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Posts by Laminopathies meeting

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Thank you for an inspiring Laminopathies meeting in Paris!

On behalf of @LMNAcardiac and all LMNA patients ❤️, we’re grateful for the strong interest and meaningful interaction between experts and patients. Hopeful for the future! 🙏

#LMNA #RareDisease #Cardio #PatientAdvocacy #lamin

10 months ago 5 0 0 0
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Laminopathies Meeting 2025 wrapped up with two powerful sessions: “Towards Patients” & the Patient Session.
The exchange between experts & patients was incredibly valuable.

Thanks to everyone who joined us!

#Laminopathies #RareDisease #PatientVoices #lmna

10 months ago 5 0 0 0
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Day 3 of the #Laminopathies2025 meeting is underway — our final day! We’re closing strong with sessions focused on patients and patient organizations, followed by a powerful round table discussion. Let’s keep the momentum going 💪🧬

#RareDisease #Patient #laminopathies

10 months ago 1 0 0 0
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Day 2 of the #Laminopathies conference is underway! 💡 Dive into today’s sessions and connect with the global community driving progress in laminopathy research. Full program available at laminopathies.net

#RareDisease #Laminopathy #Laminopathies

10 months ago 1 0 0 0
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An unforgettable evening at the #Laminopathies conference gala dinner/cocktail party - great conversations, inspiring connections, and a stunning venue. Huge thanks to the organisers and @LmnaCardiac for bringing this community together! 💙 #RareDisease #Laminopathy #lmnacardiac

10 months ago 2 1 0 0
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The #Laminopathies Meeting is LIVE!

Experts, researchers & advocates are gathering to push forward breakthroughs in LMNA & lamin-related diseases. Follow the latest updates, science, and community highlights 👉 Laminopathies.net

#Laminopathies2025 #RareDisease #LMNA #lmnacardiac

11 months ago 0 0 0 0
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We start tomorrow! 🧬
The Laminopathies Meeting begins with registration at 14:00 — we’re looking forward to seeing you all there!

More info: laminopathies.net

#Laminopathies #RareDisease #LMNA #Genetics #PatientCommunity

11 months ago 0 0 0 0

🚨 The Laminopathies Meeting will also be available online! 🌐

🗓️ Join virtually via Zoom webinar:
👉 zoom.us/j/96240745334

Don’t miss this key event for the laminopathies community — whether you're a researcher, clinician, patient, or advocate. laminopathies.net 💻

#Laminopathies #LMNA #VirtualEvent

11 months ago 1 0 0 0
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📢 5th Laminopathies Meeting in Paris update:

🧬 The poster abstracts are now available!
Scan the QR code below or visit Laminopathies.net to explore the latest research from the community.

#Laminopathies2025 #LMNA #RareDiseaseResearch #ParisScience #LaminopathiesNet

11 months ago 1 0 0 0
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📢 The Laminopathies 2025 meeting is around the corner!

📄 Abstracts are now available — scan the QR code to access them instantly and explore the latest research in the field.

🔗 Learn more at Laminopathies.net
#Laminopathies2025 #RareDisease #LMNA #MuscularDystrophy #CardiacResearch #GeneTherapy

11 months ago 1 0 0 0

We’re excited to see many of you in Paris next week!
If you can’t make it in person, don’t worry—follow us here and on our website for access to the live stream.
#laminopathies #lmna #paris #livestream

11 months ago 2 0 0 0

Welcome to the official account for the 5th Laminopathies Conference! 🧬 Join us for cutting-edge research, inspiring talks, and live updates from the Laminopathies meeting in Paris. Follow for the latest news! #Laminopathies2025 #laminopathies #lmna #lmnacardiac

11 months ago 2 0 0 0