanding and encouragement to all who needed it.”
#mecfs #MEawareness #InternationalMEawarenessDay

1 0 1 0
UK Charity Invest in ME Research
UK Charity Invest in ME Research
@investinmeresearch.bsky.social
10 months ago

5/8
“Her legacy is one of passion, kindness, and unwavering support for others
SJ was a pillar of strength for the ME and chronic illness community, founding a FB support group to help others navigate their struggles ......

#mecfs #MEawareness #InternationalMEawarenessDay

1 0 1 0
UK Charity Invest in ME Research
UK Charity Invest in ME Research
@investinmeresearch.bsky.social
10 months ago
Preview
Tribute to Sarah-Jayne Lewis, 1974 - 2024 Dedicated to the memory of Sarah-Jayne Lewis

4/8
Sarah- Jayne's funeral tribute and messages on Much Loved (sarah-jaynelewis.muchloved.com) show how much she is missed.

It is a wonderful tribute worth reading in full

#mecfs #MEawareness #InternationalMEawarenessDay

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UK Charity Invest in ME Research
UK Charity Invest in ME Research
@investinmeresearch.bsky.social
10 months ago

3/8

Sadly, Sarah-Jayne died last August aged 49, having suffered from #severeME for many years

#mecfs #MEawareness #InternationalMEawarenessDay

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UK Charity Invest in ME Research
UK Charity Invest in ME Research
@investinmeresearch.bsky.social
10 months ago

2/8
SJ promoted the charity's activities and was part of the community of wonderful online
@Invest_in_ME supporters
#MECFS #MEawareness #InternationalMEawarenessDay

0 0 1 0
UK Charity Invest in ME Research
UK Charity Invest in ME Research
@investinmeresearch.bsky.social
10 months ago
Sarah-Jayne Lewis

Sarah-Jayne Lewis

1/8
This should not happen

𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗠𝗘 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆

Sarah-Jayne Lewis (SJ) was a great supporter of Invest in ME Research

sarah-jaynelewis.muchloved.com
#mecfs #MEawareness #InternationalMEawarenessDay

4 0 1 0
David Davies-Payne
David Davies-Payne
@d2p.bsky.social
10 months ago
ME/Chronic fatigue syndrome: The mysterious illness trapping people in their bodies
ME/Chronic fatigue syndrome: The mysterious illness trapping people in their bodies YouTube video by Re: News

Today is #InternationalMEawarenessDay recognising the #MillionsMissing with #MECFS.

One story from NZ documenting how families have to create their own health system.
www.youtube.com/watch?v=DsOA...

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