#Crime101 is the next movie playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#WeedyWednesday #NEISvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies

Patents With Power (@ptswithpower) • Threads, Say more 305 Followers • 24 Threads • Patient-scientist fighting for medicine based in SCIENCE; NOT BIAS⚡Calling out harmful healthcare culture⚡Breaking down difficult doctor behaviour✍️🧐. See the latest...

I'm still here, but you can also join me for more in-depth conversations over on threads if you like 😊 (500 character count - yess finally! 😆)
⚡ www.threads.com/@ptswithpower #NEISvoid

Don’t worry, I only have 7 appts scheduled for this week and another 7 next week 🫠

AND!! Only 6 phone call so far this week…not sure how many portal messages though 😥

At least I have my audiobooks and podcasts 🎧

#NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Gastroparesis #EDS #POTS

The Quiet Weight of Chronic Illness Grief – EDSAwareness.com Living with a rare, chronic illness is profoundly isolating—not only physically, but emotionally. Even when surrounded by others, I often feel like a ghost, disconnected from the world around me. I…

"Everything hit me at once: the freedom others enjoy, the #loss of my autonomy, the rigidity of a #life ruled by symptoms. My thoughts & reality were so different, it was like we no longer spoke the same language.": buff.ly/1O8RBle

via @cppedsa.bsky.social
#NEisVoid #disability #ChronicIllness #EDS

Yes! I use #Guava to track medications, symptoms, vitals, and more! I also have an app that will alert me to barometric pressure changes so I can better prep for the day!

#NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Gastroparesis #FeedingTube #TubeFed #Tubie #EhlersDanlosSyndrome #EDS

I hate my body lately. Biggest problem is that all foods make me feel nauseated and dizzy after eating, and it doesn’t take much food to get me there so I’m not eating a lot. This has been going on like a fast remission/relapse cycle since August. Thanks, dysautonomiaaaAAA
#neisvoid #longcovid

URGENT, $1042 NEEDED TO HELP MAE STAY HOUSED! PLEASE, DONATE WHATEVER YOU CAN NOW!

#neisvoid #DisabilityCommunity #helpfolkslive #HelpSky #FundSky

Loss of Identity with Chronic Illness. Plot Twist: Sharpened Self-Worth. (A woman with two different styles within one face — one side is lined with colours, and the other side is shaded with gaudy paint like makeup.)

"My #YoungAdult years passed by in a blur with most of my good #memories shadowed by #pain. So often I would try to step into my perceived #persona only to have it fall apart, leaving me embarrassed and feeling very much like a fraud": buff.ly/jg7ICbl

#disability #ChronicIllness #NEisVoid

The movie #Passing is playing next in the #ChronicLoaf stream

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#BlackHistoryMonthAllYear #BHMAY #neisvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies

Dear body, sorry I bent over yesterday when my symptoms were milder. You are obviously well within your right to flare significantly after I had done such a heinous thing. #NEISvoid

No movement in two days and this is due today!

Please help me raise the $1042 I still need to remain housed during my SSI battle! I'm almost out of time!

$maelee21
V: @ Maelee-Johnson
PayPal.me/maeleeJ
ko-fi.com/maedaej

#neisvoid #DisabilityCommunity #helpfolkslive #HelpSky #FundSky

Layer One: When You Have Nothing Left, Start Here When you have nothing left, start with three things: sleep, food, movement. The minimum is sacred.

I didn’t land here because it was inspiring. I had nothing left.

If you’re #wrecked and running on nothing — start small:

#Sleep. #Food that doesn’t hurt. #Movement, just enough.

buff.ly/Igw7aMF

#ChronicIllness #Autoimmune #NEisVoid

#SpyxFamily is playing this morning in the #ChronicLoaf stream

Hop in and watch with us @ mzelo.com/app/rooms/ch...

#wakenbake #morningcartoons #anime #NEISvoid #mecfs #spoonie #animation #medicalmarijuana

I went through a lot, and have more than earned the moments where I can allow myself to rest and recover, be sick when I am sick, and be well when I am well.

#cptsd
#neisvoid
#bipolarsky
#recoveryposse

Why does everything my body does (or doesn't do) trigger symptoms that trigger flares, that trigger other symptoms and flares?

#NEISvoid

#Paradise is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#neisvoid #insomnia #ChronicPain #DisCo #ForTinu #spoonie #cannabiscommunity

Exclusive | Doctors dismissed my agonizing symptoms for years — my misunderstood condition affects 190M people Kristina Kasparian’s pain was unbearable. She couldn’t shower without vomiting from the strain, couldn’t pull up her underwear or tie her shoes. But doctors brushed it off as IBS or anxiety.…

“Most people go thru life dreading a serious #diagnosis & #surgery. I spent my formative years begging for both. At 30, while my peers were advancing their careers & growing their families, I couldn’t shower without vomiting.”: buff.ly/xhERJk1

from @nypost.com
#ChronicIllness #NEisVoid

#TheRiseandFallofReggieDinkins is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#comedy #Hotties #NEISvoid #mecfs #DisCo #ForTinu #HottieNights #spoonie

Marooned on Bed Island Hi! It’s been a while since I last shared here. Profound and debilitating fatigue has been my constant companion for over a year now. Add to that a growing list of chronic pains and I no longer hav…

I put Bed Island into a few more words. #NEISvoid

Hop into the #ChronicLoaf stream to watch Miss Mimi's #Dragvestigations series with us this afternoon

mzelo.com/app/rooms/ch...

#NEISvoid #TransDayofVisibility #DisCo #WomensHistoryMonth #spoonie #cannabisculture #comedy

#MigraineChat #NEISVoid

I just got an ADA accommodation for noise canceling headphones. Any suggestions for what to get?

a cartoon of a man with a monkey 's face on his face ALT: a cartoon of a man with a monkey 's face on his face

Season finale episodes of #TheDarwinIncident are playing now in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#anime #animation #neisvoid #mecfs #DisCo #ForTinu #spoonie #cannabiscommunity

I'd love some tips on books about disability history, preferably about eugenics and pandemic, Europe > America, and if possible how it ties in to politics and rethoric today.
Preferably in Swedish or Spanish, but English is fine (my dad reads the first languages easier).
#NEISvoid #PwME #PostCovid

a woman is sitting in front of a computer and says did you bring any snacks . ALT: a woman is sitting in front of a computer and says did you bring any snacks .

#StarTrekDiscovery is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#StarTrek #scifi #neisvoid #insomnia #ChronicPain #DisCo #ForTinu

Sometimes I feel a little like Paula I met with my rheumatologist again. Now that this was the second appointment, and we’ve moved onto exploring treatment, I feel like I can actually call him my rheumatologist. It means a lot t…

"I have spent the last few years constantly physically #suffering while having my hopes for relief raised and then dashed over & over again. It’s no wonder that I don’t trust, that I expect #disappointment.": buff.ly/03UgKXG

by Heidi Hall
#NEisVoid #ChronicIllness #InvisibleIllness

a cartoon character from inside out laying on a blue surface Alt: a cartoon character from inside out laying face down on a table while saying yay and half heartedly waving a little flag

My GP, looking at my test results: "so it's definitely not just in your head but I have no idea what it could be"
#NEISVoid

She is Me There are days when I wake into a stillness I don’t recognise.

"There are versions of me I will never meet..These unlived #futures weigh on me like unanswered letters buried at the bottom of a desk drawer." (She is Me): buff.ly/vKCKnqT

by @leighlouharper.bsky.social
#ChronicIllness #disability #NEisVoid #SelfIdentity #ChronicLife #InvisibleIllness

#ZIWE's interview of Leslie Jones is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#WomensHistoryMonth #NEISvoid #mecfs #DisCo #cannabisculture

#NEISVoid

Had primary care doctor followup today. Finally got rheumatologist refferal after deserving one for 16 years. I keep finding more things that line up with hEDS hypermobile Ehler Danlos Syndrome.

I have always had really bent fingers, clinodactyly

#NEISvoid #Disability #Chronicillness