After 3 great years with a fantastic consortium, the funded @paradise-project.bsky.social project ends with an excellent meeting in @scilifelab.se. Thanks to hosts Peter Nilsson, Elisa Pin and Lotta Prager. The concept of relapse prediction in AAV and the PARADISE consortium live on! #vasculitis

I’ve been unwell…
FYI 🩷

Shouting all the
Autoimmune Mamas

Chronic illness
Is funny & tragic
Sad & beautiful

Just like life
#Mm

#vasculitis #autoimmune #chemo #trump #epstein

FDA points to liver injury with Amgen's Tavneos The FDA raises the pressure on Amgen to withdraw vasculitis drug Tavneos from the market with a report linking serious side effects to the drug.

The #FDA has ramped up the pressure on #Amgen to #withdraw #Tavneos for a rare #vasculitis condition from the market, with a report saying it has identified cases of serious #liverinjury – including deaths – among people taking the drug.

¡Nuevo capítulo de #LaCienciadeloSingular! 🎧

¿Sabes qué son las #vasculitis?

🗣️Hablamos sobre dos enfermedades vasculares: Kawasaki y telangiectasia hemorrágica hereditaria

🆕 www.ciberisciii.es/noticias/cap...

Viv Dunstan's Story - Vasculitis UK I’ve been ill with cerebral vasculitis for a very long time. I was only 22 in 1994, had newly started a full-time funded science PhD. And I started to get ...

It’s #RareDiseaseDay today. Here’s a link to my #vasculitis story about the neurological disease I fell ill with in 1994. 1 in a million incidence and frustratingly progressive in my case, despite throwing masses of treatment at it over the years since. www.vasculitis.org.uk/living-with-...

Neuropsychiatric Systemic Lupus Erythematosus: A Case Series Neuropsychiatric systemic lupus erythematosus (NPSLE) is a rare and poorly understood manifestation of systemic lupus erythematosus, encompassing a wide range of neurological and psychiatric…

"Each case demonstrated unique #NPSLE manifestations: acute confusional state in the setting of #sepsis, cerebral #vasculitis with retinal involvement, and catatonia.": buff.ly/v6Bdbcj

via @cureusmedical.bsky.social
#MedSky #Lupus #neurology #neuropsychiatric #rheumatology #SLE

Avacopan Causing Vanishing Bile Duct Syndrome in an Adult Patient With Microscopic Polyangiitis | Annals of Internal Medicine: Clinical Cases Microscopic polyangiitis (MPA) is a systemic necrotizing small-vessel vasculitis that may affect multiple organs. Avacopan, an oral complement (C5a) receptor inhibitor, was recently approved and recom...

Plus cases of Vanishing bile duct syndrome?

Eg www.acpjournals.org/doi/10.7326/...
And

academic.oup.com/rheumatology...

#NephSky #Vasculitis #Avacopan

Vasculitis Foundation Opens First-Ever Registry for Pediatric Rheumatology Patients The Vasculitis Foundation opened the first international Pediatric Vasculitis Registry (PedsVPPRN) in October 2025.

The Vasculitis Foundation opened the first international Pediatric Vasculitis Registry (PedsVPPRN) in October 2025.

Read the full feature: https://bit.ly/4cikjEC

#RareDiseaseMonth #RareDisease #Vasculitis #Rheumatology

Otolaryngologic manifestations in granulomatosis with Polyangitis: A systematic review of clinical presentations and renal correlation - PubMed Destructive otolaryngologic manifestations predicted renal involvement in GPA. Early biopsy, ANCA testing, and multidisciplinary management improved diagnostic accuracy and prevented organ damage. Future research should develop standardized ENT activity scores and prospective registries.

La #Granulomatosis
con #Poliangitis (GPA), antes conocida como #síndrome de #Wegener, es una #vasculitis rara #enfermedad #autoinmune, que causa inflamación de vasos sanguíneos pequeños y medianos, afectando principalmente nariz, senos paranasales, pulmones y riñones, limitando el flujo sanguíneo. ⤵️

#Amgen confirmed on its fourth-quarter results call that it has resisted a request to pull Tavneos for ANCA-associated #vasculitis from the US market. #ANCAAssociatedVasculitis
#RareDisease #pharmanews #lifesciences pharmaphorum.com/news/amgen-b...

A blue and purple promotional image for the "GN in Ten" podcast, featuring the International Society of Glomerular Disease logo. The text reads "Board Review Bonus #4: ANCA Vasculitis," and lists hosts Dr. Koyal Jain and Dr. Kenar Jhaveri. A stylized stopwatch icon is in the corner against a background of microscopic cellular structures.

🚨New GN in 10: Everything you need to know about ANCA Vasculitis🎙️

Join @kdjhaveri.bsky.social & Dr. Koyal Jain for a high-yield Board Review session covering all the basics and recent advances: share.transistor.fm/s/8be7fb84

#NephTwitter #MedEd #Vasculitis #BoardPrep @tobias-b-huber.bsky.social

Cogan's Syndrome: Clinical Presentations and Update on Treatment - PubMed This article will review the varying clinical presentations of CS and emerging information of systemic disease associated with CS. We will also review recently published promising treatment outcomes using immune modulating medications. As our framework for recognizing the markers of CS and the assoc …

El #SíndromedeCogan (SC) es una #vasculitis #sistémica poco frecuente que afecta gravemente la #visión y #audición, y puede tener #efectossistémicos significativos. El reconocimiento temprano de este #trastorno #autoinmune y su intervención pueden minimizar el daño #irreversible y #discapacitante. ⤵️

When Autoimmune Disorder Ravages Your Face (and How That Led to My Body Dysmorphic Disorder) Julia Métraux shares how she developed body dysmorphic disorder due to autoimmune disorder, where she couldn't recognise herself one day.

"My #fear that I wld have a severe #vasculitis flare up again was rational, but my behavior in obsessing over my appearance was not. My 2nd is to work to change it. This may be different for everyone, but, if yr like me, #CBT can help.": buff.ly/bJLs69H

by @juliametraux.bsky.social
#MentalDisorder

#SíndromedeCogan…
• #Oculares
• #Oído interno
( #Auditivos/Vestibulares):
#Sordera #neurosensorial
(usualmente bilateral), mareos, vértigo, acúfenos (similar al síndrome de #Ménière).
• #Sistémicos ( #Vasculitis): Fiebre, fatiga, dolores musculares/articulares e inflamación de la aorta ( #aortitis).

Case Report: Atypical post-COVID Cogan's syndrome - PubMed Our case is one of only two reported instances of Cogan's syndrome presenting with neurological signs post-COVID-19 infection, underscoring the rarity and complexity of this condition.

Disminución severa de agudeza visual ( #AV ) un mes después de una infección por #COVID-19, con signos oftalmológicos asociados a #uveítis y #vasculitis retiniana.
Dos semanas después, presentó #vértigo, #tinnitus e #hipoacusia súbita, lo que llevó al diagnóstico de enfermedad de #SíndromeDeCogan. ⤵️

Síndrome de Cogan atípico: reporte de un caso Presentamos el caso de una mujer de 50 años con un síndrome de Cogan atípico que se manifestó por un deterioro clínico inusualmente rápido. ✍️ https://www.sciencedirect.com/science/article/abs/pii/S0196070909000337 ⤵️

📚 Síndrome de Cogan atípico: reporte de un caso

Presentamos el caso de una mujer de 50 años con un síndrome de Cogan atípico que se manifestó por un deterioro clínico
inusualmente rápido.

#SíndromeDeCogan
#Vasculitis #CoganAtípico
#SíndromeDeCoganAtípico

✍️ www.sciencedirect.com/science/arti... ⤵️

Tapers, treatments, and flares: My treatment course for EGPA/Churg-Strauss Vasculitis (Oct 2014 – Apr 2018) | vasculitides NOTE:  This is not a typical treatment course for patients with EGPA/Churg-Strauss (not that there is such a thing as a “typical” EGPA patient!).  It has taken several years and much trial and error t...

Si le acaban de diagnosticar #vasculitis no se desanime por todos los altibajos.

1) siempre hay más opciones de tratamiento

2) es posible progresar si trabaja con médicos experimentados y desarrolla un plan de tratamiento con el que pueda comprometerse.

3) tenga paciencia, puede llevar un tiempo.

Tapers, treatments, and flares: My treatment course for EGPA/Churg-Strauss Vasculitis (Oct 2014 – Apr 2018) | vasculitides NOTE:  This is not a typical treatment course for patients with EGPA/Churg-Strauss (not that there is such a thing as a “typical” EGPA patient!).  It has taken several years and much trial and error t...

🔝 Uno de los factores más críticos es trabajar con #médicosexpertos en el tratamiento de #pacientes con su tipo de #vasculitis, especialmente para formas #raras de vasculitis.
Si le acaban de diagnosticar #vasculitisatípica o tiene contratiempos en su tratamiento, no se desanime por los altibajos… ⤵️

Reducciones graduales, tratamientos y brotes: Mi tratamiento para la EGPA/vasculitis de Churg-Strauss https://vasculitides.com/tapers-treatments-and-flares-my-treatment-course-for-egpa-churg-strauss-vasculitis-oct-2014-apr-2018/

🧵 #EGPA / #Vasculitis
de #Churg-Strauss

⚠️ Este no es un tratamiento típico para #VasculitisAtípica (¡No existe uno "típico”!).

Varios años y mucho ensayo/error para encontrar una combinación de medicamentos para intentar mantener el sistema inmunitario bajo control, y es un trabajo en progreso. ⤵️

As a person with a chronic autoimmune and inflammatory disease I get to regularly restart the clock on “but have you tried turmeric?” #chronicdisease #vasculitis #ThanksButNo

Our Feb 2026 issue is live!

Including total versus partial knee replacement, vagus nerve stimulation in hand #OA, mortality due to #HLH, #pregnancy outcomes in #vasculitis, plus much more! thelancet.com/journals/lan... #Medsky #Rheumsky

Cover art by @emma-cheng.bsky.social

✍️🙋‍♂️👨‍💻📚📑📖⤵️
#SíndromeCogan
#Enfermedad #Reumatológica
#Enfermedad #Reumática
#EnfermedadReumática
#EnfermedadesReumáticas
#Vasculitis #SC
#SíndromeDeCogan
#Enfermedades #Reumatológicas
#Reumatología
#EnfermedadReumatologica
#CoganSyndrome
#Seminario 👇

Síndrome de Cogan El síndrome de Cogan (SC) se caracteriza por la asociación de queratitis

#Autoimmune #Neurosensorial
#Vasculitis #Cogan
#Syndrome #SC
#CoganSyndrome
#SíndromeDeCogan
#SíndromeCogan ⤵️

Images in Rheumatology

Levamisole-Adulterated Cocaine-Induced Vasculitis Mimicking Acute Limb Ischemia

📖 doi.org/10.3899/jrhe...
@uhcw-nhs.bsky.social

#Vasculitis

#Medicinalnterna
#Reumatología ⤵️
Características clínicas
del #SíndromeDeCogan

El #Syndrome de #Cogan ( #SC ) es una #vasculitis #sistémica #autoinmune poco frecuente ( #rara ) que afecta #oído interno y #ojo, con manifestaciones que afectan a adultos jóvenes.

✍️ pubmed.ncbi.nlm.nih.gov/40383683/ ⤵️

🎙️ January 2026 Editor's Summary Podcast

🎧 Listen now: www.jrheum.org/audiorheum

#RheumatoidArthritis #Lupus #SjögrenDisease #Vasculitis #JuvenileIdiopathicArthritis #RheumaticDisease #Rheumatology

Imaging-guided stratification in giant cell arteritis: prognostic and therapeutic implications

Therapeutic Advances in Musculoskeletal Disease
@journals.sagepub.com

journals.sagepub.com/doi/10.1177/...

#vasculitis #medicalimaging #medicine #openaccess

Research Article

Navigating the Roadblocks: National Patient and Provider Survey on Barriers to Healthcare and Medication Access for Patients With Vasculitis

📖 www.jrheum.org/cgi/content/...
@ualbertadom.bsky.social @abhealthservices.bsky.social @sinaihealth.bsky.social

#Healthcare #Vasculitis

👨‍💻 Aprendiendo cada día sobre el Síndrome de Cogan y su enfoque terapéutico

📚 Revisión bibliográfica
#protocolo para su #diagnóstico y #tratamiento:
✍️ www.sciencedirect.com/science/arti... 👈

#Enfermedad #Rara #Autoinmune
#EnfermedadRara
#SíndromeDeCogan
#SíndromeCogan
#Cogan #Síndrome #Vasculitis ⤵️

🧪📘 Welcoming 2026 with new research.

The January issue of @jrheumatol.bsky.social (Vol. 53, Issue 1) is now available.

📖 www.jrheum.org/content/53/1...

#RheumatoidArthritis #Spondyloarthritis #Lupus #SjögrenDisease #SystemicSclerosis #Vasculitis #Myositis