2023: BPNA 21 replaced by the PANS/PANDAS Steering Group statement
2025: NHS acknowledges #PansPandasHour as clinically valid syndromes
2026: NICE works with the PANS GDG on UK guidelines.
#NoMoreLostChildren
@sharonbarbourbbc.bsky.social @jimreedbbc.bsky.social @debscohen.bsky.social
#APPG #Westminster 🗓️ 30th April #MPs please consider attending, guidelines are imminent and
children in your constituency need representation.
#NoMoreLostChildren #Pans #Pandas @teamlabouruk.bsky.social @conservatives.bsky.social @sdlp.bsky.social @sdlpwomen.bsky.social @uuponline.bsky.social
#ChildHealth #MedicalNotPsychiatric #BrainOnFire #ChildRights
Imagine your child disappearing before your eyes, you can see it but some medics don't even recognise it. #NoMoreLostChildren
panspandasuk.org/real-life-st...
#EDAW2025 #RestrictedEating or food aversion is a major symptom of #ImmuneMediated #Pans #Pandas #Inflammation triggered by infections viruses such as #strep #covid #mycoplasma #flu could be responsible. Children may find these symptoms difficult to articulate so #BeMyVoice #NoMoreLostChildren
Definitely resonates with #WomensHealth 🙂 but also resonates with #PansPandasHour #ChildHealth #NoMoreLostChildren
#ChildrensMentalHealthWeek #CMHW2025
#NoMoreLostChildren
#Teachers are very likely to notice a sudden regression in skills in a student, severe change in #handwriting, extreme behaviour change or even tics or movements that were not present in a child previously. Impressive article 👏
#Pans #Pandas
An amazing blog on #Pans make sure you know the symptoms of #PansPandasHour #MyChildHasChanged #NoMoreLostChildren
graycoloredglasses.com/2024/10/02/t...
It truly is the most harrowing experience to witness this abrupt and severe behaviour change in your child that you know so well. So severe that epilepsy was investigated,anticonvulsant meds were getting ready for dispatch, MRI, EEGs. Then change of mind, then camhs 😳 #NoMoreLostChildren #infection
#Teachers #Paediatrics #Immunology #Neurology #Psychology #Psychiatry #NoMoreLostChildren #ChildHealth #ChildRights #MaladieDePandas
"She can no longer walk, she develops #OCD, suffers from #hallucinations, nocturnal #enuresis, #tremors & involuntary arm movements called #chorea. This is the trigger", confides Géraldine Delay. "A hell" that led to the identification of the disease." #StrepA #Chickenpox #Covid #NoMoreLostChildren
Amazing news, well done Nicole. #Pans #Pandas #Italia #NoMoreLostChildren #PiccoleViteSospese
www.parmatoday.it/attualita/ni...
Welcome to Bluesky!! I am so happy to see 😍 @panspandasuk.bsky.social here, an amazing #charity supporting #children & #families affected by the devastating symptoms #Pans #Pandas Please follow this charity on Bluesky and help them raise awareness. #ChangeIsComing #NoMoreLostChildren
#MPs #HouseOfLords #Westminster #NoMoreLostChildren #ChildHealth #BehaviourChange #PiccoleViteSospese #OCD #Tics #SeparationAnxiety #HandwritingRegression #Regression #Urinary #IntrusiveThoughts #Rage #Arfid #Immunology #ENT #BrainOnFire #NHS #HSE #Psychiatry #Psychology #Neurology #Paediatrics
If you are a #parent you will immediately recognise an abrupt change in your child. That natural gut instinct kicks in and boy is it a powerful tool that is usually never wrong. Get that 2nd medical opinion if need be. We did, we still are haunted by our journey. #Pans #Pandas #NoMoreLostChildren
9th October #PansPandasAwarenessDay #JoinUs
#NoMoreLostChildren
#Misdiagnosis
#ImmuneMediated
#BrainOnFire
#Inflammation
9th October is #PansPandasAwarenessDay all across the world we will unite and advocate for all children. Always. #NoMoreLostChildren #NonCreduti #PiccoleViteSospese #Autoimmune #InflamedBrain
#Pans #Pandas #PiccoleViteSospese #EarlyYears #BehaviourChange #NoMoreLostChildren #YouthMentalHealth #psychiatry #psychology #paediatrics #immunology #EducationalPsychology 9thOctober2024 PansPandas Awareness Day. Could it be #Pans #Pandas
#PansPandasHour an hour of awareness. Our children need a voice, an advocate. They don't need a misdiagnosis.#Pans #Pandas #NoMoreLostChildren #PiccoleViteSospese
Exactly this 👇👇 #PansPandasHour
Tonight 8pm (Thursdays )we will try raise awareness as much as we can.
#PANS #PANDAS
#NoMoreLostChildren #PiccoleViteSospese
😥🤯🧠🦠⚡
Do you know a #child who changed abruptly after an illness? #behaviour #anxiety #OCD #Tics #rage #meltdowns #regression #strep #covid #lyme #InvoluntaryMovements #Jerks #chickenpox #mycoplasma #Parenting #GutInstinct #NoMoreLostChildren #BasalGanglia #Inflammation #ImmuneMediated #Research
Countdown to 9th October 2024.
#PansPandasAwarenessDay #LightUp4Pans
#NoMoreLostChildren
#WorldPansPandasAwarenessDay Can we get a landmark in #Ireland or #UK ?
105 landmarks 🥰worldwide lighting up 💚 green or ❤️ red for #Pans #Pandas awareness. Our children are too important to be misdiagnosed.
If a child changes abruptly in behaviour/unusual symptoms after an illness & these new symptoms cannot be better explained by a medical condition, please consider #pans #pandas #tics #OCD #restrictedeating #rage #anxiety #dilatedpupils #involuntarymovements #immune #inflammation #NoMoreLostChildren
