Another study confirming what #pwME/CFS have been saying for decades and now #pwlongcovid have been saying too. When are we going to be believed by medical professionals’ and those in power? When are we going to get proper research funding? When are we going to get support and true recognition?
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Join ME Connected, our online community on Discord for people affected by ME/CFS and Long Covid - whether you're a person with ME, carer, family member, or friend, you are welcome in our supportive and friendly space.
#pwME #MECFS #LongCovid #pwLongCovid
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#MECFS #pwME #MyalgicEncephalomyelitis #MyalgicE #MyalgicEncephalopathy #MEAssociation #pwLongCovid #LongCovid #PostCovidSyndrome
Join via this link: https://meassociation.org.uk/discord
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#pwLongCovid #OnlineCommunity #MEConnected #DiscordChannel
Kan iemand mij iets vertellen over de praktische kant van LDN? Waar kan ik een opbouwschema vinden? Druppels of tabletten? Hoe bouw je op? Wat zijn de kosten?
Ik had mijn huisarts gevraagd of ik het mag proberen. Het mag! Maar… hoe werkt het allemaal? #pwlongcovid #pwmecfs #longcovid #mecfs
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#ME #MECFS #pwME #LongCovid #pwLongCovid #Covid19 #CovidIsNotOver #CovidIsntOver #NotMild #LongCovidAwarenessDay #WakeUpToLongCovid #BrainDamage
199-fucking-2. And STILL #pwME and #pwLongCovid are being told we are depressed.
Medical world playing the long game with us and letting us die a horrible slow death
Anyone got any tips on alleviating the #LongCovid persistent headache? It mostly went away when I started on amitriptyline but it’s back with a vengeance lately, v dispiriting #pwME #pwLongCovid
How wonderful! We try and watch the New Year concert every year and I'm very moved that the Vienna Philharmonic has donated €25,000 to M.E / CFS /LC research!
Vielen dank!
#pwME #pwLongCovid
#ViennaPhilharmonic
#CFS #ME
Thank you to the Vienna Philharmonic Orchestra for donating €25,000 to ME/CFS research via @weandme.bsky.social, as part of their iconic New Year‘s concert, broadcast by over 90 TV channels worldwide.
#pwME
#pwLongCovid
www.heute.at/s/muti-dirig...
Sometimes I struggle to believe how sick I am.
When the brainfog lifts a little bit for a moment and my body feels quite normal, I can feel like my old self again.
#longcovid #mecfs #pwme #pwlongcovid
🧵
Interesting.
A friend (RIP) had MG.
Mestinon is one med used in its treatment.
Some #PwME and #pwLongCovid say it helps as part their drug regimen.
Hi friends, especially people with personal or professional experience of portable air filters:
#pwME
#pwLongCovid
#CovidAware
Have you HEPA air filter recommendations for home use? Or any to avoid? Thank you!
Are there any countries where the Governments are actively advising their citizens of the dangers of COVID / Long COVID and their local media is covering and sharing information?
#SARS #COVID #pwLongCOVID
This is the reality. This is happening to #pwLongCovid. Read it. Absorb it. Do something. #LongCovid
auswählen.
So viele Betroffene #pwMECFS #pwLongCovid sollten sich auch in der EU weiten Untersuchung widerspiegeln! Also bitte zahlreich mitmachen.
Die Umfrage ist seriös, eine Teilnahme wird auch von #NichtGenesen & der #LVStiftung beworben.
Danke für Eure Unterstützung 🙌
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