🎄 #MusicalAdventCalendar 🎄
From Dec 1–24 I’m unwrapping one #Christmas song per year, 2001–2024
Day2️⃣0️⃣ & #NowPlaying Norwegian singer #Ulrikke ft #BenAdams (from #A1) and their 2020 single #SpendChristmasWithMe
youtu.be/2MVMuXdIKVw?...
Sending my love this Xmas to everyone with #MECFS and #LongCovid, especially those spending the day alone at home or in bed ❤️
I leave you with a gift of hope. Just know, even if you are spending Xmas alone, you are not forgotten and you are not alone 🫶🏼
#SpendChristmasWithME
Sending solidarity to everyone with a limiting illness. It's so hard if this week is quiet,& if it isn't. Being left out. Saying no when you'd love to say yes. Being asked to make an effort because it's Christmas when you've already overdone it. Good luck all!
#SpendChristmasWithME
#MECFS #LongCovid
My children watched Home Alone for the 1st time yesterday whilst I was in bed. I was sorry to miss it, but then they came upstairs and reenacted some of the scenes for me which was possibly even more fun!
#SpendChristmasWithME
A colour image. The author of the post is sitting on a hospital bed. The bed has been lifted to a sitting position. He is wearing a red turtle neck wool jumper, white pants and grey socks. He is signaling the peace sign with his left hand. He is looking at the camera and having a slight smile on his face. Behind him there are some objects on the next bed: electronics and cables and such.
As a severe #MECFS patient I don’t dress up often, as I’m always just in bed. But I’ve tried to do that if there’s a special occasion, like today! It sure feels nice to put on some proper clothes. So this is my outfit for today’s ”festivities”.
1/3
#SpendChristmasWithME #pwME
I have now shared one Christmas themed album every day until it’s Christmas. So today I want to share one more as the final one. Today’s album is:
Leevi and the Leavings - Varasteleva joulupukki / A Thieving Santa Claus (1990) (pop)
1/4
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Day #5 of #SpendChristmasWithME 🎄
Today's movie recommendations:
- The Nightmare Before Christmas 💀🎄
- Home Alone 🏠
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas Eve together from home 🫶🏼
#MECFS #LongCovid
The Holiday 🏠
Been a few years since I last saw this one. Forgot how much I liked it.
Snack of choice is Christmas Tree Cookies from Aldi. 🎄
Aldi only sell these cookies around Xmas but they are possibly one of my favourite biscuits. Highly recommend.
#SpendChristmasWithME
"If you look for it, I've got a sneaky feeling you'll find that love actually is all around".
Love actually ❤️
Watching from my bed tonight.
#SpendChristmasWithME
I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is:
Various Artists - Stax Christmas (2023) (funk, soul)
1/3
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Day #4 of #SpendChristmasWithME 🎄
Today's movie recommendations:
- Love Actually ❤️
- The Holiday 🏠
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas together from home 🫶🏼
#MECFS #LongCovid
I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is:
Jimmy Smith - Christmas Cookin’ (1964) (jazz)
1/4
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Yippee ki yay… well we all know how that phrase ends 😂
Die Hard is without a doubt one of my top 3 favourite Christmas movies! And I don’t care what anyone says, Die Hard IS a Christmas movie, and a fantastic one at that🎄💥
#SpendChristmasWithME
Watching How The Grinch Stole Christmas 💚
Rainy night in Melbourne calls for a hot chocolate ☕️ and some of the the gingerbread men that I did remember to put a timer on for when baking in the oven 😂
#SpendChristmasWithME
Note to self: Don’t forget to put a timer 🤦🏼♀️
At least it was only a small batch I guess. 🍪
#SpendChristmasWithME
Day #3 of #SpendChristmasWithME 🎄
Today's movie recommendations:
- Die Hard 🧨💥
- How The Grinch Stole Christmas 💚
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas together from home 🫶🏼
#MECFS #LongCovid
A black and white image. It’s a selfie made with the ultrawide lens of an iPhone. The author of the post is laying in bed. He has a sweatshirt on. He’s listening to music with wired headphones. He’s looking at the camera. He has a pillow on his stomach, and his other hand is resting on the pillow. On the right side of the image, on the bed next to his, you can see an iPad and a pillow. And the headphones wires are connected to a DAC/Amp. There’s some other stuff in the right corner of the photo, like glasses, a toy horn and some cables.
I’ll listen to and share one Christmas themed album every day until Christmas. Today I’m also sharing a photo of me, as a bonus, listening to music, this is how it is for me!
1/3
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
I remember watching this every Christmas Eve growing up with the family.
A true Christmas classic 🚂💺🎄
#SpendChristmasWithME
Day #2 of #SpendChristmasWithME 🎄
Today's movie recommendations:
- The Polar Express 🚂💺🔔
- Elf 🧝🎅🏼
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas together from home 🫶🏼
#MECFS #LongCovid
I’ll listen to and share one Christmas themed album every day until Christmas. Today’s album is:
Kelly Finnigan - A Joyful Sound (2020) (soul, R&B, funk)
Kelly Finnigan’s, the frontman of Monophonics, Xmas album is very soulful.
1/3
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Tina Katsaros - a PhD student working on research funded by ME Research UK, has organised a festive online community event to bring together people with lived experience of ME/CFS and researchers in the field this Christmas. The event will take place from to the 20th - 25th of December, and use the social media hashtag "#SpendChristmasWithME" and there are several ways you can get involved: • Wear something festive - and post a photo if you wish. • Watch a seasonal film from the comfort of your own home: • 20th of December: The Santa Clause & Jingle all the way • 21st of December: The Polar Express & Elf • 22nd of December: Die Hard & How the Grinch Stole Christmas • 23rd of December: Love Actually & The Holiday • 24th of December: Nightmare before Christmas & Home Alone • Listen to your favourite Christmas song and share with the community what it is, and why you chose it. • If you are able, donate the cost of your favourite Christmas drink and snack to ME Research UK via PayPal. PayPal: @researchuk ME RESEARCH UK INFORM. INFLUENCE. INVEST.
#SpendChristmasWithME
#LongCovidIsReal
#CovidIsNotOver
#CovidSafeChristmas
Who else is a subtitle watcher? 👀
I refuse to watch things at home without them, although I know this is definitely a controversial opinion. 😬
Enjoying Movie #2 tonight: The Santa Clause 🎅🏼
#SpendChristmasWithME
Watching Jingle All The Way with my nieces tonight ❤️
First time watching this one. Love Arnie so far in this role.
#SpendChristmasWithME
One of my favourite Xmas songs 🎶🎄
Doesn't matter how many times I listen to this song, I can never get sick of it.
Mum used to play this every day in December growing up, so nostalgia definitely plays a part in that ❤️
What's your go-to Xmas song?
#SpendChristmasWithME
Shoutout to @nikosuvisto.bsky.social for a great Christmas themed album recommendation 🎶
Niko shared this album as part of the #SpendChristmasWithME campaign here on BlueSky, but thought I would also share it since it’s been on repeat at work last few days 🎷🎄
open.spotify.com/album/2qecyn...
I’ll listen to and share one Christmas themed album every day until Christmas. Today’s album is:
Vince Guaraldi Trio - A Charlie Brown Christmas (2022 Mix) (1965) (jazz)
1/3
#SpendChristmasWithME #MusaSky #MusicSky
Let’s goooooo (tomorrow!) #SpendChristmasWithME
#SpendChristmasWithME campaign begins tomorrow!
Starting with our first 2 movies:
- The Santa Clause 🎅🏼
- Jingle All The Way 🎄🧸
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas together from home 🫶🏼
#MECFS #LongCovid
Wow. Just had a listen to some of the songs and I actually love this album. Never heard soulful jazz versions of Christmas songs and I'm officially obsessed.
Going to have this on repeat at work today! Sets the perfect Christmassy mood 😊
Thanks for sharing how you
#SpendChristmasWithME Niko 🎄🫶🏼
