I loved that a social media study made it into the #ACR25 pediatric year in review

There is so much untapped potential to understand how to reach out to people living with rheumatic disease and provide education and combat misinformation

Thank you <3

I look forward to hopefully seeing you :)

If you wear your TS shirt, I'll wear my Iron Maiden shirt \m/

My Mini Rant About the Frustrations of a Living with Invisible Disability: A Rheumatoid Arthritis Patient Speaks Out Learn more about a rheumatoid arthritis patient’s take on why it’s challenging to live with an invisible disability that is misunderstood by others.

Invisible ≠ Imaginary.
“You might not be able to see our pain — physical and mental — but we sure can feel it.” — @chroniceileen.bsky.social

👉 Read the full story:
creakyjoints.org/living-with-...
#InvisibleDisabilitiesWeek #InvisibleNoMore #ChronicIllness

💬 #Rheumatologists Who Create Content

The information goes beyond our short appointments we wait months for. Following rheumatologists who make content is a great way to get more out of your rheumatology care and understanding.

👉 Read the full list on my blog - chroniceileen.com/2025/10/16/7...

My Mini Rant About the Frustrations of a Living with Invisible Disability: A Rheumatoid Arthritis Patient Speaks Out Learn more about a rheumatoid arthritis patient’s take on why it’s challenging to live with an invisible disability that is misunderstood by others.

You can’t see my pain — but I still feel it every day. 💔 Why living with an invisible illness is exhausting & misunderstood →
creakyjoints.org/living-with-...
@chroniceileen.bsky.social

Rheumer Has It: Axial Spondyloarthritis Myths v. Facts with Dr. Jean Liew - Arthritis Life Listen Now: Watch Now: Summary: Curious about axial spondyloarthritis and how it affects people beyond the typical stereotypes? Join us on our latest episode of ‘Rheumer Has It’ with Dr. Jean Liew as ...

There was also a plug for @arthritischeryl.bsky.social & @chroniceileen.bsky.social 's Rheumer Has It podcast

arthritis.theenthusiasticlife.com/2025/08/21/r...

Dating with a chronic illness means protecting your heart and your spoons. 💙
Read @chroniceileen.bsky.social tips here: creakyjoints.org/about-arthri...
#ChronicIllness #RheumatoidArthritis #DatingWithChronicIllness

Social Media and Rheumatoid Arthritis: The Good and The Bad Eileen Davidson shares her journey navigating both support and misinformation online while offering tips for finding reliable resources.

“Some people might criticize u for taking #medication or accuse u of complaining about your #illness ..impt not to take those comments to heart — people who lash out like that are likely struggling w their own issues.”: buff.ly/UceEfGV

via @creakyjoints.bsky.social / @chroniceileen.bsky.social
#RA

Navigating Single Motherhood and Rheumatoid Arthritis A single mom shares her journey of raising a child while managing rheumatoid arthritis, highlighting the challenges and silver linings.

“His understanding of #health, #kindness toward those with #disabilities, and willingness to lend a hand are qualities that many #children don’t develop unless they’ve experienced #chronicillness firsthand.": buff.ly/RLmoJbW

from @creakyjoints.bsky.social / @chroniceileen.bsky.social

Please Stop Saying That My Arthritis Diagnosis ‘Could Be Worse’ “Having an illness is not a competition. Comparing my illness to someone else's is dismissive and unsupportive,” says arthritis patient advocate Eileen Davidson.

“ #JointPain can make it difficult to simply walk around or go up and down stairs, let alone do daily chores or exercise. #Arthritis is a leading cause of #disability, making many people..no longer able to #work.": buff.ly/4eckbnV

via @creakyjoints.bsky.social / @chronicEileen.bsky.social
#NEisVoid

The 11 Moods of Rheumatoid Arthritis — and How I’ve Learned to Cope with Them Learn about one RA patient’s struggle with the mental health issues that come with rheumatoid arthritis, and she learned to cope with her depression and emotions.

“ #RA makes me feel envy of those who can hold down a #FullTimeJob. I never thought I would miss #working so much. RA makes me feel envy of those who have the #support they need because their #disease has empathy.": buff.ly/ZaA4U7r

from @creakyjoints.bsky.social / @chronicEileen.bsky.social

Navigating Life with Chronic Illness: 13 Lessons Learned On the ninth anniversary of her rheumatoid arthritis diagnosis, patient advocate Eileen Davidson reflects on lessons learned.

“It wasn’t until I personally became #disabled that I truly grasped the concept of #ableism ..I found myself belonging to one of the largest groups frequently subjected to #prejudice.": buff.ly/LBERnjR

from @creakyjoints.bsky.social / @chroniceileen.bsky.social
#ChronicIllness #awareness

From Diagnosis to Treatment: How Diagnostic Medicine Can Change Rheumatoid Arthritis Care - Chronic Eileen Presentation at the Lab Q Con in Vancouver

As always, I put my presentation into a blog post. #PatientAdvocate

chroniceileen.com/2025/06/17/f...

Why I Post on Social Media About My Chronic illness How sharing health struggles and wins on social media helps one patient advocate raise awareness, connect with peers, and stay motivated.

"It might be my way of saying “Hey, don’t forget about me. I haven’t forgotten about you; I am just dealing with something at the moment.”": buff.ly/ChMNzBY

via @creakyjoints.bsky.social / @chroniceileen.bsky.social
#ChronicIllness #InvisibleIllness #DisabilitySky #ChronicPain #ChronicallyIll

Only returned from #EULAR2025 yesterday and today I have an early morning speech to give.

The role of a #PatientAdvocate never ends, plus this is my passion, who cares about jetlag.

Who will I see at #EULAR2025 next week?

Social Media and Rheumatoid Arthritis: The Good and The Bad Eileen Davidson shares her journey navigating both support and misinformation online while offering tips for finding reliable resources.

“I’ve learned that what works for 1 person may not work for another, which can be hard for those without a #ChronicIllness to #understand. They might think there’s a 1-size-fits-all solution.": buff.ly/a9AtWgc

via @creakyjoints.bsky.social / @chroniceileen.bsky.social
#RA #PainManagement #NEisvoid

Rheumer Has it: Arthritis Myths, Stigmas, and Misconceptions - Arthritis Life Listen Now: Watch Now: Summary: If you’ve ever been told you’re “too young to have arthritis,” this episode is for you! Co-hosts Cheryl & Eileen, both of whom live with rheumatoid arthritis, discuss m...

Ever been told “you’re too young to have arthritis”? Or heard that cracking your knuckles causes it? 😑

Check out ep 2 of Rheumer Has it where @chroniceileen.bsky.social & I bust the biggest myths about inflammatory arthritis.
arthritis.theenthusiasticlife.com/2025/05/29/r...

Navigating Single Motherhood and Rheumatoid Arthritis A single mom shares her journey of raising a child while managing rheumatoid arthritis, highlighting the challenges and silver linings.

“Although living on #disability pay is tough, it’s taught him valuable #LifeLessons about money, hard work, and #compassion.": buff.ly/B2u2AEy

from @creakyjoints.bsky.social / @chroniceileen.bsky.social
#ChronicIllness #RheumatoidArthritis

My Constant Pain Went Dismissed for Years—Then I Finally Got a Diagnosis Eileen Davidson had constant pain in her hands, knees, and feet. It made work and everyday life hard. It would be five years before her rheumatoid arthritis diagnosis.

The road to a #RheumatoidArthritis diagnosis is frustrating & isolating. It took years of self-advocacy to finally be heard. I recently shared my journey with Health.com, alongside 2 others, to highlight these challenges.

🔗 www.health.com/rheumatoid-a...

The 11 Moods of Rheumatoid Arthritis — and How I’ve Learned to Cope with Them Learn about one RA patient’s struggle with the mental health issues that come with rheumatoid arthritis, and she learned to cope with her depression and emotions.

“Before my #diagnosis I had no idea what #MentalHealthcare could offer me & how much I needed that #compassion. Not all #healthcare providers who save you are patching up wounds or prescribing medication.": buff.ly/liWfUE5

via @creakyjoints.bsky.social + @chroniceileen.bsky.social
#therapy

Check out our first episode! arthritis.theenthusiasticlife.com/2025/05/15/i...

Rheum-Mates unite! Chronic Eileen and @arthritischeryl.bsky.social have teamed up to bring you Rheumer Has It, a groundbreaking podcast that tackles myths, highlights the latest research, and delivers real hope for thriving with rheumatic disease. First episode out on the 15th

Please Stop Saying That My Arthritis Diagnosis ‘Could Be Worse’ “Having an illness is not a competition. Comparing my illness to someone else's is dismissive and unsupportive,” says arthritis patient advocate Eileen Davidson.

“it’s important to stop & understand that #arthritis is serious. Assuming “it #CouldBeWorse” may prevent people fr considering what it’s like to live with arthritis, or to learn about all the comorbidities": buff.ly/X4szvZU

via @creakyjoints.bsky.social & @chronicEileen.bsky.social
#ChronicPain

What It’s Like to Have Both Rheumatoid Arthritis and Osteoarthritis at Age 35 Learn what it’s like to live with both rheumatoid arthritis and osteoarthritis, chronic pain conditions that affect the body in similar and different ways.

"The biggest similarity between RA and OA is that they’ve both taken parts of my life that I won’t get back — a job I loved, activities I enjoyed, and simple physical freedoms." - @chroniceileen.bsky.social
creakyjoints.org/support/livi...

My Dad has Multiple Myeloma, blood cancer. We found out how advanced it is tomorrow. He's looking to come back to Canada to stay with me for treatment.

The Letter I Wish I Sent Myself the Day I Was Diagnosed with Rheumatoid Arthritis Read about the letter that rheumatoid arthritis patient Eileen Davidson wishes she could sent herself to read the day she was diagnosed with RA.

Dear self: ‘It's not going to be easy and there is no manual on how to do this but, you want to live — not just survive, right?’
creakyjoints.org/living-with-...
@chroniceileen.bsky.social

17 Things You Should Never Say to Someone Living with Arthritis Patient advocate Eileen Davidson finds these all-too-common phrases rude, naive, judgmental, and unsupportive — and you may too.

NEVER say these to someone living with Rhreumatoid Arthritis!
creakyjoints.org/about-arthri...
@chroniceileen.bsky.social