Exciting news! The LAM Foundation is now a remote team nationwide as of May 15th. Same support, new reach! Learn more: www.thelamfoundation.org/faq-tlf-move-to-remote/ #RareDisease #CureLAM #PatientSupport #NonProfit

Congratulations to Dr. Caroline Le Poole, PhD, from Northwestern University Feinberg School of Medicine, for receiving the Pilot-Feasibility Award. Her research will focus on Rapamycin-resistant CAR T-cells for LAM.

#RareDisease #MedicalResearch #ResearchInnovation #CureLAM

Join our supportive network of scientists, clinicians, and LAM patients. Receive valuable resources and stay informed on the latest LAM-related news and events.

https://ow.ly/aKJN50XjO2S

#Curelam #LAM #lymphangioleiomyomatosis

We are pleased to share that there is a new LAM Clinic at Inova Fairfax Hospital in Falls Church, VA. Dr. Zein Kattih serves as Clinic Director and is committed to providing informed clinical care for patients with LAM.

Locate a LAM Clinic https://ow.ly/OKaE50YBgjn

#CureLAM

Thanks to the LAM community, a UW study found stress urinary incontinence is common in women with LAM, and most aren’t getting help. Read more: www.thelamfoundation.org/new-research-shows-urine... #LAM #RareDisease #CureLAM

LAM Jerseys and Running Shirts Available!

Want to show team spirit in the fight to end LAM? Purchase your The LAM Foundation Easy Breathers jersey or shirt by 4/24.

https://ow.ly/OCzR50Yzlxo

#CureLAM #RareDisease #RareDisease #CyclingCommunity #RunForACause #MakeADifference

It's here! The March edition of The LAM Foundation newsletter is now available. Click here to read the latest: mailchi.mp/thelamfoundation/heres-t...

#curelam #raredisease #thelamfoundation

We are pleased to share that there is a new LAM Clinic at Northwestern Medicine in IL. Dr. Krishnan Warrior serves as Clinic Director and is committed to providing informed clinical care for those with LAM.

To locate a LAM Clinic in your area, visit https://ow.ly/gLob50YtzuC
#cureLAM

Congratulations to Dr. Khaled Tighanimine, PhD , from Harvard T.H. Chan School of Public Health, for receiving the Pilot-Feasibility Award. His research will focus on Exploiting mTORC1-mediated changes in lipid metabolism to identify novel LAM treatments.

#RareDisease #Curelam

Did you miss last week’s LAMposium in Your Living Room? We’ve got you covered! The recording is now available. Watch here: https://youtu.be/_x7GHe9HjHA

#CURELAM #LAMposium #RareDisease #RareDiseases #PatientSupport #LungHealth #MedicalResearch #Awareness #Hope #Community #Advocacy

Attention all living with LAM! Join the Patient Voice Committee: Review grants, share your perspective, and help fund impactful LAM research.
Learn more: www.thelamfoundation.org/take-action/gss-patient-...

#CureLAM #PatientVoice #LAMResearch #PatientAdvocacy #MedicalResearch

Congratulations to Dr. Ildikó Krencz, MD, PhD, from Semmelweis University, for receiving the Pilot-Feasibility Award from TLF. Her research will focus on Cellular Plasticity and Microenvironmental Remodeling in LAM: A Digital Spatial Proteomics Approach.
#WomenInScience #MedicalResearch

THANK YOU! Over 25 donors have unlocked $15,000 in support for those with LAM. Join us! give.thelamfoundation.org/give/761254/ #LAM #RareDisease #Nonprofit #GiveHope #ResearchMatters #ChronicIllness #SupportWomen #MakeADifference #MonthlyGiving #PatientAdvocacy

Congratulations to Dr. Roya Babaei Jadidi, PharmD, PhD, for receiving a 2025 Pilot Feasibility Award from TLF Grant Program. She will focus on Targeting IL-6 Signaling to Restore Alveolar Regeneration in LAM.

#MedicalResearch #WomenInScience #ResearchMatters #SupportResearch

The Easy Breathers' 13th Million Dollar Bike Ride is June 13 in Philadelphia or virtually! Join us! https://ow.ly/f75150YoF5C

#MillionDollarBikeRide #MDBR #CureLAM #EasyBreathers #RareDisease #Fundraiser #BikeRide #CyclingEvent #PhillyEvents #MakeADifference #SupportRareDiseases

Women’s health cannot leave rare diseases behind As women’s health gains long-overdue attention, rare diseases like lymphangioleiomyomatosis remain sidelined. A physician living with LAM and a basic scientist explain why patient-driven, trial-ready ...

#RareDiseaseDay research spotlight: Lymphangioleiomyomatosis (LAM)

Lyndsay Hoy (@thelamfoundation.bsky.social) & @marinaholz.bsky.social are helping guide research toward a cure. Read about what’s possible when basic science, clinical translation and community align: www.asbmb.org/asbmb-today/....

CHALLENGE EXTENDED! We need 15 monthly donors by March 6th to unlock $15,000! give.thelamfoundation.org/give/761254/
#RareDiseaseDay #curelam #LAMFoundation #DonateNow

Recap: Rare Disease Week on Capitol Hill - The LAM Foundation Kate Racoff Musgrove, PhD was one of fifteen LAM advocates who traveled to Washington, DC for Rare Disease Week, February 23–28. As a woman living

Kate Racoff Musgrove, PhD, a LAM advocate, took over our Instagram during Rare Disease Week in DC. Read her full event recap here: www.thelamfoundation.org/recap-rdw-on-capitol-hil...

#LAMAdvocate #rarediseaseday #raredc2026 EveryLife Foundation for Rare Diseases

Donate by 11:59 PM PT to double your impact for those living with LAM. give.thelamfoundation.org/give/758534/ #LAM #RareDisease #RareDiseaseDay #LAMFoundation #Fundraiser #DoubleYourImpact #GiveHope #SupportLAM #CureLAM

This is your friendly reminder that today is #RareDiseaseDay. And TLF has a generous donor willing, ready, and able to match your gift made by 11:59 pm tonight.

Please help us reach our goal of $15K to unlock $15K in matching funds!

https://ow.ly/VV7A50Ym88k

#CURELAM

A routine CT scan in 2020 revealed something I never expected: LAM. Google filled me with fear, but The LAM Foundation gave me hope. Because of decades of donors, I have access to a treatment. That’s why I’m a donor. My gift may be small, but it’s steady. I give because someone gave before me, and now it’s my turn to pay it forward.

Unlock $15,000 in matching funds this #RareDiseaseDay! Support LAM patients and research—give now to double your impact!

give.thelamfoundation.org/give/758534/

#LAMAwareness #CureLAM #DoubleYourImpact #GiveHope #MakeADifference

Get Ready! Tomorrow is #RareDiseaseDay

Share:
Raise awareness by sharing this graphic on the signs and symptoms of LAM.

Donate:
Make your gift by 11:59 PM tomorrow to help us unlock a $15K match from a generous donor.

https://ow.ly/NuP850YmHpF
#showyourstripes

Could you unlock the match? When 25 new donors say YES to monthly gifts by Feb 28, The LAM Foundation gets $15,000!

give.thelamfoundation.org/give/761254/

#RareDiseaseDay

Recording available: Leveraging the LAM Cell Atlas for Scientific Discovery.

Watch Dr. Yan Xu demo LCS here: https://youtu.be/U7RQCUo1L1M?si=e9fM4dWdP7irKcnV

#LAM #LAMResearch #RareDisease #SingleCell #MedicalResearch #LungDisease #TheLAMFoundation #ResearchMatters #CureLAM #Bioinformatics

Clinician Spotlight: Matt Koslow, MD shares his mission caring for LAM patients. Read more: https://ow.ly/Fp4550YhlrS #RareDisease

Every breath is a challenge for those with LAM. While VEGF-D blood tests help some, many still need lung biopsies. Now, a new study has led to LAMScore—a tool that could help diagnose LAM without surgery. https://ow.ly/vou850YfeBe
#LAM #RareDisease #ResearchMatters #Pulmonology

Registration is now open!

Dr. Moss and the LAM team from the NIH will describe what to expect when you participate in the protocols and will provide updates about ongoing research studies.

Register: https://www.tfaforms.com/5210862
#RareDisease #PatientAdvocacy #MedicalResearch #NIH #CureLAM

Meet the co-chairs of TLF Early Career Researcher Network (TEN): Dr. Krencz & Dr. Hachem! TEN supports #LAM researchers with collaboration, community, and career growth.

Learn more: www.thelamfoundation.org/wp-content/uploads/2026/...

#womeninscience #CureLAM #science

Donate to Rare Disease Day FY26 Join me for #RareDiseaseDay during February in supporting The LAM Foundation’s mission to find a cure for lymphangioleiomyomatosis (LAM), one of 6000 rare diseases worldwide. This rare lung disease impacts thousands of women around the world. Raise awareness and support our cause today:

Every day, women hear three letters that change everything: LAM.
For them, every day is Rare Disease Day.

On 2/28, your impact can go even further. An anonymous donor will match our donations if we reach $15K.

Give today
give.thelamfoundation.org/give/758534/

Women’s health is gaining traction, but rare diseases like LAM are often overlooked. Dr. Lyndsay Hoy & Dr. Marina K. Holz highlight the gaps.

Read now: www.asbmb.org/asbmb-today/opinions/020...
#WomensHealth #RareDiseases #WomenInScience