Patient Engagement codes of conduct and rules of engagement webinar on March 31. Image features people sitting around a table having a discussion

Join us for a virtual Patient Engagement Open Forum (PEOF) event as we explore the key rules of engagement for pharma-patient interactions.

Register and access other patient engagement content: buff.ly/cIcTEWZ

#PatientEngagement #PFMD #Compliance

Patient engagement works when it’s specific, sustained, and built into decisions.

At #PEOF2025, Marc Barone explains why generic participation falls short and why involving people living with the condition is essential for impact.

Watch here

#PFMD #PatientEngagement #PEOF2025

“None of us wants to feel alone in our struggle to have the patient voice count.”
Lode DeWulf reflects on how PFMD has grown as a community creating a home where researchers, patients & partners work together to make engagement real.
Watch him speak at #PEOF2025.
#PFMD #PatientEngagement #Community

At PFMD’s PEOF session with the EMA, Nikul Bakshi (Parkinson’s UK) articulated a shift many systems are now grappling with: patient experience data needs to be integrated from the very start of the regulatory journey — not added at the end.

#PFMD #PatientExperienceData #EMA

One patient story. One room that listened. One national policy changed.

Watch how Robert Joyce helped shift the system — simply by speaking up.

#PFMD #MadeWithPatients #PEOF2025

Action is needed to implement World Health Assembly social participation resolution At the 77th World Health Assembly in 2024 governments made a unanimous and unprecedented commitment to put patients, people and communities with lived experience, and healthcare workers at the heart o...

Patients at the center = stronger health systems. Evidence, trust & impact improve when participation is structural. The BMJ publication shows us how.
tinyurl.com/y2spdfds

#WorldAIDSDay #PatientEngagement #PFMD

At #PEOF2025, BMJ’s Emma Doble shared how patients are shaping research. As reviewers, authors & partners, they are redefining what credible science looks like: evidence built with empathy.

Watch her speak:

#PFMD #MwP

One patient story. One room that listened. One national policy changed.
Watch how Robert Joyce helped shift the system — simply by speaking up.

#PFMD #MadeWithPatients #PEOF2025
#PolicyChange

What EMA’s Patient Experience Data consultation signals — and what What EMA’s Patient Experience Data consultation signals — and what

Patient experience data has matured. The question is now is how we embed it into policy, research, and regulation.
Read Hayley’s reflection on what this new era of patient-centred evidence means:
tinyurl.com/mve829nu

#PFMD #PatientEngagement #EMA

Join us for a virtual session and discover the GUIDE.MRD project and its vision for the future of cancer care.

Come ready to engage with the project's experts & learn more about innovative diagnostics!

👉Register now: tinyurl.com/46x3cnyd

#PFMD #GuideMRD #EarlyCancerDetection #LiquidBiopsy

Turning patient experience into evidence is no longer a vision; it’s happening now!

Learn how your organisation can lead this shift with 7 takeaways on advancing Patient Experience Data (PED).

Read more: tinyurl.com/mtwsbse5

#PatientEngagement #HealthData #PFMD

Patient Experience Data can transform healthcare decisions. While EMA’s Reflection Paper opens the door, PFMD’s 10 years of co-created tools & guidance provide the blueprint. A PEOF session will soon explore the consultation. Stay tuned!
#PFMD #PatientEngagement #EMA #HealthPolicy

Promotional Banners - Lunch & Learn - Rules of Engagement (II)

Our Lunch & Learn: Rules of Engagement II on Oct 28, 13:30–14:30 CET will explore real examples, key rules, and how PFMD Country Guidelines support your work. Submit your questions in advance to info@peopenforum.org

Register now! patientengagement.synapseconnect.org/events/lunch...

#PEOF #PFMD

A path to better include patients’ perspectives in the regulation of medicines

Over the past decade, the PE community has helped turn patient engagement from isolated pilots into a shared global practice. Now, the EMA’s Reflection Paper marks a defining moment, validating this collective progress.

Let’s make this count. tinyurl.com/5n86p3rw

#PFMD #EMA #PatientExperienceData

A path to better include patients’ perspectives in the regulation of medicines | European Medicines Agency (EMA) Reflection paper on patient experience data for public consultation until 31 January 2026

Patient experience data are now stepping into policy. We welcome the EMA’s Reflection Paper on Patient Experience Data and invite the community to contribute & shape how patient insights guide healthcare decisions.

Learn more about the paper - tinyurl.com/5n86p3rw

#PFMD #PE #HealthPolicy #EMA

A muppet of Chauncey Badminton with a pistol in moonlight with forest behind him

A muppet of Nigel Badminton with a sword through his right eye, uniform covered in blood, flipping off the viewer.

Speaking of mups, sorting through some photos for con-related reasons, and still not over the fact that this is literally the same muppet but looks like two very different people by dint of slightly adjusted eyes/eyebrows. Oh, yes, and you had hair then.
#pfmd #ourflagmeansmuppets

🤝At the Made With Patients Awards, we celebrated quiet revolutions—work rooted in empathy and shaping care with patients at its heart. From community clinics to global spaces, these stories inspire.

▶️Full recording in comments. More to build, together.

#BetterTogether #MadeWithPatients #PFMD

Cathy Creswell's ChAAMPS Study selected as a finalist for the 2025 Made With Patients Awards This recognition celebrates the meaningful co-production approach that shaped the development of an anxiety intervention for autistic children and their families.

Congratulations to Professor Cathy Creswell and team on this well-deserved recognition! 👏

@cathycreswell.bsky.social @oxfordpsychiatry.bsky.social @oxhealthbrc.bsky.social
#MadeWithPatientsAwards #PFMD #PatientEngagement #AutismResearch

www.psy.ox.ac.uk/news/childho...