My trigeminal neuralgia prevents me from touching my nose. This is a new development. I can't blow or scratch my nose. I'm going to get in touch with my neurologist on Monday and see if I can get a med increase/change. This can be done with a video call. #trigeminalneuralgia #TNwarrior #chronicpain
I think there's something about the position of my head when I sleep that has to do with waking up with pain in my jaw. But I don't know what it is. All I can do is try to sleep with my head in different positions. #chronicpain #trigeminalneuralgia #tnwarrior
For my fellow TNW's: I’m participating in the Facial Pain Registry to help researchers better understand trigeminal neuralgia. If you have TN, your story could make a difference too! Sign up here: facepain.iamrare.org
#trigeminalneurlgia #facialpain #TNwarrior
So, on average, how many people have Trigeminal Neuralgia in Canada?
Please help. I'm aparently horrid at #maths lol!
#mathematics #TNWarrior #chronicpain #NEISVoid
Note to self:
When gardening with Trigeminal Neuralgia, don't forget that chances are there's more dirt on your face than in the planters from rubbing mid spasms.
Look in a mirror before going to town! 🫠
#Oops #TNWARRIOR #chronicpain #Monday #neisvoid
I have discovered that in my journey to learn ASL with my family, in order to deal with my selective mutism, my children and I have learned *So Many* ways to swear.
I'm not sure if we should be proud or not 🤔🫠
#TNWARRIOR #TrigeminalNeuralgia #parenting #NEISVOID #chronicpain
Shout out to my friends, who when trying to communicate with me via #ASL, notepads, and a few slurred words, will continue conversation without missing a beat as if I was speaking all out loud and clear.
My tribe brings me strength.
#TNWARRIOR #TrigeminalNeuralgia #chronicpain #mute
#NEISVOID
Cuss, cry, laugh at inappropriate times 😂
Coping mechanisms aren't always public friendly lol!
#TNWarrior #TrigeminalNeuralgia #chronicpain
I'm about 2 days behind you. Flair is still going strong, but I can tell the pain is lessening as much as my tolerance to it is at the same time, so I'm still crashed.
🤞 We both get a break.
Stay strong, you're not alone.
#chronicpain #TrigeminalNeuralgia #fibromyalgia #TNWarrior
😳 I have empathy for USians today. Just picked up my new prescription. $200. I'm usually grumpy if it's $20!
*sigh* I hope it actually works.
#TrigeminalNeuralgia #TNWarrior #NEISVoid ##chronicpain
Hello, fellow #TNWarrior 👋 I hope you're having a calm day 🩵
@tnwarrior.bsky.social
Christmas day is done, and now prep and cleaning for Boxing Day Brunch with all the kids and grandkids tomorrow morning...
There hits a point when you say, f@ck it, it's family, and leave the house messy. They've seen it before.
#NEISVoid #TNWarrior
#Christmas
Ran errands all day despite the pain. So happy to be in my bed now. #trigeminalneuralgia #tnwarrior #chronicpain
Thank you to #Samsung for the text to call feature so I can still take phone calls when I can't talk.
As someone often rendered mute from living with Trigeminal Neuralgia, dealing with an rare disability is challenging.
But being able to have a phone call with Dad is priceless.
#TNWarrior
Hang in there #TNWarrior. You're not alone 💙
Mine is atypical so I get the fun of constant burning with electrocution to my jaw one day then my eyeball the next. My friends and family have learned to ignore my tourettes like yelps when it catches me off guard.
🥴 It's cry or laugh, so try to have a not cry day fellow #TNWarrior
Hello fellow #TNWarrior
Hope you're having a gentle and calm day 💙
@KeithUrban - I survived brain surgery so I could see you tonight in Eugene. Blow our minds. Oh and hoping you play Who Wouldn’t Wanna Be Me - my favorite. #GraffitiUWorldTour #KeithUrban #TNWARRIOR
