𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰? Raising #PNHAwareness can lead to earlier diagnosis, better care, and stronger patient communities. In Denmark, where Susan Thorpe lives, patients have access to a wide range of treatments, including newer therapies once only available compassionately. #PNHAwareness2025 #PNHVoices

Managing PNH often takes a mix of treatments. Transfusions ease symptoms, supplements support blood cell production, and anticoagulants help prevent clots. Complement inhibitors protect cells, but access is limited. Global awareness and advocacy are still urgently needed.
#PNHAwareness #PNHSupport

Let’s talk symptoms.
PNH is rare, but its symptoms are very real and often misdiagnosed. Fatigue, dark urine, pain, or clots could be overlooked.
Patients & HCPs: If signs don’t add up, ask: could it be PNH?
#PNHAwareness #PNHSupport

🌍🗣️ On #InternationalMotherLanguageDay, we celebrate the power of language in connecting and empowering the #PNH community. Sharing info & support in your own language brings comfort & understanding. Let’s advocate for multilingual care! ❤️ #PNHAwareness #LanguageInclusivity

On #WorldCancerDay, we stood with everyone affected by cancer. 🎗️ Did you know PNH is linked to bone marrow disorders that may increase bone cancer risk, like AML? Early detection is key! PNH Global Alliance advocates for regular screenings & care. 🩸 #PNHAwareness #BoneMarrowHealth