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Debra - The Butterfly Skin Charity
Debra - The Butterfly Skin Charity
@debraireland.bsky.social
5 months ago
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A full room at Leinster House this morning as TDs & Senators hear first-hand the urgent need for better EB care in Ireland.
#EB #butterflyskin #butterflyreview #EBAwarenessWeek

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Debra - The Butterfly Skin Charity
Debra - The Butterfly Skin Charity
@debraireland.bsky.social
5 months ago
Post image

We are live at Leinster House for the launch of the EB Butterfly Review.

Today is about amplifying the voices of people living with EB and their families.

#butterflyskin #butterflyreview #EBAwarenessWeek

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