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Genetic cause identified for 1 in 4 MND patients in largest ever rare variant analysis | King's College London New research establishes an identifiable genetic component to motor neuron disease for 1 in 4 people with the disease; a significant increase from previous estimates of 1 in 5.

New research establishes an identifiable genetic ๐Ÿงฌ component to motor neuron disease (MND) for 1 in 4 people with the disease.

@umcutrecht.bsky.social @nihrmaudsleybrc.bsky.social @ukmndri.bsky.social

www.kcl.ac.uk/news/genetic...

#MotorNeuroneDisease

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"'WE'RE BEING LEFT TO DIE'"
@neiljohnstone.bsky.social for Edinburgh Evening News

A #WestLothian mum with a rare form of #MotorNeuroneDisease is fighting for the chance to ceceive treatment which she says could save her life.

#EdinburghEveningNews
#TomorrowsPapersToday
#IBPAPERS

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Rowers Launch Gruelling Irish Sea Leg in ยฃ57m Fight Against MND A team of ocean rowers has set off on the next leg of an endurance mission to raise ยฃ57m for Motor Neurone Disease (MND).

#row4mnd #motorneuronediseaseassociation #motorneuronedisease #motorneuronediseaseawareness #mnd #mndawareness

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Such sad news.My son remembers Pete really powerfully from when he was at #Exeter football holidays clubs. Pete & his family did so much to raise awareness of #MotorNeuroneDisease For people affected check out @denpruexeter.bsky.social using research to influence neurodegeneration policy inc. #MND

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Eric Dane, Greyโ€™s Anatomy and Euphoria star, dies aged 53 Actor who played โ€˜McSteamyโ€™ died on Thursday, 10 months after he revealed his diagnosis with amyotrophic lateral sclerosis (ALS), a type of motor neurone disease

Eric Dane aged 53 has died from ALS /Motor Neurone Disease.
We still need more funding into MND research to find the cause and the cure . My own father died from MND/ALS at 63. #MotorNeuroneDisease

www.theguardian.com/tv-and-radio...

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Thank you Dr Agam Jung & Becky from #LeedsHospitalCharity for tour of Rob Burrow Centre for #MotorNeuroneDisease #Leeds

We're definitely daring to dream big, discussed possibilities for #MND research @leedsth.nhs.uk

๐Ÿ‘‰๐Ÿผ Great opportunity for collaborators to join in @lthtresearchcomms.bsky.social

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London-based medical research organisation @lifearc.bsky.social has helped launch four projects aimed at identifying the most promising repurposed drug candidates to treat motor neurone disease.

healthcaretoday.com/article/life...

#Healthcare #MND #MotorNeuroneDisease #DrugCandidates

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Cullen gives his support to former team-mate Moody Leinster head coach Leo Cullen took time out to speak about his former Leicester team-mate Lewis Moody's battle with Motor Neurone Disease, ahead of his team's meeting with the Tigers.

Cullen gives his support to former team-mate Moody (โœ๏ธ@RTErugby) #Rugby #MotorNeuroneDisease #Support

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"TEARS FOR CHEERS"
@jerrylawton.bsky.social for @dailystar.co.uk
Full Story: t.ly/OFwCY

Marathon man #KevinSinfield says he is "overwhelmed" as his bid to find a #MotorNeuroneDisease cure passed ยฃ10million.

#DailyStar
#TomorrowsPapersToday
#IBPAPERS

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This week's IL newsletter: ALS cure "worth billions" โ€“ New research shows that a treatment for #MotorNeuroneDisease would have both vast economic and human value. #ALSCure #LongitudePrize #AI #IndependentLiving #ILnews
buff.ly/N1GzbyJ

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David Flatmanโ€™s final words after the 745 rugby match were heartfelt and important in the fight against #MND. What a great fun game in the spirit of the rugby family and those affected by #motorneuronedisease weโ€™re in this together.

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Dr. Matthew Phillips - 'Ketogenic Metabolic Therapy in ALS'
Dr. Matthew Phillips - 'Ketogenic Metabolic Therapy in ALS' YouTube video by Low Carb Down Under

#MotorNeuroneDisease #MND #ALS

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"I MAY HAVE MOTOR NEURONE DISEASE BUT IT DOESN'T HAVE ME'"
#AlanWhite for @independent.ie
Full Story: t.ly/o2_j6

A #Wexford woman who was diagnosed with #MotorNeuroneDisease will host a #charity 5km walk to raise funds.

#GoreyGuardian
#TomorrowsPapersToday
#IBPAPERS

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Calling people living with or caring for people with #MotorNeuroneDisease ๐Ÿ‘‡

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Lewis Moody Opens Up About Motor Neurone Disease Diagnosis

Lewis Moody Opens Up About Motor Neurone Disease Diagnosis

England rugby captain Lewis Moody disclosed a motor neurone disease diagnosis, saying his symptoms are minor and he is focusing on his wife Annie and sons Dylan (17) and Ethan (15). getnews.me/lewis-moody-opens-up-abo... #lewismoody #motorneuronedisease

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Lewis Moody, ex-England rugby captain, 47, diagnosed with motor neurone disease. Difficult news for him and his family. #MotorNeuroneDisease https://fefd.link/5Ymap

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Support for Lewis Moody from Irish rugby figures following motor neurone disease diagnosis - The Irish Times Support for Lewis Moody from Irish rugby figures following motor neurone disease diagnosisย ย The Irish Times

Support for Lewis Moody from Irish rugby figures following motor neurone disease diagnosis - The Irish Times (โœ๏ธ@IrishTimesRugby) #SupportLewisMoody #IrishRugby #MotorNeuroneDisease

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Murphy determined to support Moody after MND diagnosis Former Ireland international Geordan Murphy is backing his friend and ex-Leicester team-mate Lewis Moody to confront motor neurone disease with the same "fearless" approach that characterised his rugby playing career.

Murphy determined to support Moody after MND diagnosis (โœ๏ธ@RTErugby) #Rugby #MND #MotorNeuroneDisease

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Former Ireland international Geordan Murphy says โ€˜best friendโ€™ Lewis Moody will tackle MND with โ€˜fearless approachโ€™ Geordan Murphy is backing his friend and former Leicester team-mate Lewis Moody to confront motor neurone disease with the same "fearless" approach that characterised his playing career.

Former Ireland international Geordan Murphy says โ€˜best friendโ€™ Lewis Moody will tackle MND with โ€˜fearless approachโ€™ @beltel.bsky.social #MND #MotorNeuroneDisease #GeordanMurphy

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Former England Rugby captain Lewis Moody diagnosed with motor neurone disease Former England captain and 2003 World Cup winner Lewis Moody has been diagnosed with motor neurone disease (MND).

Former England Rugby captain Lewis Moody diagnosed with motor neurone disease @beltel.bsky.social #LewisMoody #MotorNeuroneDisease #Rugby

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Former England rugby captain diagnosed with motor neurone disease Lewis Moody, 47, told the BBC of his diagnosis on Monday, two weeks after being given the news.

Former England rugby captain diagnosed with motor neurone disease (โœ๏ธ@rugby_ie) #LewisMoody #MotorNeuroneDisease #Rugby

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Lewis Moody diagnosed with motor neurone disease Former England captain and 2003 World Cup winner Lewis Moody has been diagnosed with motor neurone disease.

Lewis Moody diagnosed with motor neurone disease (โœ๏ธ@RTErugby) #LewisMoody #MotorNeuroneDisease #Rugby

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Promotional image from the University of Bath showcasing a new study on DNA damage leading to Motor Neurone Disease, featuring petri dishes and a pipette.

Promotional image from the University of Bath showcasing a new study on DNA damage leading to Motor Neurone Disease, featuring petri dishes and a pipette.

Researchers at the University of Bath have discovered how DNA damage caused by a faulty DNA protection and repair system can lead to neurodegenerative disorders such as #MotorNeuroneDisease.

www.bath.ac.uk/announcements/new-study-...

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Missing my dad today. Gone too soon from that beast of an illness, Motor Neurone Disease .
To all those missing their Dads today.
#FathersDay #MotorNeuroneDisease

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These are also known as blue Cornflower and is the flower for Motor Neurone Disease #MotorNeuroneDisease #LouGehrigDisease #MND #DisabilityRights

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