..Post Viral Fatigue Syndrome.
This is a BIG problem as without the term #LongCovid
-ppl can't find the supports & information available from charities etc to help them manage their journey & illness
-can't find LC community for emotional support
-can't be counted& included in research
#Ireland
As predicated;.
Ppl no longer test for #Covid ➡️
Ppl develop #LongCovid but don't know that's what it is ➡️
Many of them getting lost in a mess of unnecessary tests, medical gaslighting & inappropriate psychiatric involvement.
If they're 'lucky' will get diagnosis of PVFS..
JAMA Pediatrics published a patient info page about Long COVID in children… “Long COVID is common, affecting up to 10 to 20 per cent of children with a history of COVID-19. … this is higher than the number of children with asthma…”
TY @blakemurdoch.bsky.social !
edmontonjournal.com/opinion/colu...
Black background with logos for the APPG on Long Covid and APPG on Myalgic Encephalomyelitis (ME) across the top. On the right is a photograph of Jo Platt MP. Text consists of a quote saying "I suffered with Long Covid and ME. I wanted nothing more than to work. I was able to be supported back into employment because I managed myself. We've really got to get this bit right. Because you cannot just force people back". Below the quote it says Jo Platt MP Chair of the APPG on Long Covid and APPG on ME.
📣 1/2. Minutes available from joint meeting of APPG on #LongCovid & APPG on #ME!
🔴 Stephen Timms MP (DWP) spoke on proposed welfare reforms, with APPGs raising concerns
🔴 Research talks from Prof. Danny Altmann, Dr. Binita Kane, Prof. Chris Ponting & Prof. David Strain
Link ⬇️
This Sunday, June 22nd, I'll be co-hosting this online support meeting.
#LongCovid
IMAGE DESCRIPTION: The Houses of Parliament and Big Ben with logos of APPG on ME, APPG on Long Covid, Action for ME, Long Covid Support, and the ME Association. A QR code is included. Text reads: “Joint-ME & Long Covid APPG meeting minutes are available.”
1/4 📢 The official minutes from the first joint ME and Long Covid APPG meeting are now available!
🔗 appgme.co.uk/meetings/min...
The Trump Organization's newly-announced T1 smartphone will likely be made in China, experts said, despite claims the device will be manufactured in the U.S.
The SAVE ACT suppresses the votes of married women. The GOP veils this horrific bill saying it prevents non-citizens from voting. That’s a lie. Non-citizens are already barred from voting.
This bill is intended to strip away a married woman’s rights.
#Pinks #OneV1
⬇️
www.forbes.com/sites/hollyc...
#ProudBlue
CALL YOUR REPS!
www.npr.org/2025/04/13/g...
PAGING RFK Jr— “The assumption that children and teens recover completely from COVID has been shattered by mounting evidence that their developing respiratory systems are uniquely vulnerable to long-term damage.”
rollingout.com/2025/06/03/l...
Long COVID is now the most prevalent chronic disease in American kids, surpassing ASTHMA. Children/ teens are NOT immune to damage from covid.
"Long COVID is common, affecting up to 10% to 20% of children with a history of COVID-19."
That means ANY covid infection.
jamanetwork.com/journals/jam...
“3 of the study’s authors write that almost 6 million US children could be affected by long COVID, which is greater than number of kids with asthma”
6 million chronically ill kids
How many will be gaslit? Pushed to play through the pain? Told they’re “fine”?
What a great time to restrict vaccines
What about pregnant woman? #COVID infection in pregnancy is shown to impact fetal brain development via maternal and placental immune activation. Several adverse neurodevelopmental outcomes have been reported. #NeuroCovid #LongCovidKids
www.cell.com/trends/molec...
👏👏👏 to LCAI’s co-founder @sarahoc1.bsky.social and the other mothers of children with #LongCovid in this excellent article
‘Between 5% and 10% of children and adolescents who get covid develop long covid.’
#TreatLongCovid #speirgorm #LongCovidKids #LongCovidAwareness #LongCovidIreland
Every work place, every classroom, every pub a d every event space should have HEPA filters.
They can be fitted to most air con systems.
Our monthly online support meeting (at LCAI) for spouses/partners and carers is tomorrow, Sunday at 7pm Irish time.
Follow LCAI at @lcaireland.bsky.social
Reposts much appreciated
#LongCovid
#pwME #pwLC
#MECFS #LongCovidKids #Ireland #Irish #ChronicIllness
#LongCovid
Free event Q&A
“A study in Finland found air purifiers in day cares reduced children’s illnesses by 30%”
Clean air in schools & childcare is a no brainer to prevent airborne diseases.. so that children are in school & parents are at work. And it’s the law now in Ireland
www.irishexaminer.com/opinion/comm...
I personally have seen the damage that undiagnosed ADHD does do a person's life. And in my experience the diagnostic process was extremely thorough and strict..ie careful.
I have serious concerns over the opinions of this neurologist. Her previous book was pure medical bias
Breast cancer survival rate in 1920: 5% Survival rate in 1960: 25% Survival rate in 1990: 64-80% Survival rate in 2025: 91% Research did this. Cutting funds to the NIH, cutting HHS staff, and freezing federal funds to academic institutions will take us back to 1920
Breast cancer survival rate in 1920: 5%
Survival rate in 1960: 25%
Survival rate in 1990: 64-80%
Survival rate in 2025: 91%
Research did this. Cutting funds to the NIH, cutting HHS staff, and freezing federal funds to academic institutions will take us back to 1920. Genocide for billionaire tax cuts
Salon logo Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again Budget cuts and the dismantling of federal agencies are making it harder for patients with long COVID and ME/CFS By Elizabeth Hlavinka Staff Writer Published April 1, 2025 5:30AM (EDT) Updated April 1, 2025 12:55PM (EDT)
🧵
Good to see this article with some interesting people from the field quoted (e.g. Lipkin, Pollack, Sieverts, @exceedhergrasp1.bsky.social):
"Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again"
www.salon.com/2025/04/01/a...
#MEcfs #LongCovid
1/
The risk of long covid remains Eric Topol, a professor of translational medicine and the executive vice president of Scripps Research, said he knows people who have been infected within the last three to four months who have long covid. “It’s nonstop. People are still getting it,” he said.
Great piece in @washingtonpost.com:
“The risk of #LongCovid remains:
@erictopol.bsky.social.. said he knows people who have been infected within the last three to four months who have long covid. ‘It’s nonstop. People are still getting it,’ he said.”
Reducing the Risk of Long COVID in Kids: Why Reinfection Matters and What We Can Do.
By The John Snow Project @johnsnowproject.bsky.social
johnsnowproject.org/primers/redu...
(1/4) Long COVID showed me the bottom of American healthcare. My reporting for The Atlantic is out today.
www.theatlantic.com/health/archi...
Important to also remember that getting Covid once a year is common, so this effect may be essentially continuous. Add in the risk of Long Covid with each infection, and it's clear that global population health will inexorably decrease as time passes.
www.cidrap.umn.edu/covid-19/cov...
This is still a thing!
It would be shocking, except it isn't anymore,
#women #sexism #carolinecriadoperez
#medicalbias #genderbias