Hang in there. You're definitely not on your own.

Anyone got anything planned for ME Awareness Day?

wwww Blue Sunday The Tea Party For M.E. 18th May 2025 • Wear something blue (pyjamas count!) and/or • Dig out your best cups and saucers and/or • Bake or buy your favourite cake and/or • Post a photo of your tea party set-up to social media and/or • Invite others to enjoy tea and cake with you in-person, via video call, or by sharing photos and/or • Donate the price you'd pay in a café to an M.E. charity and/or • Connect with others online who are doing the same, by commenting on their posts Do one, a few, or all, to show your support for the M.E. community @theslowlane.me f@theslowlane_ME www.the-slow-lane.com

Anna Redshaw’s ‘Blue Sunday’ Tea Party For M.E. in aid of various ME charities (including ME Research UK) will be held this year on Sunday 18th May 2025. Since its launch in 2013, the initiative has raised over £140,000 for charities.

How to take part
www.meresearch.org.uk/blue-sunday-...

#mecfs

Leeds doctor still 'bedbound' three years after Covid infection Dr Alexis Gilbert was working in public health when he fell ill and now struggles with daily tasks.

Powerful story on @bbclooknorth.bsky.social about Dr Alexis Gilbert.

“"I've lived like this for two or three years and the thought of living like this for another two or three years is completely overwhelming, never mind a decade or longer,"

www.bbc.com/news/article...

GP LEAFLET | Long Covid SOS In close partnership with the Clinical Post Covid Society​ we have completely revised and updated the leaflet for GPs that we co-produced with the Royal College of General Practitioners.  This leaflet...

📢 What can you do? Tag a friend, share, and check out our GP & patient leaflets—developed with the Royal College of GP’s and backed by the Clinical Post Covid Society —to help #pwLC get the care they need.

longcovidsos.org/gp-leaflet

Much also applies in ME/CFS #millionsmissing

I lived with ME/CFS for 12 years.

Full solidarity with everyone affected by Long Covid.

You are seen. You are heard and you matter to all of us here in @greenparty.org.uk

#LongCovidAwarenessDay

Cutting benefits won’t get #ME/#CFS sufferers back to work—it will just push them further into hardship.
Starmer's approach seems to paint the poor as 'scroungers' or 'work-shy.'

Disabled people need support, not punishment. #MEcfs #DisabilityRights #Starmer #pwme

My message to the Government ⬇️
#FundThePlan
#MECFS
#LongCovid

@katedeardenmp.bsky.social Local constituents need support and this is why.

Why is there poor care for ME? What is NHS care like for people with severe ME, also known as chronic fatigue syndrome?

“Many people with ME recognise the strain the #NHS is under - what's less easy to understand, they say, are the attitudes of some of the #healthcare staff they encounter": https://buff.ly/485Giui #ChronicIllness #MECFS #ChronicFatigue

Cover pic, yellow background with blue text, of the book How to Do Live with Chronic Illness by Pippa Stacey, with a wreath logo beneath saying 'Audible best of the year '24'.

Heard some fab news this morning - Audible have selected How To Do Life with a Chronic Illness by Pippa Stacey as one of their 'Best Listens of 2024' in the UK www.audible.co.uk/ep/best-of-t...! You can find out more about Pippa here: www.instagram.com/lifeofpippa/...

Designing an NHS that’s #ThereForME Reflections from a former health professional

Thank you @thereforme.bsky.social Another great post by a NHS physician (now patient). Spot on. I wished everyone could read it. Proposals are easy, not too costly, but it woud mean saving lives and probably avoiding progressing into severe for many #pwME.

www.thereforme.uk/p/designing-...

We need all the support we can get. Feeling ignored, feeling like no one cares or properly understands how such a high impact illness has such a low priority for government. @katedeardenmp.bsky.social

Our thoughts are mainly with those living a painful existence and their loved ones who are so reliant on something finally changing. @katedeardenmp.bsky.social

Incredibly disappointing for some, heartbreaking for those who have waited decades for change and realise that there will still be no hope for those predictably coming after them. It's a crime that so many people in their prime are being ignored. @katedeardenmp.bsky.social

😲

After decades of waiting, this is just a slap in the face

Great to see this update from the APPG on ME!

📆 Details below on how you can invite your MP to join the next meeting on 5 March

✍️ New online form to contact the APPG with your concerns and priorities

appgme.co.uk/contact-us/

As someone with M.E. thus is scary.

“As a nurse, I am ashamed to say that I knew very little about #ME, nor had I been taught about it during my training.”
Rebecca Logan
#ThereForME

Signed for all those stuck without treatments being forced into a box they don't fit.

One hand on top of another in a comforting gesture Text: #MEaction ME caregivers support call https://www.meaction.net/act-events/

Saturday, January 18

CAREGIVER SUPPORT CALL ( for caregivers of people with ME (myalgic encephalomyelitis), Long COVID, etc.)
www.meaction.net/event/me-car...

3:30PM ET / 8:30PM in GB & Ireland

Find the time in your time zone here:
www.timeanddate.com/worldclock/f...

#MEcfs #CFS #LongCovid

One of the Irish ME/CFS Association logos Help us win £1000. Please nominate us today. Movement for Good logo Benefact Group logo

We'd love if you could nominate us movementforgood.com/index.php?cn...

Use that link or just type in "myalgic" & you will find us in a short list; otherwise use our charity number 20100254

Money will be divided 50/50 general/research funds

You can also nominate other charities

#MEcfs #CFS

Farbige Schrift auf schwarzem Grund mit dem Text: @Alt-text.bsky.social

Danke für die Awareness für #MECFS.

Wer sich näher beschäftigen möchte, folgt gern jeden Mittwoch der #MEawarenessHour oder aktuell der #lemonChallengeMECFS

Mit diesem Video nehme ich an der Lemon Challenge der MECFS-Research teil. Ich wurde nicht nominiert und nominiere auch niemanden, aber ich bin selbst betroffen. Allen möglichst beschwerdefreie Feiertage und ein besseres 2025.

#LemonChallengeMECFS
#MEAwareness
#MEAwarenessHour
#MECFS
#LongCovid

Happy Holidays from all of us @workwellfoundation.bsky.social
#HappyHolidays #MECFS #LongCOVID #MillionsMissing #HOPE #pwME #pwLC #PEM #PESE #POTS #Lyme #Fibro #CPET #HRM #StopRestPace #StopGET #Education #Disabilty #DoNoHarm #nonprofit #science @lasnow.bsky.social @sunsopeningband.bsky.social

Lighting candles for all of the PwME lying in dark rooms today - including my James 💙🕯️

Please know that you’re not alone x

A pretend polaroid shows a very Christmassy Chris Ponting posing for a photo holding a #ThereForME Christmas card. He is wearing a very fetching Santa hat and a tinsel garland The image on the card shows two presents, one labelled "patient safety", the other "research". The photo is labelled "11". The design is in the #ThereForME colours.

This second image displays Chris’s handwritten message. It reads “My Christmas wish for people with ME and Long Covid is: Many scientific breakthroughs – a ‘True Dawn’ bringing us much closer to effective therapies. Chris xx”

Dec 11: Prof Chris Ponting is #ThereForME! @cgatist.bsky.social leads @decodemestudy.bsky.social, the world’s largest ME genetic study.

“My Christmas wish for people with ME and Long Covid is: Many scientific breakthroughs – a ‘True Dawn’ bringing us much closer to effective therapies. Chris xx”