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The Akari Foundation
The Akari Foundation
@theakarifoundation.bsky.social
1 month ago
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📣 PTC Therapeutics Informa:

Actualización para la Comunidad Duchenne en EE. UU. sobre la revisión de la solicitud de registro de nuevo fármaco de Ataluren (Translarna™)

#TheAkariFoundation #enfermedadesraras #DistrofiaMuscularDeDuchenne #duchenneenespañol #PTCTherapeutics #Ataluren #Translarna

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The Akari Foundation
The Akari Foundation
@theakarifoundation.bsky.social
7 months ago
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Actualización para la Comunidad Duchenne en EE. UU. sobre la revisión de la solicitud de registro de un fármaco (NDA, por sus siglas en inglés) de Ataluren (Translarna).

#TheAkariFoundation #enfermedadesraras #DistrofiaMuscularDeDuchenne #duchenneenespañol #PTCTherapeutics #Ataluren

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DMD WarrioR
DMD WarrioR
@dmdwarrior.com
1 year ago
Turkish DMD Patients Who are Eligible for Exon 51 Skipping Treatment Request Their Medications from the Ministry of Health 🇹🇷 According to the information sent to DMD Warrior by DMD Dayanisma Community, it was understood that Eteplirsen (Exondys 51) was included in the scope of payment by the Ministry of Health in the official response given to the written question submitted by Talih Ozcan, a member of parliament in Turkey, regarding the diagnosis, treatment and social rights of Duchenne Muscular Dystrophy (DMD) patients. According to the DMD Dayanisma Community, patients who are eligible for Exon 51 skipping treatment are not aware that they can get their medication from the Ministry of Health because official associations in Turkey have not made any announcements on their websites about this issue.

Turkish DMD Patients Who are Eligible for Exon 51 Skipping Treatment Request Their Medications from the Ministry of Health 🇹🇷 According to the information sent to DMD Warrior by DMD Dayanisma Community, it was understood that Eteplirsen (Exondys 51) was included in the scope of payment by the Ministry of Health in the official response given to the written question submitted by Talih Ozcan, a member of parliament in Turkey, regarding the diagnosis, treatment and social rights of Duchenne Muscular Dystrophy (DMD) patients. According to the DMD Dayanisma Community, patients who are eligible for Exon 51 skipping treatment are not aware that they can get their medication from the Ministry of Health because official associations in Turkey have not made any announcements on their websites about this issue.

Turkish DMD Patients Who are Eligible for Exon 51 Skipping Treatment Request Their Medications from the Ministry of Health 🇹🇷

👉 Read More: dmdwarrior.com

#dmd #duchenne #bmd #becker #dmdwarrior #dmdwarriors #eteplirsen #ataluren #exondys51 #sarepta #turkish #turkey

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