Why I Need to See More Than 10 Different Types of Doctors Regularly. (A team of healthcare professionals join their hands together towards the centre of the photo.) www . a chronic voice .com

"I need to see an #ophthalmologist on a yearly basis, as the #medications I take to control the #Lupus and #Sjögrens can cause blindness, esp #hydroxychloroquine ..can also lead to other eye problems such as cataracts & visual field defects.": buff.ly/BXyhRA4

#ChronicIllness #doctors #disability

High prevalence of gastrointestinal symptoms in patients with primary Sjögren’s syndrome cannot be attributed to pancreatic exocrine insufficiency Pancreatic exocrine insufficiency (PEI) results in maldigestion of fat, leading to steatorrhea, malabsorption and weight loss. Sjögren’s syndrome (SS) is a chronic autoimmune rheumatic disease with...

Can a study on 57 people be so sharp concluding "High prevalence of gastrointestinal symptoms in patients with [ #Sjögrens ] cannot be attributed to pancreatic exocrine insufficiency"

Why not?

Exocrine glands function intermittently, vagal nerve influence them

www.tandfonline.com/doi/full/10....

Wishing happy UK #MothersDay to all children of autistic mothers!

Read Amina's story, part of "The Blind Spot": an opportunity to learn about the importance of dentistry care in systemic autoimmune diseases like #Sjögrens, very often still dismissed by many medics.

www.amazon.co.uk/dp/B0FXBP3HC3

This body is so frustrating. Yesterday overactive digestion, today underactive digestion. I have symptoms that I deal with every day, they range in severity but are consistent. The symptoms that happen so randomly are just frustrating and exhausting. Ugh. #Sjögrens #Autoimmune

The management of #Sjögrens disease requires a multidisciplinary approach. Join Caroline Shiboski at next week’s UCSF OHNS Grand Rounds as she breaks down diagnostic vs. classification criteria—and how to apply them in clinical practice.

See you on Zoom! bit.ly/46QRdbV

~80% of Autoimmune Patients are Female 🧬 Yet, female biology has long been underrepresented in research. 🔬 On Women’s Health Research Day, we highlight the need for inclusive, evidence-based science. #WomensHealthResearchDay #AutoimmuneDisease #Endometriosis #Sjögrens

Why Your Daily Habits With Sjögren’s Syndrome Matter

"The most significant challenge that comes with #Sjögrens is #dryness, which can significantly affect the mouth, eyes, nose, and vagina. This isn’t just uncomfortable; it can lead to reduced #EmotionalHealth.": buff.ly/FP4ECwt

via @healthcentral.bsky.social
#ChronicIllness #SjogrensDisease

Do I have actually have a known MS mimic? Part 2 Today I attended my retiring GP, who is an attentive listener, as referenced in previous post. I’m in good form mentally, but have been feeling ever more “out of condition” and generally weak. He w…

msmartinecom.wordpress.com/2025/12/16/d...

#Sjögrens #SjogrensDisease #multiplesclerosis #dyspnea #InterstitialLungDisease #heartfailure #blog #disability

Do I have actually have a known MS mimic? For most of this past week I’ve been a respite resident in the MS Care Centre, have met medical professionals as well as fellow residents affected by multiple sclerosis, and what I’ve experienced r…

msmartinecom.wordpress.com/2025/12/12/d...

#multiplesclerosis #sjögrens #sjogrens #disability ⁦

We're in the middle of a cold rainy week and my body is in full revolt. The unrelenting pain and nausea have me cranky and a bit short tempered which upsets me more than the pain, honestly. 😔
#fibromyalgia
#Sjögrens

Our December issue is live!

Including #ILD in #RA, #Sjögrens disease, and #SystemicSclerosis, plus much more! thelancet.com/journals/lan...
Cover by Sara Gironi Carnevale #Medsky #Rheumsky

Insightful for specialists and patients, biomarkers testing in #autoimmunedisease continues to be tricky in case of multiple overlapping conditions (SLE versus Sjögren's / Hashimoto vs TED etc).

My thought: assume any autoimmune disease could morph in any other, particularly in #Sjögrens

The level of contempt for my body is ever increasing and knows no bounds. #Spoonie #Autoimmune #Sjögrens

On TED / graves orbitopathy and / or thyroid autoantibodies in #Sjögrens

I found these 2 articles 👇 very helpful together with others on
TPO antibodies, Selenium in thyroid disorders and... the damned overlapping of symptoms with Myasthenia Gravis

www.clinexprheumatol.org/abstract.asp...

In "Teeth of Love" Amina's painful tooth extraction and risk of sepsi as a teenager is an opportunity to learn about the importance of dentistry in systemic autoimmune diseases like #Sjögrens, domain still not included in EULAR Sjögren's Disease Activity Index ESSDAI

www.amazon.co.uk/dp/B0FXBP3HC3

I need a sherpa lined jacket, but one where the sherpa is in the sleeves and not in the torso area. #AutoimmuneDisease #Sjögrens #MyExtremetiesGetColdNotMyTorso

Resources & Therapies for Pain After Major Knee Surgery

"The problem with the massage kits is that my hands and fingers have a ‘contact limit’, due to #inflammation from #Lupus and #Sjögrens. Everything I push or press adds up": buff.ly/R8l8lRe

#ChronicPain #PainManagement

We’re looking for people who have been diagnosed with a variety of conditions and their caregivers Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!

Paid patient interviews**#SavvyCoop is looking for diagnosed patients (or caregivers to someone with) one of the following autoimmune diseases: #RheumatoidArthritis (RA) #SystemicScleroderma (SSc) #Sjögrens
#Lupus #Sarcoidosis #Myositis
18+ worldwide
apply.savvy.coop/awareness-on...

Heard of the DermaRite recall? 👀
This is the first time a recall has ever really affected me.

youtu.be/rJyt1GP58eI?...

#DermaRite #Soap #Recall #AutoImmune #AI
#PSA #Sjögrens #SjD

When Chronic Pain Isn't 'normal Anymore But You Don't Realise...

Patellar tendon rupture - what does it feel like?

"I thought it was just my #Sjögrens acting up again, because my #knees hurt almost every day anyway, and paid not much mind to it. I went out with a friend in the evening & even went for a walk up & downhill despite the pains.":

#ChronicPain #MondayBlogs

5. #insurance won't approve MRI anyway so they don't order them (this is the third time I've heard this from a rheumatologist)
6. #Sjögrens does so much now, it's just like lupus but also.... Nothing can be done....
7. Me getting better on HCQ = "surprising"
8. NPSLE = so rare nobody's seen

Which BTW she gave me a primary dx of #Sjögrens, told me she didn't know what #ELISA tests were, took away my #lupus dx, and i have had no rheumatologist to talk with for over a month bc the last one dropped me bc #insurance #healthcare #healthinsurance is BULLSHIT in this country #USA

Novartis scores double phase 3 win in Sjögren's syndrome, succeeding where rivals failed Novartis may have abandoned one Sjögren's syndrome asset this year, but it looks like the drugmaker has a winner on its hands with another candidate. | Novartis may have abandoned one of its Sjögren's...

Big news for #sjögrenssyndrome!

#autoimmune #sjögrens #rheumatology #medsky

How the heat effects Autoimmune Disorders

How the heat effects autoimmune disorders...

#autoimmune #lupus #SLE #RA #rheumatoidarthritis #MS #multiplesclerosis #sjögrens #psoriaticarthrits #flareups

A white and grey background with black and blue text and a blue awareness ribbon. The text reads "National Sjögren's Awareness Month. World Sjögren's Awareness Day is on July 23rd. Sjögren's disease is a chronic, systemic, inflammatory autoimmune disease that usually attacks and damages the salivary, tear and mucous-secreting glands."

Did you know that Sjögren’s disease can cause dry mouth, dry eyes, or arthritis, painful and weak muscles, neuropathy, and fatigue?

Check out Sjögren’s Society of Canada to learn more.

#Sjögrens #SjögrensDisease #SjögrensAwareness #SjögrensAwarenessMonth #WorldSjögrensAwarenessDay

This Is Not What I Ordered, The Podcast - Episode 47 Acceptance Is Power, with Sheryl Chan. [A photo features a girl smiling widely, looking sweaty with hair tied up, and a tiny blue parrotlet on her shoulder. She doesn't look ill but radiating with health.]

"Suffering from a mild #stroke at the age of 14, Sheryl was diagnosed with a rare #BloodClotting syndrome that set off a chain reaction of other #AutoimmuneDisorders including #lupus, #epilepsy, #Sjögrens syndrome & a heart rhythm disorder.": buff.ly/6zEaPxS

via LaurenSelfridge

When Chronic Pain Isn't 'Normal' Anymore But You Don't Realise... (The side profile a girl partially hidden amidst plants and flowers.)

"I thought it was just my #Sjögrens acting up again, because my #knees hurt almost every day anyway, and paid not much mind to it. I went out with a friend in the evening & even went for a walk up & downhill despite the pains.": buff.ly/oFsPrRV

#ChronicPain #KneeInjury #lupus

Cartoon split into two humorous departments. On the left, labeled “Moisture & Mucus Dept.”, a cactus and dry background set the scene. A character labeled “Team Spit” and a lab technician look stressed, trying to produce saliva. Signs say “Hydration is a memory” and “Out of saliva 503?”. On the right, labeled “Nerve Communication Dept.”, a chaotic control room features a distressed man in a “Long COVID” shirt. A nerve cell says, “Avve lost signal to the limbs… again!” while a chart titled “Autoimmune Confusion Map” links “Long COVID” to question marks. A spilled mug and flickering equipment add to the dysfunction. At the bottom: “LongCovidJourney.com

Could COVID be triggering autoimmune conditions like Sjögren’s?

Fatigue. Dry eyes. Brain fog. Dysautonomia. The overlap between Long COVID and Sjögren’s is raising questions.

longcovidjourney.com/2025/05/19/c...

#LongCOVID #Autoimmune #Sjögrens #MedTwitter #PatientAdvocacy #LongCovidAwareness

Cristina Montoya gets real about life with RA and Sjögren’s — and how she channels her experiences into helping others through advocacy and nutrition.
Also: important patient data breakdown with GHLF’s Erik Stone.
🎙️ Listen here: ghlf.org/the-health-a...
#ChronicIllness #Sjögrens #PatientVoice

A very very silly calico cat, coming up on her first birthday, stretching to full length like Gumby trying to clear hurdles while she sleeps in her daily blanket nest.

A new picture of Cheetara Anne having her blanket-nest time. Something to rest my mind on bc my body is wrung out by #Sjögrens misery. The steroids are finally kicking in, tg.

#calico #rescuecat #sleepykitty #catnaps #thundercats #catsofbluesky