🩵PPA awareness day April 10th 2026 with @annavolkmer.bsky.social and @rosemary-townsend.bsky.social
💙This years focus is on diagnosis and post-diagnostic support for people affected by PPA
🤍Head over to @ppaphasiaawareness.bsky.social for more info!
#ppaawareness #primaryprogressiveaphasia
❄️ London Winter Walk 2026 • Thanks to everyone’s donations, we have managed to raise an incredible £10,759 towards our #primaryprogressiveaphasia #langaugeleddementia services • A massive thank you to all those who took part and donated! 🧡
❄️ Fundraising Update!
🥾 Next weekend Team Dyscover will be walking a total of 111 miles along the Thames with @UltraChallenges to raise funds for our unique #primaryprogressiveaphasia #languageleddementia service.
☃️Head over to our Instagram to find out more!
Our 2025 group photo. Big smiles, big plans for the year ahead.
#frontotemporaldementia #primaryprogressiveaphasia #ftd #ftld #ppa #endFTD
@brainandmindcentre.bsky.social
@sydney.edu.au
🌟 Proud moment for our students!
During placement, #students teamed up with people living with #dementia & #primaryprogressiveaphasia to co-design this resource for #DementiaAwarenessMonth:
🔗 lnkd.in/gCgq4nXU
Share to spark conversation, raise #awareness, & amplify voices with #livedexperience! 💛
Super trip to Polesden Lacey @nationaltrust.bsky.social with @dyscoveraphasia.bsky.social supporting people with #PrimaryProgressiveAphasia to chat, meet others, learn & enjoy. A preview of the lunch menu to read at home, simplified info, and a trained guide made all the difference
https://www.speechpathologyaustralia.org.au/EventDetail?EventKey=25PEV2&fbclid=IwY2xjawMbNNJleHRuA2FlbQIxMABicmlkETFNZG0wZGRxazhmSThsVEdIAR54NiPQB5YxM-EeKjrmi3BvefiiEJpvRiS7F1bYc2YRH4jY0OFX9i3qM9c1-Q_aem_RBbxpUy9e2Im0c7AM9g3sw
Are you living with or supporting someone with #primaryprogressiveaphasia?
Join leading neuroscientists and speech pathologists on 25th September for a FREE webinar exploring the latest research on PPA and how speech pathology can make a difference.
@ppaphasiaawareness.bsky.social
My dad can’t talk. He has PPA, a form of dementia.
He’s been crying for an hour. I wish I could console him but nothing I’ve done has helped. He will likely cry himself to sleep. I hope tomorrow is a better day for him.
#dementia #primaryprogressiveaphasia #ppa #aphasia
A conference poster entitled "Living with primary progressive aphasia - A co-designed questionnaire".
What a great first day at the Nordic Aphasia Conference #NAC2025 in Uppsala!
I presented our poster on co-designing a questionnaire about living with #PPA together with @monicanor.bsky.social @ingvildw.bsky.social et al.
#Aphasia #primaryprogressiveaphasia
This week’s SpeakUp Podcast from Speech Pathology Australia features a powerful episode on #PrimaryProgressiveAphasia and the role of speech pathology.
Wonderful to hear our very own Dr Penny Monroe and her client, Scott, share their journey. Listen here on.soundcloud.com/wzRAUDB4kFfC...
#PPAawareness day is here! 🙌🏻 motivated,inspired & shaped by people living with #PrimaryProgressiveAphasia & driven by a community of international #SLT #SLP s who believe in better access to therapy support & resources. Huge thx to the amazing @annavolkmer@bsky.social & @dyscoveraphasia
The wonderful Dr Anna Volkmer and many other wonderful #SLPeeps have slayed here with this second edition on #PrimaryProgressiveAphasia #PPA and other communication difficulties in #dementia and progressive diseases. @jandrpress.bsky.social
Caught Dad & Mom in a tender moment this Thanksgiving. She has been struggling with moderate severity dementia, so it's a bit bittersweet this year.
#primaryprogressiveaphasia
#dementia
My spouse was diagnosed with #primaryprogressiveaphasia and #Alzheimer’s, a double whammy I am recording on YouTube videos. Here is #1: youtu.be/auXxtDNnUGw
I just learned that our "Rehabilitation Services for Young-Onset Dementia" paper is cited in the #Wikipedia pages about:
- #PosteriorCorticalAtrophy
- #Frontotemporaldementia
- #Primaryprogressiveaphasia
- #Earlyonsetdementia
https://ucl.altmetric.com/details/164831213/wikipedia
Conference poster withe the title: Assessment of cognition and language in neuro-degenerative language impairments in the Nordic countries.
Did a science thing again, and it felt good! #PPA #primaryprogressiveaphasia #SoA2024 thank you, Genève!
Thank you @RosemaryTowns15 for a fantastic virtual visit to the #PPA therapeutic service offered by @dyscoveraphasia.
@dyscoveraphasia accepts referrals from any location & also offers telehealth services.
Learn more 👉 https://tinyurl.com/tjm4s5ar
#Primaryprogressiveaphasia
Registered & ready!
Heading to @UniofReading this year eager to listen to keynote speakers @sophiescott & @sudha_md and to identify more collaborators for a new project on #PrimaryProgressiveAphasia
#AcademyofAphasia2023
🇬🇧 🇫🇷 🇪🇸
#PrimaryProgressiveAphasia
This is one of the most accessible, educative, practical & useful papers in #PrimaryProgressiveAphasia I've found in a long time. A must-read for everyone involved in supporting people living with #PPA (both professionals and families)....