Super grateful that @thesicktimes.org republished my Canary op-ed
l.gourl.es/l/56898fa8cc... and the include the CTV campaign. I've been really struggling so this is a lovely bright light
#myalgicE #disability #sicktimes #Canada #longcovid
Posts by Madelinenerd
Terrible tightrope - new #podcast episode
open.spotify.com/show/0oNLwzI...
#myalgicE #disability #canpoli #bcpoli
Walk Softly And Carry A Big Stick: new #podcast episode
open.spotify.com/show/0oNLwzI...
#myalgicE #disability #canpoli #bcpoli
Terrible tightrope - new #podcast episode
open.spotify.com/show/0oNLwzI...
#myalgicE #disability #canpoli #bcpoli
Oops forgot the #podcast episode link open.spotify.com/episode/51xh...
boy my brain is in great shape today lol
#myalgicE #disability #longcovid #brainfog #podcast #EasterMagic #Easter
New #podcast episode; #Easter Musings
Recent good things I'm #grateful for but Also still present obstacles
Also housekeeping gfm friend set up to help get bad air sorted gofund.me/73aeb36e5
& News campaign docs.google.com/document/d/1...
#myalgicE #disability #spring #longcovid
New captcha scam. Be safe out there. If a #captcha asks you to punch in a bunch of letters especially with some other keys don't do it! See link
www.idtheftcenter.org/post/new-cap...
The Sick Times: "Marcia: Life with severe ME is like screaming into the void"
Written by Marcia Doherty
thesicktimes.org/2026/03/20/m...
Still feeling very much under pressure. Doing my best to navigate it but it's extra crunchy hard right now
New podcast episode: under pressure
open.spotify.com/episode/0Lka...
#myalgicE #disability #longcovid #humanrights #Canada
The image is a selfie of Marcia Doherty, a woman who sits in a medical bed in a medical facility. She wears a blue and white striped hat, stylish tan glasses, an white N95 mask, and a white and black t-shirt. The text reads, “The Sick Times. Marcia: Life with severe ME is like screaming into the void. By Marcia Doherty.”
Hope is tricky business. On the one hand it keeps me alive, it fuels my tenacity, it helps me take a deep breath and do my best to understand other people’s perspective so I can better build communication bridges. But begging for my life on the internet, staying alive month to month on donations from strangers, attempting to get a foothold of logic in policies and ways of thinking that are entrenched in illogical bias: these rob hope of its strength. And when you’re approved for Medical Assistance in Dying (MAiD) on quality of life, despair is an easy thing to teeter into.
Republished from @thecanaryuk.bsky.social: Marcia Doherty (@madelinenerd.bsky.social) is a 45-years long Epstein-Barr virus (EBV) myalgic encephalomyelitis (ME) patient fighting to survive in Canada. She writes about the Herculean effort it takes day by day for her to simply survive. bit.ly/41mRJeB
Super grateful that @thesicktimes.org republished my Canary op-ed
l.gourl.es/l/56898fa8cc... and the include the CTV campaign. I've been really struggling so this is a lovely bright light
#myalgicE #disability #sicktimes #Canada #longcovid
@thesicktimes.org (finally got it to at you correctly! But it's not letting me edit my post)
New podcast episode: light in darkness
open.spotify.com/show/0oNLwzI...
#myalgicE #disability #canpoli #longcovid #kindness
New podcast episode: Leadership And Power Musings
open.spotify.com/show/0oNLwzI...
#myalgicE #disability #canpoli #longcovid #power
New podcast episode pt 6: Ides of March squish squash
open.spotify.com/episode/79gV...
#myalgicE #disability #canpoli #longcovid #idesofMarch
I was told that if 12 people write to a news source to ask for the same story that it will happen🤞
Template docs.google.com/document/d/1...
Full info in gfm update gofund.me/6d981312
#myalgicE #disability #canpoli #longcovid #friday13th #Fridaythe13 I choose/believe it's lucky
New podcast episode pt 5: pi Day squish squash
open.spotify.com/episode/3Wuw...
#piday #myalgicE #longcovid #disability #myalgicencephalomyelitis
New podcast episode- pt4: Friday the 13th squish squashed, The hits keep coming
open.spotify.com/show/0oNLwzI...
#myalgicE #disability #canpoli #longcovid #friday13th #Fridaythe13 I choose to believe it's lucky. Usually..., today the universe seems to be attempting to make me its chew toy
I was told that if 12 people write to a news source to ask for the same story that it will happen🤞
Template docs.google.com/document/d/1...
Full info in gfm update gofund.me/6d981312
#myalgicE #disability #canpoli #longcovid #friday13th #Fridaythe13 I choose/believe it's lucky
New podcast ep- pt3: squish squash brick wall
open.spotify.com/show/0oNLwzI... (Note, Silly app isn't generating the link correctly. Takes you to the podcast but not the specific episode. Just scroll to pt3. Le sigh)
#myalgicE #disability #canpoli #chronicpain #meaction
New podcast ep- pt3: squish squash brick wall
open.spotify.com/show/0oNLwzI... (Note, Silly app isn't generating the link correctly. Takes you to the podcast but not the specific episode. Just scroll to pt3. Le sigh)
#myalgicE #disability #canpoli #chronicpain #meaction
New podcast ep- pt2: squish squash pain meats dreams middle of the night episode
open.spotify.com/show/0oNLwzI...
#myalgicE #disability #canpoli #Canada #meaction
New podcast episode: squish squashed
open.spotify.com/episode/0oxR...
#myalgicE #disability #canpoli #Canada #meaction
new podcast episode: Broken glass and other heartaches
open.spotify.com/show/0oNLwzI... #canpoli #disability #MyalgicE #pwME #MECFS #MEAction
YouTube #livestream recording of my #petition presentation to my MLA/BC premier @DavidEby office today, January 21st www.youtube.com/live/PN6-ewF...
#MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #longviral #MEAction #Canada #Vancouver #bcpoli
YouTube #livestream recording of my #petition presentation to my MLA/BC premier @DavidEby office today, January 21st www.youtube.com/live/PN6-ewF...
#MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #longviral #MEAction #Canada #Vancouver #bcpoli
Virtual petition presentation i
to my MLA, premier David Eby's office PST 11-11:30am YouTube live youtube.com/@iammadeline...
Petition open til 9am Wed bit.ly/Marcia_petit...
#myalgicE #disability #longcovid #myalgicencephalomyelitis #Canada #mecfs #canpoli
Virtual petition presentation i
to my MLA, premier David Eby's office PST 11-11:30am YouTube live youtube.com/@iammadeline...
Petition open til 9am Wed bit.ly/Marcia_petit...
#myalgicE #disability #longcovid #myalgicencephalomyelitis #Canada #mecfs #canpoli