4/
Two other notables -

▶️ Most of the research about #TopicalSteroidWithdrawal ( #TSW) only happened since the onset of the pandemic.

▶️ Most of the posts about TSW on #Reddit occurred over the course of the (ongoing) pandemic.

Coincidence? Maybe. maybe not.

New research from the Evidence Synthesis Team - read more on their #evidencegapmap on #topicalsteroidwithdrawal

Topical Steroid Withdrawal: Evidence, Anecdotes, and Everything In Between Is there a mismatch between academic literature and social media? Topical Steroid Withdrawal Syndrome (TSWS) is considered a rare side effect of using steroid creams. It is estimated that over 100 …

News on our blog: Find out more about a recent project on #topicalsteroidwithdrawal and the mismatch between academic literature and #patientexperience

evidsynthteam.wordpress.com/2025/05/28/t...

@penarc.bsky.social @uniofexeternews.bsky.social @esmi-exeter.bsky.social #tsw #tsws

Topical Steroid Withdrawal: Evidence, Anecdotes, and Everything In Between Is there a mismatch between academic literature and social media? Topical Steroid Withdrawal Syndrome (TSWS) is considered a rare side effect of using steroid creams. It is estimated that over 100 …

Learning about topical steroid withdrawal was a real eye-opener! Our evidence gap map brings together academic research and social media posts. Check out our blog for details #tsws #TopicalSteroidWithdrawal @penarc.bsky.social evidsynthteam.wordpress.com/2025/05/28/t...

MooGoo Skin Care Blog | Topical Steroid Withdrawal Topical Steroid Withdrawal (TSW) is a condition that affects people who have been prescribed topical steroid creams and discontinued their use. Topical steroids can help to treat various skin conditio...

Respect gained for the MooGoo skincare brand for raising awareness of Topical steroid withdrawal on their website and Facebook page. I went through it ten years ago and there's still so many doctors who don't know what it is.
moogoo.com.au/blogs/moogoo...

#skincare #tsw #topicalsteroidwithdrawal

picture of me in the bathtub with a swollen face and flaky skin

picture of me with red swollen skin

photo of my right arm and legs in the bathtub. the skin on my body is flaking off

i built a community on tiktok when i was going through topical steroid withdrawal. we were all holding space and helping each other through the day in the face of disability, the pandemic, and medical gaslighting. the loss of community and information are what sucks. #tsw #topicalsteroidwithdrawal

Reviewing the Evidence Base for Topical Steroid Withdrawal Syndrome in the Research Literature and Social Media Platforms: An Evidence Gap Map Background: Within the dermatological community, topical steroid withdrawal syndrome (TSWS) is a medically contested condition with a limited research base. Published studies on TSWS indicate that it ...

So proud to share our latest publication - funded by Ken Stein's @nihr.bsky.social Senior Investigator Award and with patient engagement embedded at every step - it highlights the enormous chasm between research and patient experience of #TopicalSteroidWithdrawal

www.jmir.org/2024/1/e57687

Might as well dive in 🏊‍♀️

youtu.be/ZJfsOK7cKFY

Newest film out ✌🏼 about Topical Steroid Withdrawal. When we are still waiting for medical support, we won't be sitting around.

#TSW
#TopicalSteroidWithdrawal
#Eczema
#Documentary
#Skinhealth
#ChronicIllness

This is a fabulous (and heart breaking) documentary about #topicalsteroidwithdrawal - thank you Briana Banos for sharing these stories - and congratulations on a beautifully curated and edited film

youtu.be/ZJfsOK7cKFY?...

Are you living with Topical Steroid Withdrawal?

We'd love to know what you think the priorities are for future research!

Please get in touch if you would like to contribute to a workshop on 3rd July

#tsws #tsw #topicalsteroidwithdrawal