#PatientReportedOutcome hashtag - Bluesky

@epilepsia-open.bsky.social

4 months ago

This review provides a practical approach to assessing and selecting PROMs, and discusses how they may be incorporated into clinic workflows.
doi.org/10.1002/epi4...

#epilepsy #ILAE #epilepsiaopen #mooddisorders #patientreportedoutcome #qualityoflife #seizure

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Aplastische Anämie & PNH e.V.

@aaundpnhev.bsky.social

5 months ago

IPIG validiert derzeit den Fragebogen zur Lebensqualität QLQ AA/PNH-54, den ersten krankheitsspezifischen PROM für PNH und aplastische Anämie. Achten Sie darauf, falls Sie zur Teilnahme eingeladen werden.
#PNH #PatientReportedOutcome #PROM #PNHResearch

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PNH Global Alliance

@pnhglobalalliance.bsky.social

5 months ago

𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰? IPIG is validating the QLQ AA/PNH-54 quality of life questionnaire, the first disease-specific PROM for PNH & Aplastic Anemia. Watch out in case you are invited to take part.

#PNH #PatientReportedOutcome #PROM #PNHResearch

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@pnhsupport.bsky.social

5 months ago

IPIG is validating the QLQ AA/PNH-54 quality of life questionnaire, the first disease-specific PROM for PNH & Aplastic Anemia. Watch out in case you are invited to take part.
#PNH #PatientReportedOutcome #PROM #PNHResearch #PNHAwareness2025 #DidYouKnow

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