𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰? The PNH Global Alliance is working together for the benefit of all PNH patients.

#PNHAwareness2025 #DidYouKnow #PNHVoices #LivingWithPNH

𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰 Eculizumab is the only treatment for PNH currently licensed during pregnancy🤰? Research is exploring ravulizumab as another potential option. 🧪

#PNHAwareness2025 #LivingWithPNH #PregnancyCare #PatientSupport #PNHResearch #DidYouKnow

Did you know PNH is ultra-rare, but its symptoms are very real? Fatigue, dark urine, pain & difficulty swallowing can affect those living with it. Often misdiagnosed, improved awareness is key for timely treatment.

#PNHAwareness2025 #DidYouKnow #PNHVoices #LivingWithPNH

You’re not alone with PNH. Support groups offer connection, hope, and strength for patients and caregivers. Find yours today: pnhglobalalliance.org/resources/gl... 💜
#PNHSupport #PNHCommunity #LivingWithPNH #SupportGroups

PNH specialists are key to better health outcomes. 👩‍⚕️ Find the right care with our interactive map to connect with specialists near you! 🗺️

Access this valuable resource here: pnhglobalalliance.org/resources/ex...

#PNHSpecialists #PNHSupport #LivingWithPNH

Living with PNH? Small changes can make a big difference!

Self-care tips for better well-being:
🔋 Manage fatigue with a balanced routine
🍎💧 Eat well & stay hydrated
🏃‍♀️ Exercise gently
💉 Stick to your treatment plan
🧘‍♀️ Reduce stress

Prioritize your health! #PNH #LivingWithPNH