#cureFOP

Muscle-repairing macrophages trigger heterotopic ossification in mice We have identified a macrophage population "Mrep" that plays an essential role in muscle repair. However, in Fibrodysplasia ossificans progressiva (FOP), Mrep functions as a pathogenic cell that trigg...

Macrophage 'Mrep' acts as pathogenic cells which trigger heterotopic ossification in FOP.

#cureFOP #science #research

www.news-medical.net/news/2026031...

In Pursuit of a Cure: Advancing Research for a more Hopeful Tomorrow In Pursuit of a Cure, 35 Years of Funding Research for the FOP Community

But we’re not stopping there—we need your help to meet our $500,000 goal! With Day of Giving tomorrow, every gift funds research that brings us closer to more treatments, and, one day, a cure ❤️

🌟 Be part of this moment—give today: ifopa.org/cure-fop

#cureFOP #FOPawareness #RareDisease #IFOPA

GUYS THIS IS INSANE

#disability #disabledsky #cureFOP

Tomorrow on zoom! ICYMI

#histmed #medicalhumanities
#histmedsky #FOPAwareness #cureFOP #medsky

FOP Awareness Kits

🔹 #cureFOP bracelets
🔹 Awareness cards/stickers
🔹 Emergency cards
🔹 Kid license plates/frames
🔹 Access to the Life With FOP 🎥

💙 In the U.S with a suggested donation of $45
📬 In Canada? Email michelle.davis @ ifopa.org for a shipping quote

Order: ifopa.salsalabs.org/2025FOPAwarenessKits/index.html

IFOPA - International Fibrodysplasia Ossificans Progressiva Association

Learn more & help #cureFOP at www.ifopa.org

IFOPA - International Fibrodysplasia Ossificans Progressiva Association

You can learn facts, dispel misinformation, and donate at www.ifopa.org 💞

#DisabledSky #disabilities #CureFOP #RareDiseaseDay #RareDiseaseMonth

Feeling very sparkly this morning, starting the day with my new friendship bracelet from the wonderful Nadine! All the way from Germany via Geneva!
#CureFOP #StrongerTogether #FOPGermany

The Rare Bone Disease Alliance is excited to announce the fourth Rare Bone Disease Alliance Scientific Symposium on November 21, 2024, with this session focused on fibrodysplasia ossificans progressiva (FOP).

#disability #FOP #cureFOP

🧵

One patient’s gene mutation could save others from ‘2nd skeleton’ A patient who unknowingly grew up with a progressive bone-forming condition could help protect others from the grip of the disease.

The latest research is *significant*. Read, and share! 🦴💖

#cureFOP #Science #disability #FibrodysplasiaOssificansProgressiva

www.pennmedicine.org/news/news-bl...

There's news for the LUMINA-1 garetosmab trial to treat FOP.

It stopped new FOP bone lesions, and side-effects were nosebleeds, eyebrows/eyelash loss and soft tissue infections.

5 patients passed away but there is no definitive link yet to garetosmab.

#science #cureFOP

Kiiinda late BUT

Support IFOPA's FOP Awareness campaign, buy a fancy top/hoodie~ 👕🏆

#Disability #cureFOP #fop #FibrodysplasiaOssificansProgressiva

www.ifopa.org/awareness_da...