She is Me There are days when I wake into a stillness I don’t recognise.

"There are versions of me I will never meet..These unlived #futures weigh on me like unanswered letters buried at the bottom of a desk drawer." (She is Me): buff.ly/vKCKnqT

by @leighlouharper.bsky.social
#ChronicIllness #disability #NEisVoid #SelfIdentity #ChronicLife #InvisibleIllness

#ZIWE's interview of Leslie Jones is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#WomensHistoryMonth #NEISvoid #mecfs #DisCo #cannabisculture

#NEISVoid

Had primary care doctor followup today. Finally got rheumatologist refferal after deserving one for 16 years. I keep finding more things that line up with hEDS hypermobile Ehler Danlos Syndrome.

I have always had really bent fingers, clinodactyly

#NEISvoid #Disability #Chronicillness

Me, last night, reveling in blissful ignorance:
Let’s get takeaway from that local place!

Me, today, as a far, far less naïve person:
Me/cfs + food poisoning = a new & creative level of hell

(One of our sons got the same dish & he’s also still in bed reconsidering his life choices)

#neisvoid

Please help me continue to keep this uplifted so that I can reach my goal in time this month🙏🏽💚
#neisvoid #mecfs #DisCo #spoonie #helpfolkslive #ChronicPain #stayhoused #ChronicLoaf

a woman with curly hair is looking at the camera ALT: a woman with curly hair is looking at the camera

#Grimm is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#MidnightMysteries #insomnia #DisCo #ForTinu #spoonie #MurderMystery #Fantasy #neisvoid #ChronicPain

I either hurt myself breathing or by having a blanket lay on me wrong. Not sure which. I think I deserve an award for either, though. #NEISvoid #hypermobile #ow

I'm not strong or brave, I didn't choose this brain injury - #jumbledbrain I know it sounds ungrateful, but don't call me brave because I live with a brain injury. What is the alternative? It's not a choice, it's just surviving.

“At this stage I doubt my #MentalHealth will ever be perfect. Just that currently I’ve just not got a date set with the self destruct button.": buff.ly/mOqCSKN

by michelle_munt
#TBI #BrainInjury #ChronicIllness #NEisVoid

Next in the #ChronicLoaf stream we're watchin the #AmericasNextTopModel20YearsLater special

Then we're starting the new #SomethingVeryBadisGoingToHappen netflix series

Hop in and watch with us @ mzelo.com/app/rooms/ch...

#WomensHistoryMonth #NEISvoid #ForTinu #chronicpain #DisCo

@achronicvoice.com this article misses the mark

This article has a TON of preaching, toxic postivity, and even humblebragging.
It doenst belong under #neisvoid which was created NOT to do these things.

Waiting for my anti nausea meds to kick in so I can try to get some sleep #neisvoid

#Challengers just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#WomensHistoryMonth #NEISvoid #mecfs #SexTalkSunday #ForTinu #MutualAidMovies #ChronicPain

Groceries delivered! I have food for the next few days. Now I can sleep. #NEISvoid

#TheSecretsoftheTwelveTribesCult documentary is playing in the #ChronicLoaf stream now

mzelo.com/app/rooms/ch...

#NEISvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies #cannabiscommunity

How to Grow Rich When Chronic Pain is Your Reality Chronic pain changed my life. But it didn’t cancel my abundance. What if being rich has nothing to do with money? And everything to do with how we still what’s still here. Living with c…

“Some days my #life feels like a series of unfortunate events. Many of those events are inconsequential to the general population. But to my loose joints they are devastating.": buff.ly/Zb79ilO

by sunbeamacres
#ChronicIllness #ChronicPain #disability #NEisVoid

I am so tired today. I need to stay awake enough for a small grocery delivery this afternoon, but I fall asleep every ten minutes or so. I'll sleep and set an alarm. #NEISvoid

S1E1 of #Insecure is starting in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#comedy #WomensHistoryMonth #ForTinu #NEISvoid #mecfs #DisCo #ChronicPain #cannabisculture

a cartoon man leaning against a wooden wall Alt: a cartoon man who is tulio from road to El Dorado hitting head gainst a wooden wall over and over in frustration

I've been talking about this for years, but it feels like no one cares as much as they care about other things they deem more urgent and important. My survival is kinda important to me at least

My current plan to fix the system :see gif👇🏻

#NEISVoid #Chronicillness #Disability #Medsky #SSA #ImTired

S1E1 of #TheResidence just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#insomnia #MurderMystery #NEISvoid #spoonie #cannabisculture #WomensHistoryMonth

#NEISvoid

Things Chronically Ill People Do Just To Function Every Day - Cracked Nails & Split Ends A personal look at the invisible labour of chronic illness, pain and fatigue. The quiet coping strategies people use just to get through the day.

“Functioning is not the same as #thriving. & #functioning usually comes with a long list of small, barely noticeable things u do just to get thru the day. Things other people dont clock. Things that r actually #survival tools.”: buff.ly/I0880pQ

by Tanyahindes
#disability #ChronicIllness #NEisVoid

I was so tired today. I wanted to go to the protests, but there was no way. Some days it is just really depressing being this tired. #NEISvoid

#GirlFromNowhereTheReset is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#NEISvoid #mecfs #DisCo #ForTinu #spoonie #ChronicPain #cannabiscommunity

Lactose may makes it worse. That part I don’t get. Last time it was milk chocolate, this time it was paneer cheese. This is new post Covid and was why I thought I might have food intolerances or MCAS. Pain for two days in the gut, and two in the neck 🤕 #NEISVoid

The new #Anaconda movie is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#NEISvoid #comedy #mecfs #DisCo #MutualAidMovies #ForTinu #spoonie #cannabisculture

The New Battle: How Brain Injury, FND, and Memory Loss Broke My Body But Not My Fatherhood. The writings of Dusty Wentworth—exploring politics, social commentary, philosophy, and life with clarity, honour, and depth.

“Losing over a decade of #memories is like having the foundations of your house ripped away..I lost shared history with my #family, the #context of my adult life, &, in many ways, the continuity of who I was.”: buff.ly/a9Dpv82

by Dusty1wentworth
#FND #aneurysm #NEisVoid

Eating Into a Leaky Bucket - Trail Provisions Drug-Induced Nutrient Depletion and the Chronic Illness Tax Nobody Mentions

Doing everything "right"?

Diet, prep, discipline.

But still crashing?

For me meds were like a leak in a bucket...

Draining nutrients faster than I could replace them.

My experience with the "Chronic Illness Tax" nobody mentions:

buff.ly/ESH2UGh

#ChronicIllness #NEISvoid #Spoonie #MedBison

the cherry on top is when "being excited about doing something fun" is apparently the last straw that triggers the flare that makes you miss the cool thing

#NEISvoid

istg one of the hardest things about chronic illness is the constant

"I made plans and I was really excited...

BUT my body decided to veto them so now I have to cancel

Now today's agenda is:

1. survive
2. try to feel less shitty"

#NEISvoid