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What can we learn by listening to patients?

People living with Motor Neuron Disease and their carers share their experiences in this short film about CognoMND™.

Their stories highlight why research must connect to real lives.

Watch here: player.sheffield.ac.uk/events/what-...

#MNDResearch

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Up to £100,000 for bold MND research.

In this Funder Perspective, @mndoddie5.bsky.social shares how they are accelerating innovative MND research in the UK.

🗓️ Deadline Feb 27
👉 Read here: lnkd.in/gvsU7giD

#ResearchFunding #MNDResearch #RareDiseaseResearch #FundingOpportunity #FunderPerspective

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I've completed my #DoddieAid2026 challenge! I walked, hiked, stretched, and biked 515 miles in 5 weeks in support of @mndoddie5.bsky.social
🥾👟🦵🧘🏻‍♀️🚲💪
You can donate to help fund vital #MNDresearch at: www.justgiving.com/page/emma-bo...
Thank you! 💙💛💙💛

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I've signed up for #DoddieAid2026 to raise money for @mndoddie5.bsky.social who fund #MNDresearch.
I'm aiming to cover 500 miles in 5 weeks! #ProclaimersChallenge.
You can support me by donating to #DoddieAid via my Just Giving Page: www.justgiving.com/page/emma-bo...

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ALS-Biomarker study reaches recruitment milestone | Anne Rowling Regenerative Neurology Clinic

Led by senior research nurse Ethan Stoker, the team at the Anne Rowling Clinic have reached their recruitment target for the ALS-Biomarker study.

Read about their success👉 edin.ac/43H7PBx

@ucl.ac.uk @united2endmnd.bsky.social @edinunineuro.bsky.social @mndsmart.bsky.social
#ALS #MNDresearch

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Our Co-Director, Prof. @ammaralchalabi.bsky.social, gave a fantastic talk yesterday, hosted by @mndassoc.bsky.social, on #MND/#ALS genetics, why they matter and how discoveries are shaping new treatments.

Thank you to everyone who joined in person & online!
#MNDresearch #genetics

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Angela Brown shares her story of strength and fundraising in memory of her brother Sept 2025: Fundraising spotlight - making a difference with flowers.

We are delighted to share this article about Angela Brown’s inspiring fundraising efforts in support of the Euan MacDonald Centre. A wonderful contribution to vital MND research.
#mndresearch #inspirational #fundraising
www.euanmacdonaldcentre.org/about/news/a...

#MND #ALS #Research #fundraising

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Incredibly proud to be a very small cog in the wheels of #mndresearch @euanscentre.bsky.social together with @euansguide.com #science #mnd #ALS #access #disability #review

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A group of 11 people, wearing running gear and Euan MacDonald Centre T-shirts, smiling and arm-in-arm after completing a race.

A group of 11 people, wearing running gear and Euan MacDonald Centre T-shirts, smiling and arm-in-arm after completing a race.

3 WEEKS TO GO! ⏳ Let’s give our runners one final push! Your donation could fund research into new treatments for #MND #ALS. Let’s do this! 💙

🔗 www.justgiving.com/campaign/emc...

#3WeeksToGo #RunForMND #MNDResearch

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Researchers at the Euan MacDonald Centre analysing data on screens

Researchers at the Euan MacDonald Centre analysing data on screens

Why is research so crucial in the fight against MND/ALS? Researchers at The Euan MacDonald Centre are testing treatments in clinical trials. Support our runners at the #EMF & donate today to help fund our research.

justgiving.com/campaign/emf...

#MNDResearch
@mndsmart.bsky.social

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Just a moment...

Doddie Weir's charity invests £4M in MND research to advance science! How can we further support innovation in healthcare? #MNDResearch

www.scotsman.com/health/charity-set-up-by...

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Yahoo is part of the Yahoo family of brands

Doddie Weir's charity commits £4M to boost MND research. Could this lead to breakthroughs in motor neurone disease treatment? #MNDresearch

uk.news.yahoo.com/charity-set-doddie-weir-...

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Charity set up by Doddie Weir invests £4m in bid to accelerate MND research A charity set up by late rugby legend Doddie Weir has committed £4 million to an “open science framework” for research into motor neurone…

In honor of Doddie Weir, a charity invests £4M to fast-track MND research. What advancements do you hope to see? #MNDResearch

www.heraldscotland.com/news/25048831.doddie-wei...

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MND Discovery Network Awards - DEMENTIA RESEARCHER Join interdisciplinary teams tackling MND biology with innovative research. Apply for £1M funding over 3 years from My Name’5 Doddie Foundation by 21 May 2025.

📢 New funding opportunity from @mndoddie5.bsky.social! The Discovery Network offers £1M grants to interdisciplinary teams targeting bold, innovative research into MND biology. Submit your EOI by 21 May! #MNDResearch #FundingOpportunity

www.dementiaresearcher.nihr.ac.uk/funding/mnd-...

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More than £1.3m raised for MND research after A charity event has raised £1.35 million over the first six weeks for motor neuron disease (MND) research.

Doddie Aid 2025 has raised an incredible £1.35 million for MND research in just six weeks! How can we further support this cause? #MNDResearch

www.bordertelegraph.com/news/24978941.doddie-aid...

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(ID Belinda Acott's with father Warren who died from MND in 2024)
Motor neurone disease (MND) is three times more common in the NSW Riverina. Macquarie University has launched Australia’s first MND surveillance centre in Wagga Wagga to investigate environmental triggers and pinpoint causes. Over the next three years, researchers will work closely with patients to uncover critical insights that could lead to prevention.

(ID Belinda Acott's with father Warren who died from MND in 2024) Motor neurone disease (MND) is three times more common in the NSW Riverina. Macquarie University has launched Australia’s first MND surveillance centre in Wagga Wagga to investigate environmental triggers and pinpoint causes. Over the next three years, researchers will work closely with patients to uncover critical insights that could lead to prevention.

Cracking the MND Mystery: Australia’s First Surveillance Centre Opens in Wagga Wagga

www.abc.net.au/news/1049669...

#MNDResearch #RiverinaHealth #MacquarieUniversity #WaggaWagga

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Doddie Aid 2025 - Team England! Help Emma Booth raise money to support My Name'5 Doddie Foundation

My #DoddieAid25 challenge is over and I have met (& exceeded) my target by reaching 515 miles!
It's been a great way to start 2025 but the best part is that I have raised over £400 for vital #MNDresearch - if you would like to add our support you can donate at: www.justgiving.com/page/emma-bo...

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Focus on 💪 in ALS: We found a new role for Angiogenin in muscle regeneration with diagnostic implications. onlinelibrary.wiley.com/doi/10.1111/... @mndresearch.bsky.social @rcsi-research.bsky.social @physiologyrcsi.bsky.social @neuroscienceirl.bsky.social #ALSResearch #MNDResearch

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Find out about how the MND Association is fighting MND, including its collaboration with PrecisionLife to connect patient data and AI to advance #MNDresearch, in Countdown to a Cure. #endALS
PrecisionLife is so proud to be one of their partners (see page 19)

➡️ www.mndassociation.org/sites/defaul...

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