🚨 Big news: Cure HSPB8 has received new 2025 funding from @volofoundation.bsky.social!

This support helps us expand research, grow our patient registry, and drive awareness for #HSPB8Myopathy. Grateful for partners who believe in science & impact! 💙

#CureHSPB8 #RareDiseasen #PatientAdvocacy