The Parkinsons UK Tech Guide is a guide of independently reviewed devices and apps that could improve the quality of life of Parkinsons sufferers
techguide.parkinsons.org.uk
#Parkinsons #ParkinsonsUK #PDCommunity
#Parkinsons #ParkinsonsUK #PDCommunity
A poem I wrote this morning!
A Poem about #Parkinsons
#michaelfox #yopd #pdcommunity @parkinsondotorg.bsky.social @parkinsonseurope.bsky.social #poetry #bluesky
Two new accounts to be aware of on here:
- @cureparkinsons.org.uk
- @rcnneuro.bsky.social
I've added both to my #PDcommunity list, which you can pin for easy access --> bsky.app/profile/did:...
#Parkinsons #YOPD
AKA #PDcommunity 😉
New post: #Parkinsons, a preemptive 2025 'Wrapped', and attempting to find balance
Some day one thoughts on the year ahead and adding up the things I hope will start to count.
#YOPD #PDcommunity
newsletter.iainliddle.com/p/parkinsons...
Final presents wrapped, takeaway curry devoured and The Office Christmas specials on.
Merry Christmas, Happy Holidays and all other festive greetings to the #PDcommunity. Wishing everyone as happy, stress-free and easy a time as as possible.
#YOPD #Parkinsons
Back on Bluesky after a couple of weeks away traveling, working, house renovating and Christmas prepping.
Plus, everything seemingly moves a little slower on these cold winter mornings when you have #Parkinsons.
Hope everyone is well. #PDcommunity
Elderly patient left unable to swallow after 52-hour A&E wait #ParkinsonsDisease #PDCommunity
Finally got round to trying the #MoversAndShakers podcast - worth a listen! #PDCommunity
Dr Laurie Mischley is the only one I know who is actively researching prevention and communicating about it to the #Parkinsons #PDcommunity. Who else is doing this? There must be others.
Was hoping to get a thread going here, but no bites yet. Trying again. Anybody have ideas for gifts for people with #Parkinsonsdisease?
#Parkinsons #PDCommunity
Oh goody good -it's getting cold 🥰🥰🥰🏊♀️🏊♀️🏊♀️
#pdcommunity #swimwithparkinsons
Has anyone here had experience with Vyalev, the new #parkinsons pump? #yopd #pdcommunity
@iainliddle.com put together a #pdcommunity feed that works well
In that spirit, here is my regularly updated list of accounts from the #PDcommunity, people and organisations relevant to #Parkinsons and #YOPD.
Follow and pin it to see a regular stream of real-time updates and human perspectives.
Hope this thread is helpful.
🧵 (8/8)
bsky.app/profile/did:...
How overwhelming it would be to smell things again. I haven’t had any sense of smell since around 2002. I think smelling things now would knock me over. #pdcommunity #yopd
Check out this video #pdcommunity and consider submitting a video of your own to @davidsangster.bsky.social for this project to elevate our voices as people with #parkinsons He does such amazing work I am so excited to see the outcome #yopd #disability
Some thoughts from the departure lounge at Heathrow Airport, but sent from the sky.
New post: #Parkinsons, #Packers, people and purpose.
Read and subscribe here, if you like: newsletter.iainliddle.com/p/parkinsons...
#PDcommunity #YOPD
#pdcommunity check out this project and consider contributing your video! Your voice needs to be amplified #parkinsons #yopd #disability @davidsangster.bsky.social
This is especially true if you have #parkinsons as it puts us at greater risk for melanoma. Getting a skin check is pretty easy in my experience #pdcommunity #yopd