A manufacturer in Bangladesh 🇧🇩 will launch a generic version of the #CysticFibrosis drug #Trikafta 💊 in spring of 2026. It cuts costs from about $370K to $12.8K for adults and $6.4K for children 🧒👧. This is challenging monopoly pricing that left 3/4 of the world’s 190K CF patients without access 🚫.
Screenshot of the first page of the English version of the linked press release
For instance, amidst a range of advocacy for #Trikafta access around the world, I'd missed this call for a compulsory license in Peru:
aisperu.org.pe/licencia-obl...
Screenshot of the first two paragraphs of the article
"Advocacy groups form a buyer’s club to obtain generic versions of pricey #Vertex #CysticFibrosis drug [ #Trikafta #Kaftrio]"
#EssentialMedicines 💊🌐
www.statnews.com/pharmalot/20...
This research shows that a novel therapy for cystic fibrosis that is not an antibiotic alters the lung microbiome structure and functions due to its effects on shifting microbial niche spaces.
isme-microbes.org/reshaping-mi...
#cysticfibrosis; #trikafta
🚨 BREAKING: WHO adds #Trikafta to its Essential Medicines List – the first cystic fibrosis medicine ever included.
This recognises what families have said all along: CF medicine is essential & lifesaving.
Now Vertex must drop patents, drop the price & deliver access.
youtube.com/shorts/59iFk...
You won't believe what went down at #ECFC2025...
Vertex Pharma SHUT OUT three CF mums from their "community meeting" for wanting to ask critical questions about #Trikafta access.
But we didn't stop there...
Read full blog to find out what went down ⬇️
www.righttobreathe.net/post/exposin...
🚨 BREAKING: #cysticfibrosis mums stage a powerful intervention at @Vertex Pharma’s stand.
Gayle 🇬🇧, Urtė 🇱🇹 & Ajsela 🇦🇱 laid a wreath for children who died waiting for #Trikafta.
Backed by clinicians, we demand Vertex act now, access for all!
#ECFC2025
📌 Trikafta—a cystic fibrosis drug by Vertex Pharmaceuticals
Life-saving for many.
Price tag: 2,80,00,000 INR
Cost to make: 5,00,000 INR
People are organising for access—but Big Pharma isn’t budging.
#Trikafta #CysticFibrosis #Health4All #PeopleOverProfit
Happy #CYSTICFIBROSIS Awareness Month!
my #CF schedule:
Wake up
12 morning pills, like #Trikafta
8 #Enzyme capsules every meal
morning breathing treatments/vibrating vest. 3, 20 min each
Night:
breathing treatments/vest. 2, 20 min each
9 pills
Go to bed
Here is a #NeedhamComics #MonkeyBoy calendar
For five years, Vertex CEO Reshma Kewalramani has ignored #CysticFibrosis patients.
💰 She’s made $80M, but thousands can’t access lifesaving #Trikafta because Vertex Pharma keeps it priced at $326K/year.
Take action with us: actionnetwork.org/letters/tell...
Yes! Thanks to a miracle drug called #Trikafta my health is amazing! #EduSkyChat
Fought so hard to get access to CF modulators. In the past two years possibly 1 course of antibiotics in total. Prior to these drugs probably 10-12 courses per year. Amazing medications #cysticfibrosis #kaftrio #trikafta #kalydeco
Screenshot of the title of the linked statement and logos of participating organizations
Worth reading this joint statement on a very unsatisfactory outcome in South Africa on access to #Trikafta, a very pricey (in places where it's available at all), very lucrative (it made #Vertex over $7.5billion in the first 9 months of 2024 alone) drug. 💊🌐💰⚖️ www.statnews.com/wp-content/u...
Worth noting just how much money #Vertex is making off #Trikafta, on track to be a 10x blockbuster drug in 2024. A good drug, but more lives could be saved if Vertex was willing to rake in slightly less money (& if they made it available in the many countries where they don't sell it at all).💊💸
Cystic fibrosis drug reduces hospital visits and offers patients hope – at a cost. New CIHI report finds that #Trikafta patients’ admissions to hospital fell by an average of 65% over a year with $300,000 drug, by Kelly Grant www.theglobeandmail.com/canada/artic... via @theglobeandmail.com #CF
#Kaftrio #Trikafta making possibilities #cysticfibrosis
OneRepublic - I Lived (Official Music Video) https://youtu.be/z0rxydSolwU via @YouTube
Many still lack access to basic medicines & care, let alone #precisionmedicine. For these people we must still campaign, fundraise & develop new treatments. #Kaftrio #cysticfibrosis #CF #trikafta
Finally. It’s here! Years of campaigning. A true miracle drug. Got to admit I cried as I held the box in my hand. What a wait we have had.
However, so many people in the CF family didn’t make it to get this medication, that makes it bittersweet. #Kaftrio #Trikafta #CF
Oh and this should be the year my daughter finally gets #Trikafta #kaftrio the gene modulating drug from @VertexPharma
www.saltwire.com/atlantic-canada/news/goi...
And now this. News is coming quickly. Plus phase 3 trials for #trikafta complete and FDA (& other applications) in progress. She would have not one but three drug options. Finally
She’s growing up. She wants to be a doctor one day too. We want her to have a future. Despite all this the discussions on #Trikafta are going on with NICE. We long for this drug
As a parent of a child with #cysticfibrosis I am very concerned indeed. I’m glad to see info now coming out for our community. Thanks @cftrust
Access to meds such as #trikafta to improve baseline health is vital @MattHancock https://youtu.be/HAKgPZRBp8Y
Has @VertexPharma applied to EMA for #Symkevi marketing authorisation for less than 12 years of age yet? US FDA allows aged 6 and over. Waiting a further 5 years for access to this drug seems cruel. Can access to #Trikafta be speeded up seeing as the drug is so good? @cftrust
#Trikafta is an incredible drug that will benefit 90% of #cysticfibrosis patients. The results are impressive - is it ethically & morally appropriate to wait so long? People die during these waits. Approval process needs to keep up with speed of drug development
