🦋 Registration is open: DSF Family & Professional Conference

📆Jun 25–27📍ORL, FL Renaissance at SeaWorld

Families + clinicians + researchers + advocates—learn, connect, & strengthen support.

✅ Register now → 📌 Upcoming Events → tr.ee/5LJIm_IZml

#DSFConference #DravetSyndrome #CureDravet

🏈👟 Turn fandom into impact.

Charles Byrd’s custom MCMC (2025 season, Size 11) are up for auction, with proceeds benefiting DSF—supporting families and fueling progress in Dravet syndrome research.

⏳ Jan 18
⏰ Bid here 👉 tr.ee/zVfVUr_QBt

#CureDravet #MyCauseMyCleats

Building momentum in 2026 takes all of us. 🦋
Simply put, fundraising funds us. It sustains critical research and supports families impacted by Dravet syndrome.

🏁💸Start a fundraiser / host an event 👉
tr.ee/pnFgesuSJi

#DravetSyndrome #DravetCommunity #CureDravet

This June 23rd, help us Turn Awareness Into Action for Dravet Syndrome by honoring lives lost and raising awareness on International Dravet Syndrome Awareness Day. Join us in advocacy, fundraising, and spreading knowledge to support affected families.

#Disability #humanrights #curedravet

💜 It’s Dravet Syndrome Awareness Day and DSF staff is proud to show up for our community. Share your photo, raise your voice, and help turn awareness into action.

🟣 Check out our Awareness Month resources: bit.ly/3q4arIH

#CureDravet

For families navigating Dravet syndrome, finding new treatment options offers hope. The Phase 3 ARGUS Trial is currently enrolling patients with Dravet syndrome to test if Clemizole (EPX-100) can reduce seizure frequency.

Read our blog to learn more: bit.ly/4d0h1Eq

#CureDravet

Phase 3 trials for zorevunersen (STK-001) — a treatment targeting the genetic cause of Dravet syndrome — are expected to begin this summer.

We’ve created an in-depth FAQ to help you understand where things stand and what’s next.

🦋 Read the full FAQ blog: bit.ly/41EZtZe

#CureDravet #DravetSyndrome

Not the conference, but a Day of Dravet—regional events held in between conference years. If you’ve ever wondered what it’s like to connect with the Dravet community, here’s your peek inside.”

#DravetSyndrome #DayOfDravet #RareDiseaseCommunity #RosiesDravetJourney #CureDravet

What is Dravet syndrome - Dravet Syndrome Foundation What is Dravet Syndrome? Dravet syndrome is a rare form of intractable epilepsy that begins in infancy and significantly impacts individuals throughout their lifetime.

With severe seizures, developmental delays, and a 15-20% mortality rate, this devastating disease has long left families and researchers desperate for more effective treatments to #CureDravet.

Learn more about Dravet Syndrome from @curedravet.bsky.social: dravetfoundation.org/what-is-drav...

Boy in medical stroller sits next to a purple butterfly light decoration.

I was so excited to see this butterfly, a meaningful symbol for many who confront the daily challenges of epilepsy like my son, who has a rare, intractable form of epilepsy called Dravet syndrome. #curedravet #DSF

Roadmap to a Cure - Dravet Syndrome Foundation In order to actively drive research toward our goals, DSF and its advisory boards use the following roadmap to evaluate research proposals and encourage

Dravet syndrome affects more than seizures—it impacts cognition, behavior, and overall health. Collaboration among professionals is key to improving outcomes. Let’s share knowledge, innovate, and work toward better treatments. Explore our Roadmap to a Cure: bit.ly/3Z3PICD
#CureDravet #DSF