Thank you for sharing your story. And incredible work you are doing, thanks a lot.
Our daughter (7) has #hlhs. She is in Fontan stage, and every day we are amazed and grateful how she is doing, considering how she started in this world❤️🩹
One of the unsung heroes to #hlhs survival is Dr. Vivien Thomas. He was a talented researcher & surgical pioneer but paid as a janitor because, well…racism. Please read more about him! He was an amazing man, and though he was focused on #TOF, his shunt is a critical component of hlhs surgeries.
Illustrations of HLHS surgeries. On the left is the hlhs heart anatomy. Next is the Norwood surgery, which connects the right ventricle to the pulmonary arteries, increases the aorta size & connects it to the right ventricle. Next is the Glenn, which connects the superior vena cava to the pulmonary arteries & removes the shunt from the right ventricle. Finally is the Fontan, which connects the inferior vena cava to the pulmonary arteries as well, allowing deoxygenated blood to flow passively into the lungs, and the right ventricle serves for systemic circulation.
Without a series of 3 surgeries (or ❤️ transplant) #hlhs is 100% fatal. Surgeries didn't exist until the 1980s so the oldest patients are just now in their 40s.
Illustration of two hearts. On the left is a normal heart with a 4 chamber view showing normal sized outflow tract and ventricles. On the right is a hlhs heart showing a very small left ventricle, mitral valve atresia, and a small aorta.
In honor of world #CHD awareness day, I want to share my family story about a CHD called #hlhs. Hypoplastic left heart syndrome is a rare (1 in 3800) condition where a baby has a small left ventricle.
Nobody knows what causes hlhs but it accounts for 23% of cardiac deaths in the 1st wk of life. 🧪🫀
CT surgery case of the year: EXIT-to-Open Atrial Septectomy for Hypoplastic Left Heart Syndrome With Intact Atrial Septum: Gone in 90 Seconds! #medsky #CTSky #CardiacSurgery #congenital #HLHS
www.ctsnet.org/article/exit...
Research from @ChildrensPhila followed 2k+ patients with #HLHS for 35 yrs. Adult survivors are thriving-85% report good to excellent health and QOL scores higher than the general population. They’re going to school, working, and living full lives! www.sciencedirect.com/science/arti...
Exploring Long-Term Outcomes of Adults with Hypoplastic Left Heart Syndrome at Children's Hospital of Philadelphia #USA #Philadelphia #Children's_Hospital #HLHS #CHD
A full day here at heart family camp in Wisconsin with my 10-year-old who is a heart warrior. She has only one ventricle if you can believe it! Crazy, right? She has hypoplastic left heart syndrome. This is her chance to meet other kids with heart defects and have fun- that we did! #HLHS #CHD
#paulkornerseminar speaker @Osvaldoics: 'Multi-parametric #flowcytometry provides next-generation tools to evaluate the #cardiomyocyte cell cycle.' #heartdisease #HLHS #CHD #science #sciencetwitter
#PaulKornerSeminar speaker @Osvaldoics sharing with us some great images: 'Comprehending the molecular basis of single-ventricle #disease using patient-specific pluripotent #stemcells.' #heartdisease #HLHS #CHD #science #sciencetwitter #scienceart
