Blue promotional graphic titled “Parliamentary Friends of ME/CFS Meeting” with a “Watch Today” banner saying "Recording now available". Headshots of all ten speakers. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

Thank you to everyone who joined us at Parliament House and online for Fluctuating Energy, Fixed Systems.

Speakers shared powerful experiences and insights on how rigid systems fail people with #mecfs & #longcovid.

Watch the recording: zurl.co/qThaI

#mecfsadvocacy

Graphic for “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Photo shows a close-up of a meeting booklet titled “Parliamentary Friends of ME/CFS: Fluctuating Energy. Fixed Systems,” with agenda details and a QR code. Text reads “Community Action. Parliamentary Impact.” Logos for Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and ME Group Australia appear along the bottom.

Thank you to those who helped invite MPs to the Parliamentary Friends of ME/CFS meeting. 34 parliamentarians/staff from their office attended the meeting. 14 sent apologies.
We’re now following up with every office to keep ME/CFS firmly on the agenda.

🔗 zurl.co/qEaTP

A record number of parliamentarians attended‼️
Well done @emergeaustralia.bsky.social for organising the campaign and the event.

Thank you to #MECFS Alliance Australia for supporting the campaign.

👏👏👏 to our community for emailing our MPs & senators to urge them to attend.
Invisible no more ‼️

Blue Emerge Australia graphic with RACGP CPD Provider logo promoting a free clinical education module for health professionals. Text says, “Seeing your GP soon? Bring this link and ask them to complete the module,” with a “Link in caption” button. Photo shows a patient holding a phone displaying the module page while seated with a doctor.

New online module for GPs 🩺

ME/CFS in General Practice: From invisible to visible – a case-based module covering identification, diagnosis, stigma-aware communication and safe care.

RACGP CPD points available.
#GPeducation #GPtraining #MECFS

Navy blue background with photos featuring speakers from the meeting. ME/CFS Alliance logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

Today, we brought ME/CFS to APH. With the theme Fluctuating Energy, Fixed Systems, the PFG of ME/CFS meeting highlighted a stark truth: people with #MECFS & #longCOVID must use systems built for stability, consistency & recovery, while living with fluctuating and unpredictable capacity.

Thank you Ass Health Minister Rebeca White, Dr Monique Ryan MP & Dr Mike Freelander MP for your presentations.

Manny thanks to the organisers for a great event which provides hope to the #MECFS & #LongCOVID communities that change is possible.
#MyalgicEncephalomyelitis

Long COVID Treatment Guide An evidence-supported guide covering treatments addressing multiple Long COVID symptoms & mechanisms — focused on prescription medication, with a limited set of supplements, OTC medications, procedure...

We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together.

The guide focuses on 24 medications, but includes a few other interventions for breadth /1

Graphic promoting a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Three speech bubbles clipped to a clothesline read “We”, “need”, “you” in blue, red and green. A banner says “Parliamentary Friends of ME/CFS Meeting – Email your MP”. Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.

📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March.
Take action 👉 zurl.co/DG4nc

Let’s fill the room. 💙

#FairGoForME #MECFSAllianceAustralia

📧 It’s not too late to send a prepared email to your federal MP‼️
Click on the above link and follow easy prompts.

👉This meeting could be most important federal advocacy opportunity for 2026.
🗣️Let’s make the most of the chance to improve the lives of ppl living w #MyalgicEncephslomyelitid #MECFS 🙏💙💪

We are a wealthy nation. Nobody should be turned away from accessing a safe place to sleep, or nutritious food, while 1 in 3 big corporations pay no tax.

Thanks Jason 🙏
Hopefully you will get a reply. It would be terrific to see Dan Mulino MP at the meeting.

Graphic promoting a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Three speech bubbles clipped to a clothesline read “We”, “need”, “you” in blue, red and green. A banner says “Parliamentary Friends of ME/CFS Meeting – Email your MP”. Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.

📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March.
Take action 👉 zurl.co/UFRXm
Let’s fill the room. 💙
#FairGoForME #MECFSAllianceAustralia

⬆️ This Canberra meeting on Mar 10 is potentially the biggest opportunity this year for federal politicians & decision-makers to focus on #MECFS #MyalgicEncephalomyelitis...
but only if they turn up.
Give your MP a gentle nudge. Only 2 clicks are required to send the prepared email 📧 🙏

Dark blue background with three illustrated hands holding green hearts. "Register Today: Parliamentary Friends of ME/CFS meeting. The 5 logos of the ME/CFS Alliance organisations are at the top on a white background - Bridges & Pathways, Emerge Australia, ME Advocacy Network Australia, ME/CFS Australia, Myalgic Encephalomyelitis Group Australia

📅 Tue 10 March
🕚 11:00am–1:00pm AEDT (may finish earlier)

Clinicians, MPs, researchers & people with lived experience will discuss the urgent needs of Australians with ME/CFS.

🔗 Register for Zoom: zurl.co/fyADw

📩 In-person (Canberra): information@emerge.org.au

🛋️ From couch to Canberra!
Attend this important meeting from our beds or couches.
🛏️ Tune in as much or as little as capacity allows.

📉 The number of registrants matters.
👀 High levels of community participation are noticed by decision-makers.
#MECFS #MyalgicEncephslomyelitis
Invisible no more.

Promotional graphic showing a smiling older woman hugging a young man on a couch. Text reads: “AusME From one small act comes big hope,” “Join the AusME today,” and “Your contribution could help unlock answers for millions worldwide who are still waiting for hope and healing,” with the Emerge Australia logo.

If you’re living with ME/CFS, long COVID, or want to volunteer as a ‘healthy control’ for medical research studies, becoming an AusME Registry participant is the simplest way to get involved in research!

Sign up today and make a difference!
zurl.co/4ebne

BBC Inside Science - £1.1M ME/CFS and Long Covid Study YouTube video by Broken Battery

BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid.

youtu.be/eu8Lj_R-OtQ?...

Big congratulations to @tessamunt.bsky.social!

Tessa has been an incredible advocate for the community and we look forward to working with her in this new role 🙌

Board of Peace - Season 1

Meet our new Parliamentary Friends Group members. Co-chaired by Dr Mike Freelander and Senator Jordon Steele-John, our first meeting of 2026 is to be advised.

zurl.co/EpRFU

Thank you Senator Steele-John and Dr Mike Freelander MP for co-chairing the Parliamentary Friends of #MECFS. This group means alot to the thousands of Aussies impacted by #MyalgicEncephalomyelitis. Thanks also to the 18 cross party MPs and Senators from all over Australia who signed up as members.

Randa Abdel-Fattah—

"Adelaide Festival has apologised unreservedly. Vindication. My response."

Woman with red hair sitting on bed reading a letter

When Poppy Bradley, 25, was diagnosed with #MyalgicEncephalomyelitis #MECFS three years ago, she had to find new ways to stay connected.
@theageaustralia.bsky.social
✍️Pen pals and snail mail clubs: Why Gen Z is reviving the art of letter writing. By Lauren Ironmonger

Graphic on a blue background announcing “LGBTQIA+ Virtual Support Group for people with ME/CFS or long COVID,” with the note “Starting February 2026!” and a large rainbow arc at the bottom above the Emerge Australia logo.

🌈 LGBTQIA+ Virtual Support Group – Feb 2026

A welcoming space for LGBTQIA+ people living with #MECFS or #longCOVID. Connect, share, and feel supported.


Starts Thu 5 Feb, 2pm AEDT (fortnightly).


Join here: zurl.co/DWJM8 🌈

Weaponising Grief The media’s response to the Bondi tragedy

New:
On the alarming politicisation of the Bondi massacre, and the calls for Albanese to announce a royal commission

Thank you Annie from Understanding ME channel, for this insightful conversation with Dr Shiam who recently participated in Emerge Australia’s clinical education program.

Donate now to support Emerge Australia to educate clinicians like Dr Shiam.

zurl.co/myyTU

Today in @australia.theguardian.com

Israel has banned Medecins Sans Frontieres from operating in Gaza, rounding off a banner year for inhumanity.

Happy all the things, lovelies. Squeeze those you love (including the four legged ones) tight. It’s a hard time of year for lots of people, for lots of reasons and this year is even harder - but you’re not alone. Sending love. Take care of you and those around you. Happy Kucios 🩷

Petition: We will not be divided after Bondi.

Add your name:

jewishcouncil.good.do/unity/jewish...