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Catch this Zoom discussion about living with Long COVID with @rubyslippahs.bsky.social and @ancirabecky.bsky.social, this Thursday at 12 noon ET. Register in advance!

tinyurl.com/livingwithlo...

#loncovid

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Narrative heard on 2026 winter Olympics tv coverage {paraphrase} -
"The previous winter Olympics in Beijing were held with covid lingering over us, but now that it's all over we can relax and enjoy this Olympics more." #covid #olympics #loncovid #covidisnotover

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Wer hat eine Idee: Ich habe von meinem #Loncovid / #Postcovid #Nikotin-Pflaster -Versuch noch Pflaster übrig. Ich kann sie nicht selbst verwenden aber gängige Plattformen untersagen, dass ich sie dort anbieten, weil sie Apothenpflichtig sind. Wie kann ich sie sinnvoll weiter geben?

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🚨 The Minister for Children and Families, Josh MacAlister MP, has formally acknowledged that Covid is airborne in a new letter dated 30 Oct 2025.

👉 Read the full letter: shh-uk.org/minister-...

#SafeAir4All #CleanAir #Schools #Health #UKPolitics #loncovid #longcovidrecovery

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@robjetten.bsky.social

Wat is nu minder duur? Financiering van #LonCovid onderzoek zodat 500.000 #Nederlanders weer beschikbaar worden voor de #BVNederland, of 500.00 Nederlanders gewoonweg afschrijven??

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Geld voor longcovidonderzoek raakt op, wanhoop bij patiënten groeit Er dreigt een flink verlies aan deskundigheid en kennis, waarschuwt een hoogleraar.

Onbekend maakt onbemind.....

Wat is nu minder duur? Financiering van #LonCovid onderzoek zodat 500.000 #Nederlanders weer beschikbaar worden voor de #BVNederland, of 500.00 Nederlanders gewoonweg afschrijven??

Geld voor longcovidonderzoek raakt op, wanhoop bij patiënten groeit - nos.nl/l/2592582

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‘Vermoeidheid dekt de lading niet, PAIS-patiënten zijn uitgeput’ - DOQ Jojanneke Kant leerde via haar patiënten hoe ingrijpend PAIS is en hoe groot het kennisgebrek onder zorgverleners hierover nog altijd is.

‘Vermoeidheid dekt de lading niet, PAIS-patiënten zijn uitgeput’
#loncovid
#lc
#longcovidisgeengriepje
#wajong
#uwv

www.doq.nl/vermoeidheid...

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📌 Reduced Oxygen Tension in Skeletal Muscle #LonCovid

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Habe mir heute ein Herz gefasst und die vermutete #LonCovid Patientin unserer Apotheke einfach nochmal angerufen (hatte Kundenkarte), um ihr die Internetseite von #nichtgenesen mit der tollen Infobroschüre zu empfehlen. ⤵️

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Aranet

#Disability #LonCovid
"One of the simplest things you can do to protect your health is to keep track of indoor air quality. Viruses spread through the air and accumulate in spaces that are poorly ventilated."
aranet.com/en/home/blog...

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Refinement of post-COVID condition core symptoms, subtypes, determinants, and health impacts: a cohort study integrating real-world data and patient-reported outcomes PCC can be categorized into four distinct subtypes based on ten core symptoms. These subtypes appeared to share a majority of pathogen and host-related risk factors, but their impact on health varied markedly by subtype. Our findings could help refine current guidelines for precise PCC diagnosis and progression, enhance the identification of PCC subgroups for targeted research, and inform evidence-based policy making to tackle this new and debilitating condition.

Recap the findings into specific comorbidities & risk for different #Loncovid subtypes has implications for the management of LC. Organ-specific comorbidities : COPD & depression were more closely related to corresponding cardiopulmonary and neurological subtypes,
www.thelancet.com/journals/ebi...

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Ja, total einfach. Hätte mir also jederzeit eine Arztperson sagen können: HAT SIE ABER NICHT. Siehste und genau desswegen kann ich mich total gut im Personen mit #LonCovid versetzen. Keiner hilft dir und wenn du dann selber Lösungen suchsts stellt man sie dir in Anrede und wenn was hilft ist es

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Little tap dance combo to “Chip Away” by Janes Addiction, from September. One of the more frustrating and harder parts of #LonCovid life for me is how limited I am with my body and brain to choreograph and dance. I have so many ideas that go no where. I miss my art for self-expression.

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Living with #disability / #chronicillness often comes with experiencing trauma regularly. Trauma can either be caused by individuals’ behaviour towards us or by institutional neglect, harm or disrespecting of our needs. It’s time society recognises the impact trauma has on us #mecfs #pwme #loncovid

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