It's here! The March edition of The LAM Foundation newsletter is now available. Click here to read the latest: mailchi.mp/thelamfoundation/heres-t...
#curelam #raredisease #thelamfoundation
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We are pleased to share that there is a new LAM Clinic at Northwestern Medicine in IL. Dr. Krishnan Warrior serves as Clinic Director and is committed to providing informed clinical care for those with LAM.
To locate a LAM Clinic in your area, visit https://ow.ly/gLob50YtzuC
#cureLAM
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Congratulations to Dr. Khaled Tighanimine, PhD , from Harvard T.H. Chan School of Public Health, for receiving the Pilot-Feasibility Award. His research will focus on Exploiting mTORC1-mediated changes in lipid metabolism to identify novel LAM treatments.
#RareDisease #Curelam
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Did you miss last week’s LAMposium in Your Living Room? We’ve got you covered! The recording is now available. Watch here: https://youtu.be/_x7GHe9HjHA
#CURELAM #LAMposium #RareDisease #RareDiseases #PatientSupport #LungHealth #MedicalResearch #Awareness #Hope #Community #Advocacy
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Attention all living with LAM! Join the Patient Voice Committee: Review grants, share your perspective, and help fund impactful LAM research.
Learn more: www.thelamfoundation.org/take-action/gss-patient-...
#CureLAM #PatientVoice #LAMResearch #PatientAdvocacy #MedicalResearch
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The Easy Breathers' 13th Million Dollar Bike Ride is June 13 in Philadelphia or virtually! Join us! https://ow.ly/f75150YoF5C
#MillionDollarBikeRide #MDBR #CureLAM #EasyBreathers #RareDisease #Fundraiser #BikeRide #CyclingEvent #PhillyEvents #MakeADifference #SupportRareDiseases
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CHALLENGE EXTENDED! We need 15 monthly donors by March 6th to unlock $15,000! give.thelamfoundation.org/give/761254/
#RareDiseaseDay #curelam #LAMFoundation #DonateNow
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Donate by 11:59 PM PT to double your impact for those living with LAM. give.thelamfoundation.org/give/758534/ #LAM #RareDisease #RareDiseaseDay #LAMFoundation #Fundraiser #DoubleYourImpact #GiveHope #SupportLAM #CureLAM
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This is your friendly reminder that today is #RareDiseaseDay. And TLF has a generous donor willing, ready, and able to match your gift made by 11:59 pm tonight.
Please help us reach our goal of $15K to unlock $15K in matching funds!
https://ow.ly/VV7A50Ym88k
#CURELAM
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A routine CT scan in 2020 revealed something I never expected: LAM. Google filled me with fear, but The LAM Foundation gave me hope. Because of decades of donors, I have access to a treatment. That’s why I’m a donor. My gift may be small, but it’s steady. I give because someone gave before me, and now it’s my turn to pay it forward.
Unlock $15,000 in matching funds this #RareDiseaseDay! Support LAM patients and research—give now to double your impact!
give.thelamfoundation.org/give/758534/
#LAMAwareness #CureLAM #DoubleYourImpact #GiveHope #MakeADifference
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Recording available: Leveraging the LAM Cell Atlas for Scientific Discovery.
Watch Dr. Yan Xu demo LCS here: https://youtu.be/U7RQCUo1L1M?si=e9fM4dWdP7irKcnV
#LAM #LAMResearch #RareDisease #SingleCell #MedicalResearch #LungDisease #TheLAMFoundation #ResearchMatters #CureLAM #Bioinformatics
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Registration is now open!
Dr. Moss and the LAM team from the NIH will describe what to expect when you participate in the protocols and will provide updates about ongoing research studies.
Register: https://www.tfaforms.com/5210862
#RareDisease #PatientAdvocacy #MedicalResearch #NIH #CureLAM
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Meet the co-chairs of TLF Early Career Researcher Network (TEN): Dr. Krencz & Dr. Hachem! TEN supports #LAM researchers with collaboration, community, and career growth.
Learn more: www.thelamfoundation.org/wp-content/uploads/2026/...
#womeninscience #CureLAM #science
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Attention LAM professionals! Only one week left to register for our virtual webinar on the LAM Cell Atlas with Yan Xu, PhD! Learn more: https://ow.ly/lWOa50Y6eUj
#CureLAM #pulmonology #raredisease
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It's here! The January edition of The LAM Foundation newsletter is now available. Click here to read the latest: https://ow.ly/viGv50Y5Hra
#curelam #raredisease #thelamfoundation
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Illustration of lungs with pink dots and text about a January 21, 2026 event on supplemental oxygen and device options.
week
LAMposium in your Living Room is just 1 week away! Join Susan Jacobs, MS, RN, FAAN, for insights on supplemental oxygen. Submit questions by Jan 15, 2026.
Register:
https://www.tfaforms.com/5206874
#Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
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LAMposium in your Living Room is just 2 weeks away! Join Susan Jacobs, MS, RN, FAAN, for insights on supplemental oxygen. Submit questions by Jan 15, 2026. Register: https://www.tfaforms.com/5206874 #Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
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In 2025, The LAM Foundation:
🏆 Awarded 5 new research grants
📈 Invested $420,000+ in LAM research
🧪 Supported 7 active projects.
Stay tuned for a special announcement!
#LAMResearch #ResearchGrants #MedicalResearch #HopeInResearch #CureLAM #TheLAMfoundation
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Group photo of diverse women holding roses at a LAM Foundation event promoting community and collaboration. Quote: "What makes the LAM Foundation a really remarkable organization is that they really focus on bringing community together. Not only just the patients together, but also patients and the doctors and the researchers who are studying the disease. It really fosters a community of collaboration." - Jennifer, diagnosed in 2015 thelamfoundation.org/donate
Board chair and clinician, Dr. Downey, with Clinician Dr. Koslow, interacting with two women living with LAM at LAMposium with branded backdrop and conference badges visible.
Professional woman standing next to a scientific poster presenting data on hormonal suppression in LAM using GnRH antagonists.
Four adults a man, Patient Mary Stojic, Executive Director Patti Tuomey, and Scientific Director Vera Krymskaya, standing in a close group hug inside a building with plants visible outside.
Just hours left to make your 2025 gift to The LAM Foundation!
Help women with LAM breathe easier and dream bigger.
Give before midnight!
thelamfoundation.org/donate
#CureLAM #RareDisease #WomenInScience #LAMAwareness #GiveHope #NonprofitSupport
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As we step into a new year, we invite you to make one more powerful choice: to give hope.
Your year-end gift says:
“I believe in a world without LAM.” 🌎💖
Donate before midnight: thelamfoundation.org/donate
#LAMAwareness #YearEndGiving #GiveHope #cureLAM
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Diverse group attending a conference with engaged participants and speakers sharing insights on stage. thelamfoundation.org/donate
Celebrating 30 years of hope! 🎉 Join us in finishing 2025 strong—your gift supports patients and research.
Give by midnight Dec 31!
give.thelamfoundation.org/campaign/738991/donate
Thank you!
#LAMFoundation #RareDisease #LAMposium2025 #LAMAwareness #Curelam #thelamfoundation
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We’re proud to celebrate LAM Clinic Director Göksel Altınışık Ergur, MD, who opened the first LAM clinic in Turkey earlier this year. Read this spotlight to learn how this milestone is expanding care and hope for people with LAM.
https://ow.ly/9hCm50XLcmp
#RareDisease #WomenInMedicine #curelam
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Join us for our next LAMposium in your Living Room! Questions? Email patientservices@thelamfoundation.org by 1/15/26.
Register: https://www.tfaforms.com/5206874
#Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
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Person wearing a white scarf with pink feathers symbolizing LAM awareness against a pink holiday background with gift hats and a message to support a future without LAM.
White tote bag and coasters featuring a 30th anniversary logo with 'Inspiring Hope & Innovation 1995-2025' on a pink background.
Collection of cozy winter gifts including a white quarter-zip pullover, two pom-pom beanies, a patterned scarf, and a mug with a feather logo on a pink background.
Collection of The LAM Foundation merchandise including a white cap, polo shirt, gray t-shirt, beanie, mug, and emergency info tag on a pink background.
This holiday, give a gift that gives back!
Check out our “Can you say lymphangioleiomyomatosis” t-shirts and Rosie mugs.
A portion of the proceeds supports The LAM Foundation.
https://tlf-merch.printify.me/category/all/1
#curelam #thelamfoundation
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Finish 2025 strong with The LAM Foundation! 💪
Your support gives women with LAM hope. Jennifer found her life again thanks to you!
Make a gift today: thelamfoundation.org/donate.
Let’s empower the LAM community!
#curelam #thelamfoundation
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Join Megan's mission this #GivingTuesday!
Donate → thelamfoundation.org/givehope
Fundraise → thelamfoundation.org/create-a-fundraiser
Follow on Twitch → https://www.twitch.tv/gamerprincess92
#GivingTuesday #TheLAMFoundation #CureLAM #RareDisease #GamingForGood #GivingHope
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We are incredibly grateful to the LAM community. Your support inspires us every day as we work toward a future without LAM.
#ICYMI - Please enjoy this video from members of our Board of Directors.
https://youtu.be/yEmI9gAWn40
#curelam See less
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It's here! The November edition of The LAM Foundation newsletter is now available. Click here to read the latest: us12.campaign-archive.com/
#curelam #LAMposium2025 #raredisease #thelamfoundation
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You are invited to a Circle of Hope webinar on 12/15, 7 PM – 8:30 PM ET.
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#TransplantSupport #Curelam
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Meet Frances, our LAM co-liaison for Region 15: NM, southern, and western TX! Diagnosed in 2013, she offers hope and support to LAM patients, especially in rural areas and to those considering adoption.
Find a liaison near you:
https://bit.ly/46qbsuA
#Curelam
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