#PNHResearch hashtag - Bluesky

@aaundpnhev.bsky.social

5 months ago

IPIG validiert derzeit den Fragebogen zur Lebensqualität QLQ AA/PNH-54, den ersten krankheitsspezifischen PROM für PNH und aplastische Anämie. Achten Sie darauf, falls Sie zur Teilnahme eingeladen werden.
#PNH #PatientReportedOutcome #PROM #PNHResearch

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PNH Global Alliance

@pnhglobalalliance.bsky.social

5 months ago

𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰? IPIG is validating the QLQ AA/PNH-54 quality of life questionnaire, the first disease-specific PROM for PNH & Aplastic Anemia. Watch out in case you are invited to take part.

#PNH #PatientReportedOutcome #PROM #PNHResearch

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@pnhsupport.bsky.social

5 months ago

IPIG is validating the QLQ AA/PNH-54 quality of life questionnaire, the first disease-specific PROM for PNH & Aplastic Anemia. Watch out in case you are invited to take part.
#PNH #PatientReportedOutcome #PROM #PNHResearch #PNHAwareness2025 #DidYouKnow

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PNH Global Alliance

@pnhglobalalliance.bsky.social

6 months ago

𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰 Eculizumab is the only treatment for PNH currently licensed during pregnancy🤰? Research is exploring ravulizumab as another potential option. 🧪

#PNHAwareness2025 #LivingWithPNH #PregnancyCare #PatientSupport #PNHResearch #DidYouKnow

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