GitHub - fragla/eq5d Contribute to fragla/eq5d development by creating an account on GitHub.

Now included in the latest version (v0.16.3) of the #rstats #eq5d package which is available on #CRAN and also at github.com/fragla/eq5d.

GitHub - fragla/eq5d Contribute to fragla/eq5d development by creating an account on GitHub.

v0.16.3 of the #rstats #eq5d package is now on #CRAN. The release includes the new EQ-5D-5L value set for UK and the EQ-5D-Y-3L value set for Hong Kong.

More info and examples of how to use it at github.com/fragla/eq5d and cran.r-project.org/package=eq5d.

@euroqol.bsky.social

#heor #hta

Graphic in white and pink. There is a headshot of Andria Joseph. The quoted text reads: "It is exciting to see the publication of the new UK EQ-5D-5L value set in Value in Health. For those working across HEOR, HTA and market access, this is a significant development for the UK evidence landscape. For HEOR, this matters because the choice of value set can directly influence utility estimates, QALY calculations and, ultimately, the results of economic evaluations." Andria Joseph, Project Director. The YHEC 40th anniversary logo also features

It is great to see the publication of the new UK EQ-5D-5L value set in Value in Health. For those working across HEOR, HTA and market access, this is an important development for the UK evidence landscape.

Want to discuss what this means? Get in touch: www.yhec.co.uk/contact-us/

#HEOR #HTA #EQ5D

Text: Monthly publication selection. 1-31 January 2026. There are screenshots of 4 research papers on the left-hand side angled towards the right. Behind is a blue-green gradient background and a white EuroQol logo in the bottom right.

💡 Child and adolescent health, caregiver outcomes, valuation methods, bolt-ons, recall periods, and population value sets...

These are the research areas featured in our latest selection of monthly publications.

Click to read 👉 https://bit.ly/4tBxero

#EQ5D #HealthEconomics

Patients as partners in a research advisory council role: describing the APERSU Patient Engagement Network - Journal of Patient-Reported Outcomes Journal of Patient-Reported Outcomes - Patient and public involvement and engagement (PPIE) is crucial for developing patient-centered healthcare research and improving health outcomes. While...

The Alberta PROMs and #EQ5D Research and Support Unit operates across the health system. Read about the development of its engagement network, that aims to connect those whose experiences reflect the broad scope of PROMs use in Alberta
link.springer.com/article/10.1...

#PPIE #PatientCentered #HRQOL

Anecdote from the other side:
In health economic papers it is quite usual to report the response patterns from a particular questionnaire, e.g.,
11111
12111
...

Despite our efforts to communicate this to the publisher's staff, the proofs went out
11,111
12,111
...

#EQ5D #NightshiftEditor

Client Challenge

I really enjoy reading the expanding literature on #invariance of #ValueSets. Two interesting papers and a taxonomy regarding #obsolescence

1- link.springer.com/article/10.1...

2- www.sciencedirect.com/science/arti...

3- link.springer.com/article/10.1...

#HealthEconomics
#EQ5D #Psychometrics

GitHub - fragla/eq5d Contribute to fragla/eq5d development by creating an account on GitHub.

The recently published EQ-5D-Y-3L value set for the United States by Pickard et al has now been added to the development version of the #eq5d #rstats package. Package available at github.com/fragla/eq5d.

You can read the paper at doi.org/10.1016/j.jv...

@euroqol.bsky.social

#heor #hta

Two #ISPOREurope posters on the #HERC Database of Mapping Studies will be in Glasgow next week: MSR176 in Session 4 (Tues 11th 6pm); MSR199 in Session 5 (Wed 12th, 9am). #HERCMappingDatabase #EQ5D

HERC database of mapping studies

HERC DATABASE UPDATE

A new version of #HERC Database of Mapping Studies with 43 new algorithms mapping to #EQ5D is now available at

www.herc.ox.ac.uk/downloads/he...

#HERCMappingDatabase
@oxpop.bsky.social

Changes in hand function and health state utility after cubital tunnel release using the United Kingdom Hand Registry - Joris S. Teunissen, Timothy T. Griffiths, Brigitte E. P. A. van der Heijden, Ryc... This study aimed to analyse and contrast changes in health-related quality of life (HR-QoL) and hand symptoms in the first 6 months after surgical treatment for...

Surgery for cubital tunnel syndrome ➡️ rapid functional improvement, not captured by the EQ-5D-5L

🙏UK Hand Registry

@bsshand.bsky.social @jhseur.bsky.social @ttgriff.bsky.social @openresleeds.bsky.social @ndorms.bsky.social #CuTS #nerve #surgery #EQ5D

doi.org/10.1177/1753...

I'm currently on my way to the #EuroQolPlenary2025 in Vienna!

Very much looking forward to it, I always learn so much from these meetings.

For example, this time I've already learned not to fly with Brussels Airlines.

#EQ5D #HealthEconomics

Is episodic future thinking effective in mitigating the influence of time preference in time trade-off? - The European Journal of Health Economics Objectives The composite time trade-off (cTTO) method has been found to be influenced by time preferences for future life years, which typically results in a downward bias on cTTO utilities without ad...

🎉 New in EJHE: Does episodic future thinking curb time preference in TTO? 🧪 In cTTO, EFT showed no significant effect on time prefs/utilities—better adjustment methods still needed. #HealthEconomics #EQ5D
🔗 doi.org/10.1007/s101...

GitHub - fragla/eq5d Contribute to fragla/eq5d development by creating an account on GitHub.

v0.16.1 of the #rstats #eq5d package is now on #CRAN. The release includes the recent EQ-5D-5L value set for Singapore and the EQ-5D-Y-3L value set for Australia.

More info and examples of how to use it at github.com/fragla/eq5d and cran.r-project.org/package=eq5d.

@euroqol.bsky.social
#heor #hta

GitHub - fragla/eq5d Contribute to fragla/eq5d development by creating an account on GitHub.

The recently published EQ-5D-5L value set for Singapore by Luo et al has now been added to the development version of the #eq5d #rstats package. Package available at github.com/fragla/eq5d.

You can read the paper at doi.org/10.1007/s402....

@euroqol.bsky.social
#heor #hta

Testing the valuation of the EQ-5D-Y-5L in adults and adolescents: Results from a five-country study and implications for the descriptive system The EQ-5D-Y-5L (‘Y-5L’) is a new health-related quality of life instrument for children and adolescents. Value sets for the Y-5L are planned. This pap…

Investigating functioning of the #EQ5D -Y-5L in five countries shows that participants can differentiate ordinal response levels, but that measurement quality and scaling functions differ by country and age
www.sciencedirect.com/science/arti...

#HRQL #HealthEconomics #Psychometrics #DIF

Thanks @frasermorton.bsky.social for adding the Australian value set for the EQ-5D-Y-3L to your #rstats #EQ5D package! That was quick work!

@euroqol.bsky.social @rich-norman.bsky.social
Our paper is available here, open access:
➡️https://tinyurl.com/AussieY-3Lvalueset

GitHub - fragla/eq5d Contribute to fragla/eq5d development by creating an account on GitHub.

The recently published Australian EQ-5D-Y-3L value set by @prof-nancy-devlin.bsky.social, @rich-norman.bsky.social and colleagues has now been added to the development version of the #eq5d #rstats package. Package available at github.com/fragla/eq5d.

@euroqol.bsky.social #heor #hta

GitHub - fragla/eq5d Contribute to fragla/eq5d development by creating an account on GitHub.

v0.16.0 of the #rstats #eq5d package is now on #CRAN. The release includes the recent Moroccan EQ-5D-5L value set by Azizi, Boutib, @ellystolk.bsky.social et al. More info and examples of how to use it at github.com/fragla/eq5d and cran.r-project.org/package=eq5d. @euroqol.bsky.social #heor #hta

“If we ask, we must act”: co-designing the implementation of the EQ-5D-Y-5L as a Paediatric Patient Reported Outcome Measure in Routine hospital Outpatient Care for Kids to meaningfully impact clinica... Purpose To co-design use of the EQ-5D-Y-5L, a generic Paediatric Patient Reported Outcome Measure (P-PROM), in Routine Outpatient Care for Kids (ROCK), maximising its impact on patient-clinician visit...

Perspectives of service providers, caregivers and adolescent patients in this study suggest that if patients are asked to complete PROMs, there is a duty of care for this information to be reviewed and acted upon:
link.springer.com/article/10.1...

#HRQL #PatientCentered #EQ5D #FeedbackSystems

Had a great time co-leading a poster session at the EuroQol ECR meeting this afternoon with @chrissampson87.bsky.social. Fantastic to see so much good, innovative #EQ5D research lead by ECRs.

I made it to That London, and now I'm on the EuroStar and on my way to Barcelona for the EuroQol Academy meeting. Looking forward to seeing everyone there! #EQ5D www.youtube.com/watch?v=7icI...

Meeting of #EQ5D in the UK and Ireland researchers #euroqol

Despite the early train, I'm excited to be off to the Meeting of EQ-5D researchers in the UK and Ireland in London today! A good contingent from Leeds, with @johnodwyer.bsky.social, @clairemillsslt.bsky.social, Taya Kamwanja and Miao Yang also coming #EQ5D

Feasibility of self-reported health related quality of life assessment with older people in residential care: insights from the application of eye tracking technology - Quality of Life Research Purpose Increasingly there are calls to routinely assess the health-related quality of life (HRQoL) of older people receiving aged care services, however the high prevalence of dementia and cognitive ...

...the top-used paper from those published in 2023 (#Altmetric) was
link.springer.com/article/10.1...
#EQ5D #EyeTracking #Psychometrics #HealthEconomics

Sensitivity to change of generic preference-based instruments (EQ-5D-3L, EQ-5D-5L, and HUI3) in the context of treatment for people with prescription-type opioid use disorder in Canada - Quality of Li... Purpose Using data from a randomized controlled trial for treatment of prescription-type opioid use disorder in Canada, this study examines sensitivity to change in three preference-based instruments ...

NB: QLR's "Editor's choice" award is based on a selection of papers proposed by the journal's associate editors and voted on by the associate editors.

The top downloaded paper of those published in 2023 was link.springer.com/article/10.1... #EQ5D #HUI3 #opioid #SubstanceMisuse

and...

The structure of well-being: a single underlying factor with genetic and environmental influences - Quality of Life Research Purpose The structure of well-being has been debated for millennia. Dominant conceptualisations, such as the hedonic and eudaimonic models, emphasise different constituents of the well-being construct...

Links to the three articles:

Winner: link.springer.com/article/10.1... #Psychometrics

Second place: link.springer.com/article/10.1... #EQ5D #PROMIS

Third place: link.springer.com/article/10.1... #Psychometrics #IRT

Screenshot of the intro of the ISOQOL news item, with the following text: News from “Quality of Life Research” Nov 21, 2024 Jan R. Boehnke, PhD, Brittany Lapin, PhD MPH, and Jessica Roydhouse, PhD Quality of Life Research Co-Editors-in-Chief The Co-Editors in Chief of Quality of Life Research (QLR) would like to thank ISOQOL and its members for their support in 2023. We received 1,903 submissions and accepted 247 articles. The journal’s editorial board managed high workloads and helped us identify relevant content for the community of (health-related) quality of life researchers. Importantly, 727 unique reviewers contributed at least one review, supporting the high quality of our content.

Read about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research":
www.isoqol.org/news-from-qu...

The last annual update I will be involved in... 😅👋

#ISOQOL #HRQL #HealthEconomics #Psychometrics
#EQ5D #COSMIN #PROMIS

Adapting the EQ-5D-3L for adults with mild to moderate learning disabilities | Health and Quality of Life Outcomes

So pleased to see this adapted version of the #EQ5D for people with a #LearningDisability we began this work in 2014 & @johnodwyer.bsky.social made it happen.

If research is going to be inclusive we need to think about #Inclusion at every step, design, process, recruitment, measures

rdcu.be/d0YUL

Health-related quality of life of adults with spinal muscular atrophy: insights from a nationwide patient registry in Germany

The EuroQol foundation's May publication summary included a paper from Quality of Life Research:

Using registry data in Germany, the team investigates #HRQL of adults with spinal muscular atrophy:
rdcu.be/dM5h2

#EQ5D #HealthEconomics