🔍 𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰?
The PNH Global Alliance has interactive maps to find specialists & support groups worldwide. 🌍 You don’t have to face it alone.
#PNHAwareness2025 #PNHVoices #DidYouKnow
🔍 Wussten Sie schon?
Die PNH Global Alliance verfügt über interaktive Karten, mit denen Sie weltweit Spezialisten und Selbsthilfegruppen finden können. 🌍
Sie müssen sich dieser Herausforderung nicht alleine stellen.
#PNHAwareness2025 #PNHVoices #DidYouKnow
𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰? The PNH Global Alliance is working together for the benefit of all PNH patients.
#PNHAwareness2025 #DidYouKnow #PNHVoices #LivingWithPNH
𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰? Raising #PNHAwareness can lead to earlier diagnosis, better care, and stronger patient communities. In Denmark, where Susan Thorpe lives, patients have access to a wide range of treatments, including newer therapies once only available compassionately. #PNHAwareness2025 #PNHVoices
Wussten Sie schon? PNH ist selten, komplex und wird oft missverstanden.
Dieses kurze Video erklärt, was es ist und warum Aufklärung wichtig ist.
Lassen Sie uns das Wort verbreiten.
#PNHAwareness2025 #WusstenSieSchon #PNHVoices #WusstenSieSchon
Did you know? PNH is rare, complex, and often misunderstood.
This quick video explains what it is + why awareness matters.
Let’s spread the word.
www.facebook.com/reel/1231649...
#PNHAwareness2025 #DidYouKnow #PNHVoices #DidYouKnow
𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰? PNH is rare, complex, and often misunderstood.
This quick video explains what it is + why awareness matters.
Let’s spread the word.
#PNHAwareness2025 #DidYouKnow #PNHVoices #DidYouKnow
Did you know PNH is ultra-rare, but its symptoms are very real? Fatigue, dark urine, pain & difficulty swallowing can affect those living with it. Often misdiagnosed, improved awareness is key for timely treatment.
#PNHAwareness2025 #DidYouKnow #PNHVoices #LivingWithPNH