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Posts by The Life Raft Group - GIST Support

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The right information makes all the difference. Join us at Life Fest 2026 to connect, learn, and be empowered. REGISTER: bit.ly/LifeFest2026...
#LifeFest2026 #PatientEducation #GISTCommunity #ThrivingTogether

2 days ago 0 0 0 0
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Join Triage Cancer for a simple guide to understanding Medicare for first-time enrollees. Register: bit.ly/Triage-Medic...
#Medicare #PatientEducation #CancerSupport #TriageCancer

2 days ago 0 0 0 0
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Listen to 'Advice from Long-Term GIST Survivors' - Panelists shared honest insights & experiences on living long-term with #GIST. Watch: bit.ly/SurvivorsWeb... #CancerSurvivors #PatientSupport #ThrivingTogether #GISTCommunity

5 days ago 0 0 0 0
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Every story shared in the LRG Patient Registry brings researchers closer to answers that can improve care and move us toward a cure. Learn more: bit.ly/PatientRegis...
#GIST #PatientRegistry #MoveTowardACure #GISTcancer

6 days ago 0 0 0 0
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Inspired by the strength of the #GISTcommunity, Toni is running as an LRG athlete to bring hope and support to patients and families. bit.ly/Toni-Maratho... #ThrivingTogether #LRGathletes #JerseyCityMarathon #RunForACause

1 week ago 1 0 0 0
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Our Caregiver of the Month, Gentry, shares her journey supporting her husband Anthony through #GIST, facing recurrence, recovery, and finding strength in community every step of the way. bit.ly/COMApril2026 #caregiverofthemonth #CaregiverStrong #ThrivingTogether #GISTCommunity

1 week ago 0 0 0 0
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Toni is turning her marathon journey into a mission, running to uplift and support the GIST community every step of the way. bit.ly/Toni-Kudo-JC... #ThrivingTogether #LRGathletes #GISTcommunity #JerseyCityMarathon #RunForACause

1 week ago 0 0 0 0
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Starting in 1 hour! Join long-term GIST survivors as they share real stories & advice for patients and caregivers. Join here: bit.ly/LT-Survivors
#GISTCommunity #SurvivorStories #ThrivingTogether #PatientSupport

1 week ago 0 0 0 0
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A patient registry brings patient voices together for rare diseases, turning real experiences into insights that guide treatments & improve care. bit.ly/PatientRegis...
#GIST #PatientRegistry #MoveTowardACure #GISTcancer

1 week ago 0 0 0 0
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Antoinette Pauwels is heading to Miami for the Precision Medicine Symposium on April 11, hosted by Sylvester Comprehensive Cancer Center. She’ll join a powerful panel, Thriving Beyond Cancer Risk or Diagnosis. bit.ly/PrecisionMed...

1 week ago 0 0 0 0
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GIST Cancer Patient Summit / GIST Day of Learning Texas 2026 - YouTube The Summit took place at MD Anderson Cancer Center in Houston, Texas and was a join effort by The Life Raft Group and GIST Support International in conjuncti...

Session recordings from the March's GIST Summit at MD Anderson are now available on our YouTube Channel. bit.ly/GISTSummit-G...
#GISTeducation #GISTSummit #GDOLTexas #GISTcancer @mdanderson.bsky.social

2 weeks ago 0 0 0 0
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A new clinical trial is testing #KQB198 with imatinib in first-line advanced GIST. Explore if this could be an option for you. Contact: ssingh@liferaftgroup.org
#clinicaltrials #metastaticGIST #GISTeducation

2 weeks ago 1 0 0 1
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Gain valuable insights from long-term #GISTsurvivors as they reflect on their journeys and share practical advice to help others navigate life with GIST. Save your spot: bit.ly/LT-Survivors #GISTCommunity #PatientVoices #LongTermSurvivors

2 weeks ago 1 0 0 0
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Patient Symposium on precision medicine in sarcoma in Miami April 11. bit.ly/PrecisionMed... #PrecisionMedicine #CancerSupport #Survivorship #PatientAdvocacy #ClinicalTrials #CancerAwareness #ThrivingTogether

2 weeks ago 0 0 0 0
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Training with dedication for the Jersey City Marathon, staying committed to every mile in support of the #GISTcommunity. Support Toni: bit.ly/Toni-Kudo-JC... #ThrivingTogether #LRGathletes

3 weeks ago 1 0 0 0
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Hear from those who’ve been there, long-term #GISTsurvivors will share the lessons, strength, and perspective they wish they had from the start. Register: bit.ly/LT-Survivors #GISTCommunity #PatientVoices #LongTermSurvivors

3 weeks ago 0 0 0 0
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Toni is taking on a marathon to honor the strength of the #GISTcommunity that inspires her every day. bit.ly/Toni-Kudo-JC... #ThrivingTogether #LRGathletes

3 weeks ago 0 0 0 0
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Let's get ready for the #ClevelandMarathon weekend! Sign up today & choose The Life Raft Group as your designated charity. LRG Athletes bring more meaning to every mile! Register: bit.ly/ClevelandMar... #ClevelandRunners #CLErunning #RunCleveland

4 weeks ago 0 0 0 0
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Join us for real talk from long-term survivors on what actually matters, what they would have done differently, and what they want you to know now. bit.ly/LT-Survivors #ThrivingTogether #PatientSupport #CancerSurvival

4 weeks ago 1 0 0 0
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A patient registry turns individual stories into shared insight. For a rare disease every data point matters. Your experience helps complete the picture and move research forward. For more info: bit.ly/PatientRegis...
#GIST #PatientRegistry #MoveTowardACure

4 weeks ago 0 0 0 0
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Barney, our Patient of the Month, faced a life-changing GIST diagnosis overnight, but his story is one of resilience, family, and hope. Read more: bit.ly/POMMarch2026 #PatientOfTheMonth #PatientStory #ThrivingTogether

1 month ago 0 0 0 0
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Don’t miss this upcoming webinar from Triage Cancer on navigating insurance hurdles. Learn practical tips to better understand coverage, appeals, and how to overcome common barriers when accessing care. bit.ly/Triage-Insur... #TriageCancer #HealthInsurance #InsuranceHurdles

1 month ago 0 0 0 0
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Our Patient Registry has reached 3,000 participants. Today we honor patients, caregivers, & researchers who made this possible. Your participation helps drive progress in #GISTresearch and fuels progress. Learn about our registry: bit.ly/PatientRegis...
#PatientRegisty #3000

1 month ago 0 0 0 0
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Register today to join the GIST community in Nashville for a weekend in July (10th-12th) for education from the experts & connection with other GISTers. bit.ly/LifeFest2026...
#GISTeducation #ThrivingTogether #LifeFest

1 month ago 0 0 0 0
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Curious about histotripsy? Dr. Jiping Wang breaks down the basics, then an esteemed panel of sarcoma experts, led by Dr. Elizabeth Lilley, discuss what patients need to know about this treatment’s potential in sarcoma. Watch now: bit.ly/HistotripsyLRG
#histotripsy #sarcoma #GISTeducation

1 month ago 0 0 0 0
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Curious about histotripsy? Dr. Jiping Wang breaks down the basics, then an esteemed panel of sarcoma experts, led by Dr. Elizabeth Lilley, discuss what patients need to know about this treatment’s potential in sarcoma. Watch now: bit.ly/HistotripsyLRG
#histotripsy #sarcoma #GISTeducation

1 month ago 0 0 0 0
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Starting in 1 hour! Don’t miss this webinar exploring the potential role of #histotripsy in liposarcoma care, led by sarcoma experts. Join us soon.
bit.ly/Histotripsy-...
#Sarcoma #CancerEducation #Liposarcoma

1 month ago 1 1 0 0
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Happening tomorrow! Join our webinar to learn how #histotripsy may offer new possibilities for people affected by GIST. Hear directly from sarcoma experts and get informed. Register today. bit.ly/Histotripsy-...
#Sarcoma #CancerEducation #GIST

1 month ago 0 0 0 0
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Caregivers wear many hats throughout a cancer journey with their loved one. Today we honor them and remind them that they are not alone. Support is available for ALL those living with #GIST.
Read more: bit.ly/CaregiverDay...
#NationalCaregiversDay #CaregiverSupport #sarcoma

2 months ago 0 0 0 0
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#LifeFest is all about YOU! Connection, education, and a #GISTcommunity that understands and supports you.
Register: bit.ly/LifeFest2026...
#LifeFest2026 #Nashville #GIST

2 months ago 0 0 0 0