He is the (or one of the) G.O.A.T.s when it comes to #Dysautonomia, #POTS, #NeuroSjogrens, post-viral and vaccine induced autonomic and small fibre neuropathy, etc, etc, etc. This has been his career for decades, and is VERY meaningful.
Sooo…. was it one of you who asked the question to Dr. Goodman on the zoom tonight about #NeuroSjogrens vs. #MECFS?? Whoever it was, BLESS YOU. ⭐️ I wish I had been recording that Q+A. So important - I wish we didn't have to wait 3 weeks to get the video! #Care4Complex
The result of medical neglect. #myalgicenchephalomyelitis #neurosjogrens #väsymysoireyhtymä #medicalabuse
She has to live a serene life. Her life actually depends on it. Stress triggers autoimmune flares.
#chronicallyill #autoimmume
#Lupus #NeuroSjogrens
#NeuroSjogrens #Dysautonomia
#Care4Complex ....
Gestern bin ich "gestolpert".
Ich sah einen Post einer Expertin, die einen "Account" auf einen Fehler aufmerksam machte.
Nein, man hat sich nicht über die Klarstellung gefreut 😭
Jetzt wurde ich blockiert.
Mein Hinweis
"okay, vielleicht weißt
These #neurosjogrens papers are paradigm shifting papers imo. (see links @ end of thread) Will b eye opening 4 Neuros 2 read. Note all study subjects must meet current Sj criteria wc obviously ⬆️ %ages who will have sicca+, SSA+ & Bx+. 🧵
Loss of this baseline functionality in #NeuroSjogrens #dysautonomia erodes ability to follow thru w plans. Steals ability to work full time or at all. Wears on friends/family. Eventually many are left disabled, unemployable, poor, alone & sadly unrecognized by MD's 4 many yrs.
#Sjogrens commonly has #AutonomicNeuropathy. Most patients have lost the ability to predict how one feels day 2 day. Hr to hr. Even minute to minute sometimes. The days of predictable baseline function are gone for many #NeuroSjogrens patients. ....
