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NIH RECOVER TLC clinical trials for Long COVID. - Massachusetts ME/CFS & FM

MassME is proud to sign on to this letter encouraging subgroup tracking and analysis in the NIH RECOVER TLC clinical trials for Long COVID.
massmecfs.org/advocacy/nat...

#massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity

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Sharing a link to our @RemissionBiome protocol info page for anyone who is new here or is not familiar with the project. 

🔗  https://www.remissionbiome.org/about/protocol-overview #RenegadeResearch #Renegade50

Sharing a link to our @RemissionBiome protocol info page for anyone who is new here or is not familiar with the project. 🔗 https://www.remissionbiome.org/about/protocol-overview #RenegadeResearch #Renegade50

@RemissionBiome is a project by Renegade Research - white logo on black background

@RemissionBiome is a project by Renegade Research - white logo on black background

Sharing a link to our @RemissionBiome protocol info page for anyone who is new here, or is not familiar with the project.

🔗 www.remissionbiome.org/about/protoc... #RenegadeResearch #Renegade50

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Renegade Research logo white on black background

Renegade Research logo white on black background

2/ Enter code "Falor25" at prodrome.com to receive 25% off!

This post contains affiliate links. When you place an order using our discount code, #RenegadeResearch earns a small commission at no extra cost to you. This helps our non-profit organization operate. Thank you!

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Renegade Research logo - white on black background

Renegade Research logo - white on black background

✅️ Weekends are a great time to catch up on #Clinician and #Research Roundtables!

🔗 Check out the past recordings on our Renegade Research YouTube channel at www.youtube.com/@renegaderes... ... #RenegadeResearch

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Renegade Research (@renegaderesearch.bsky.social) ▶️ Hear what Dr. Peter Rowe says regarding the use of stimulants in orthostatic intolerance! Watch this clip from our Renegade Research #Clinician Roundtable. 🔗…

Check out our #Clinician's Roundtable on the use of stimulants in #orthostatic #intolerance with Dr. Peter Rowe!

bsky.app/profile/rene...

#RenegadeResearch @renegaderesearch.bsky.social @RenegadeRes

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Renegade Research logo - white on black background

Renegade Research logo - white on black background

✅️ Weekends are a great time to catch up on #Clinician and #Research Roundtables!

🔗 Check out the past recordings on our Renegade Research YouTube channel at www.youtube.com/@renegaderes... ... #RenegadeResearch

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People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome May Have an "Exhausted" Immune System A long-awaited study of people with ME/CFS revealed differences in their immune and nervous system. The findings may offer clues about long COVID

People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome May Have an "Exhausted" #Immune System | Scientific American
www.scientificamerican.com/article/peop... ... #MECFS #RenegadeResearch

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ME/CFS Incidence Is Higher Following COVID-19 NEJM Journal Watch reviews over 150 scientific and medical journals to present important clinical research findings and insightful commentary

ME/CFS Incidence Is Higher Following #COVID19

"This study highlights the clinical similarity between #MECFS and #longCOVID — the two illnesses also share many underlying biological abnormalities."

www.jwatch.org/na58371/2025... #RenegadeResearch

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Accelerate research and care for ME/CFS & Long COVID Renegade Research (RR) is a non-profit, 501c3 decentralized organization pioneering patient and caregiver-led research with a focus on ME/CFS, Long COVID (LC) and other infection associated chronic…

#RenegadeResearch is a women led 501(c)(3) NPO. We're interested in collaborating on future projects. Meanwhile, donations of any size helps move our current projects to the next stage. Thank you for your support!

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Today's Deals There's a problem loading your cart right now.

Next time you shop on Amazon, click on our link at amzn.to/3DKgOaX to help support #RenegadeResearch.

This post contains affiliate links. When you place an order using our code, RR earns a small commission at "no extra cost to you". This helps our non-profit organization operate.

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David Esteban crowdfunding thank you
David Esteban crowdfunding thank you

David Esteban crowdfunding thank you [video]

youtube.com/shorts/Srb8e...

#RenegadeResearch

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Renegade Research Decentralized patient-led research and clinical education. Focused on ME/CFS, Long Covid, and co-morbidities.

✅️ Weekends are a great time to catch up on #Clinician and #Research Roundtables!

🔗 Check out the past recordings on our Renegade Research YouTube channel at www.youtube.com/@renegaderes... ... #RenegadeResearch

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Blue ribbon on light blue background... Today is the last day of #MECFSawarenessmonth 💙

✅️  Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!

https://www.zeffy.com/en-US/fundraising/9888892c-f8dc-4dca-b1c2-3603f6f3c755 ... #MECFS #RenegadeResearch

Blue ribbon on light blue background... Today is the last day of #MECFSawarenessmonth 💙 ✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe! https://www.zeffy.com/en-US/fundraising/9888892c-f8dc-4dca-b1c2-3603f6f3c755 ... #MECFS #RenegadeResearch

Today is the last day of #MECFSawarenessmonth 💙

✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!

www.zeffy.com/en-US/fundra... ... #MECFS #RenegadeResearch

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Just 15 minutes in.... very good. So amazing to see such an intelligent discussion of our complex states, research, practical clinical approach.

#MECFS
#LongCovid
#IACC
#RenegadeResearch
#MedSky

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Possibly unifying for POTS/ other Orthostatic Intolerance & dysautonomia, Fibromyalgia (FM/FMS), ME/CFS, migraine, brain fog, Irritable Bowel Syndrome (IBS), vulvodynia, ADHD, Interstitial Cystitis (IC), anxiety, more? Bad Veins. Watch video^^ for the evidence. #RenegadeResearch

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Now available on YouTube! Excellent presentation and electric Q&A⚡️

April 11th Renegade Research Clinician's Roundtable with Steve Smith, MD - Orthostatic Flow Syndromes

▶️ youtu.be/Km06OwcCXq4?... ... #RenegadeResearch

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Sage Journals: Discover world-class research Subscription and open access journals from Sage, the world's leading independent academic publisher.

More prep for Clinician's Roundtable on Orthostatic Flow Syndromes w SJ Smith, MD, IVR on 4/11. #vascularsky #POTS
"Imaging findings of pelvic venous insufficiency in patients with postural orthostatic tachycardia syndrome" | August 2020 journals.sagepub.com/doi/10.1177/...
#RenegadeResearch

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Improvement in chronic pelvic pain, orthostatic intolerance and interstitial cystitis symptoms after treatment of pelvic vein insufficiency - PubMed Pelvic pain, interstitial cystitis, and dysautonomia were frequently found with VO-CPP and improved after venous treatment. EDS/HSD and IBS were common in these women.

Dr. Smith's published studies include

"Improvement in chronic pelvic pain, orthostatic intolerance and interstitial cystitis symptoms after treatment of pelvic vein insufficiency" | August 2024 in Phlebology: The Journal of Venous Disease
pubmed.ncbi.nlm.nih.gov/38050791/

#RenegadeResearch

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🥳🥳🥳 #RenegadeResearch is the coolest

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#LongCovidAwarenessDay #March15 #RenegadeResearch

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March 15 is #LongCovidAwarenessDay

Everything you don't want to know about #COVID:

COVID is #airborne.
It's not "mild."
Infection damage is cumulative.
It makes you more susceptible to other infections and diseases.
There is no cure for #longCOVID.
The #pandemic is not over.
Wearing a #mask reduces transmission.

Source: whn.global 

#CovidIsNotOver #MaskUp #LongCovidAwarenessDay2025 #LC #SARSCoV2 #RenegadeResearch

March 15 is #LongCovidAwarenessDay Everything you don't want to know about #COVID: COVID is #airborne. It's not "mild." Infection damage is cumulative. It makes you more susceptible to other infections and diseases. There is no cure for #longCOVID. The #pandemic is not over. Wearing a #mask reduces transmission. Source: whn.global #CovidIsNotOver #MaskUp #LongCovidAwarenessDay2025 #LC #SARSCoV2 #RenegadeResearch

March 15 is #LongCovidAwarenessDay

Everything you don't want to know about #COVID

Source: whn.global

#CovidIsNotOver #MaskUp #LongCovidAwarenessDay2025 #LC #SARSCoV2 #RenegadeResearch

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#LongCovidAwarenessDay is tomorrow on #March15. If you or someone you know is battling #longCOVID visit our website at RenegadeResearch.co for information and resources!

#LC #LongCovidAwarenessDay2025 #LongCovidAwareness

#LongCovidAwarenessDay is tomorrow on #March15. If you or someone you know is battling #longCOVID visit our website at RenegadeResearch.co for information and resources! #LC #LongCovidAwarenessDay2025 #LongCovidAwareness

#LongCovidAwarenessDay is tomorrow on #March15. If you or someone you know is battling #longCOVID visit our website at RenegadeResearch.co for information and resources!

#LC #LongCovidAwarenessDay2025 #LongCovidAwareness #RenegadeResearch

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Imagine scientist-patients getting together for a week to run an experiment. Gathering tons of data and biological samples.

It's happening. My house. April or May 2025.

@RenegadeRes #RenegadeResearch

#InnovationInn #ResearchRetreat
🔬🏡

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The waves of scientists from all disciplines joining our chronic illness ranks has also greatly expanded self-experimentation and explanations.

As an example, #TheNicotineTest and #RenegadeResearch has been so awesome to be a part of!

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#ChronicIllness #RenegadeResearch #LongCOVID #ChronicFatigueSyndrome #MyalgicEncephalomyelitis

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Selfie of Tamara, Tanya, Isabel, and Tess. They are wearing face masks and smiling at the camera. Their joy-filled eyes are shining with warmth and determination. Pasted near the bottom of the photo is a Tweet by @tessfalor which reads: “Great meetings today! @remissionbiome @chydorina @Tromanuk1 @IsabelRamirezRD”

Selfie of Tamara, Tanya, Isabel, and Tess. They are wearing face masks and smiling at the camera. Their joy-filled eyes are shining with warmth and determination. Pasted near the bottom of the photo is a Tweet by @tessfalor which reads: “Great meetings today! @remissionbiome @chydorina @Tromanuk1 @IsabelRamirezRD”

Bright lights in a dark world.

I ❤️ these people.

#RemissionBiome
#RenegadeResearch #MECFS #LongCovid #MEScience #Salugenesis #WomenInSTEM #MedSky

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