The stoics tell us there's a last day for everything. Obvious. But more profound when you often don't know it's your last time. Like simply walking on a white sandy beach in March. #photography #landscape #seascape #beach #BlueSkyMonday #Holguin #Cuba #mssucks
Had a letter from Neuro with a blood form in it and just a small note saying please get your blood taken asap and if you've already had it to email them and tell them when and where.
Little concerning after my MRI last week. I had the bloods taken two days ago. Not even late with it. Wtf. #mssucks
Making progress improving my health. Hoping it helps my triathlon times. Feeling sassy.
#zepbound #underarmour
#greatdaypt
#GLP-1 #foodisfuel
#mssucks #teamhosmer
Not sure if it’s a trauma history or #ms thing but it’s easy to see the effect of one threatening incident on my body. Starting the day pretty much in a deficit. #mssucks #chroniclife #chronicillness
The #fatigue is intense today. My legs feel like lead and my brain is slow. Yesterday, I was at a thing with family much of the day and the bright spot is it tired some of them out, too. And they have juicy myelin and intact nerves.
#ms #multiplesclerosis #chronicillness #autoimmune #mssucks
The MS eyesight, and the shitty shaking of the hands makes sewing difficult. BTS in the background at least helps.
#multiplesclerosis #MSsucks #springbreak
Just had a letter to remind me of my MRI on Saturday :/ like I could forget. It's just routine to see if there's been any MS progress.... #mssucks
Had the best sleep for ages but still starting the week on empty. Urgh.
#ms #mssucks #autoimmune #fatigue #chroniclife #chronicillness
Marching in Rochester's parade tomorrow with Johnny's Pub on what is coincidentally the end of MS Awareness Week. Trust me: I'm aware. Hydrate, but not too much. Gonna be cold out? Dress warm, but not too warm.
#teamhosmer #bikems #mssucks
MRI booked for next Saturday
I don't really mind them much....I'd rather not....but they're not terrible.
#mssucks
Ugh just had a phone call to book my next MRI. #mssucks
I have multiple sclerosis. As Christina Applegate says, 'Zero stars.' I'm bicycling the Bike MS ROC the Great Lakes 30-mile route on 8/8 to fundraise for research & support through the Nat'l MS Society.
Please donate & share!
events.nationalmssociety.org/participants...
#bikems #TeamHosmer #mssucks
Bad #MS day. I'm honestly just pissed at it right now. On my morning walk, I stumbled and had an actual temper tantrum because my feet will not do what I tell them to. Sometimes anger is the appropriate reaction to this disaster of a disease.
#multiplesclerosis #chronicillness #autoimmune #mssucks
Glanced at my phone while shoving some food in my mouth in the middle of my shift. The 4.5 hours remaining of the craziest shift so far this year laughed loudly at this little nugget. Take it easy 😆🫠
#autoimmune #ms #mssucks #fatigue #chronicillness #chroniclife
A person with their head in their hands. The text reads "Painsomnia: Making it impossible for people suffering from chronic pain to get 8 hours of uninterrupted sleep."
If this doesn't stop soon I'm actually going to lose my feckin mind! #MS #MSsucks #ChronicPain #MakeItStop
Having spent weeks under the rock that is fatigue today I feel better. And I can’t trust it, and I haven’t done anything ‘right’ so don’t know why I feel better. And this concerns me. It’s not just dealing with symptoms it’s the whole mental load of reasoning all the time.
#mssucks #autoimmune
#chroniclife #chronicillness #autoimmune #ms #mssucks #fatigue
No exercise, just life. Living life is more exertion than my body can recover from.
Article issu de FORTE Le magazine de la Société suisse de la sclérose en plaques, no 1/2026
La perte définitive d'une partie de moi, c'est aussi ce que j'ai ressenti après une poussée de ma sclérose en plaques #Deuil:
#MultipleSclerosis
#MSSucks
#Forte 1/2026
#SociétéSuisseSEP
🔗 www.multiplesklerose.ch/PDF/fr/Forte...
Another awesome performance from my #MS team. Letter and booklet lands on the floor. IV #ocrevus is no more. Either go back to kesimpta or move to #briumvi
No choice, no discussion, just a crap photocopied letter and a shiny booklet.
#mssucks #autoimmune #chronicillness #chroniclife
I've recovered from the #fatigue of the other day. Sometimes when it happens I worry I never will. BUT the fatigue seems to be coming on with less and less exertion lately. I'm over it.
#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
My #MS was great on my morning walk! Then some house organizing and then I just crashed. Crushing fatigue. Make up your mind, body. You're giving me whiplash. I can't plan properly.
#multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
Lost my last hope to get better
🪽🪽 🖤🖤🖤🖤🖤🖤🖤🖤🖤
#MSSucks
#MultipleSclerosis has no cure
#Disability worsening
I 🧡 Christina Applegate. A lot. That is all #MSsucks
I hesitate to say there's a *worst* thing about living with #MS because it all sucks, but the unpredictability is brutal. Yesterday I got worn out long before I was expecting to. I was both angry and embarrassed by it.
#multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
Walking back to the boat for the last time provides the opportunity to reflect fondly on such a stunning place the #Galapagos Archipelego is ... and also, the ability to walk. #ms #mssucks #photography #stunday #EastCoastKin #HumansOfBlueSky
Physio department has new chairs. They’re so low. Totally bizarre choice for a group of patients who likely have to do more work to get out of a chair to begin with. #logicfailure #ms #mssucks #physio #chroniclife #chronicillness
Crashing hard. Fell asleep on the sofa, not interested in food. Husband took the opportunity to create conflict with the youngest as a way to justify opting out behaving like we’re a family. Crystal clear and always happens when I might need something. #ms #mssucks #autoimmune #chroniclife
