World Psycho-Oncology Day #WPOD was 9 April. Our research group #PoCoG held a public webinar. If you are interested in learning more about our research aiming to better support #CancerSurvivors & #carers you can see the recording here:
youtu.be/IV2jSBmTfl4?...
#Psychology #PsyOnc #SuppOnc #OzOnc

Provider-Engaged Development of a Sexual Dysfunction Screening Approach for Adolescents and Young Adult Childhood #Cancer Survivors: Iterative Co-Design Study Background: Sexual dysfunction (SD) is common among childhood #Cancer survivors, affecting approximately 20% to 50% of patients. National guidelines recommend discussions about sexuality throughout #Cancer care, and prior work demonstrates patient interest in SD conversations. Despite its prevalence and importance, SD is widely underrecognized and undertreated, creating gaps in comprehensive whole-person care. Objective: Our research aims to collaborate with provider partners to co-design an SD screening intervention prototype for implementation in a clinical oncology setting. This study outlines the co-design process to serve as a case study, highlighting challenges and strategies to achieve a consensus-driven intervention and implementation plan. Methods: We engaged pediatric #Cancer providers in a series of co-design sessions at a National #Cancer Institute–designated #Cancer center within an academic children’s hospital. For each co-design session, the research team created a template outlining considerations from formative work (eg, patient privacy) and key decisions to be made (eg, screening modality). Co-design session moderators facilitated discussion, guiding participants toward a consensus decision for each intervention component. A final process mapping session reviewed and outlined the entire SD prototype. We conducted a rapid qualitative analysis, compiling a templated summary synthesizing and organizing findings by discussion topic and decision point. Based on co-design discussions, the research team compiled a menu of options outlining key thematic findings, core screening intervention functions, and intervention form options to allow for future expansion and tailoring of the SD prototype. Results: Six provider participants, including attending physicians, advanced practice providers, and registered nurses representing multiple oncology subspecialty groups, engaged in a series of 5 co-design sessions. Participants assessed specific intervention component options, reached consensus on component decisions, and determined an intervention and implementation workflow for each. Throughout, providers needed to ensure workflows aligned with patient and provider priorities from foundational work and to ensure design #feasibility, acceptability, and appropriateness. Key intervention and implementation decisions included target population, screening frequency, screening modality and workflow, management of screening results, clinic reminders and cues, and provider education and training. With several decisions being interconnected, there was often a cascade effect in which one decision influenced or limited future decisions and, in some cases, required revisiting prior decisions to ensure cohesive alignment into a single prototype. Co-design session moderators used several strategies (eg, reminders, redirection, providing information on #feasibility, etc) to facilitate decision-making and implementation strategy selection. Conclusions: Engaging provider partners in co-design sessions allowed for the collaborative development of a preliminary SD screening approach for adolescents and young adults with and surviving #Cancer. The dynamic co-design process and moderator strategies ensured that intervention and implementation decisions reflected the patient and provider priorities identified in prior work. Future work will test, adapt, and refine the prototype SD screening approach prior to effectiveness testing and eventual dissemination.

JMIR Formative Res: Provider-Engaged Development of a Sexual Dysfunction Screening Approach for Adolescents and Young Adult Childhood #Cancer Survivors: Iterative Co-Design Study #ChildhoodCancer #CancerSurvivors #SexualDysfunction #OncologyCare #HealthResearch

What Is It Like to Get Cancer When You're Young? Hundreds of New York Times readers shared their experiences with early-onset cancers. Here are seven of their stories.

www.nytimes.com/interactive/... #cancer #UShellcare #UShealthcare #cancersurvivors

🇺🇸 Life Insurance for Cancer Patients & Survivors: Find Answers to All Your Questions in Our Complete New Guide 👉 bcli.link/CancerSurvivors

#LifeInsurance #CancerPatients #CancerSurvivors #InsuranceAdvice
#FinancialSecurity #FamilyProtection #TermLife #InsuranceBroker

I teach medical students about nutrition and disease. This finding s...
www.aacr.org/about-the-aacr/newsroom/...

#UltraProcessedFood #CancerSurvivors #MetabolicHealth #Nutrition #Inflammation

Post-Treatment Infertility Linked To Depression Symptoms In AYA Cancer Survivors Investigators assessed the association between infertility, anxiety, and depression among Mexican AYA cancer survivors.

Adolescent and young adult #cancersurvivors in Mexico who experienced #infertility were more likely to have #depression symptoms than those who did not experience infertility.

https://bit.ly/4dxKtnk

#AYACancer

We had the pleasure to contribute to 2 important EU #CancerMission events on improving quality of life for Adolescent and Young Adult #AYA #cancersurvivors organised by @ec.europa.eu. Great to connect with collaborators like @transcend-xr.bsky.social and @youthcancereurope.bsky.social. More soon!

Study Finds Accelerated Biological Aging and Cognitive Decline in Young Cancer Survivors Teens and young adults who survive cancer may experience accelerated biological aging and early cognitive decline compared with their peers, according to new research published in Nature Communications. The study, led by AnnaLynn Williams, PhD, of the University of Rochester Wilmot Cancer Institute and Kevin Krull, PhD, of St. Jude Children’s Research Hospital, analyzed approximately 1,400 long-term survivors who were at least five years beyond treatment, many of whom had been treated for acute lymphoblastic leukemia or Hodgkin lymphoma. Researchers found that survivors showed signs of being biologically older than their chronological age, as measured by markers such as epigenetic age acceleration and telomere length. Chemotherapy was associated with the greatest degree of accelerated aging, likely due to its DNA-altering and cell-damaging effects. Importantly, higher biological age was closely linked to poorer neurocognitive performance, including challenges with memory, attention, and information processing speed. These cognitive difficulties may affect educational attainment, employment opportunities, and overall quality of life. The study also suggests that accelerated aging may not be irreversible. Ongoing research indicates that lifestyle interventions such as regular exercise, smoking cessation, and improved diet could potentially slow or partially reverse biological aging in this population. Additional investigations are underway to determine when the aging process begins—during treatment or later—and to explore strategies for prevention and intervention. The findings underscore the need for long-term monitoring and supportive care to improve both lifespan and quality of life among young cancer survivors.

Study Finds Accelerated Biological Aging and Cognitive Decline in Young Cancer Survivors

🤖 IA: It's not clickbait ✅
👥 Usuarios: It's not clickbait ✅

#cancersurvivors #biologicalaging #cognitivedecline

View full AI summary:

• 90% of #cancersurvivors report lifestyle barriers.
• Lack of energy (51.3%) and physical limitations (48.3%) are the primary obstacles.
• Time constraints affect 27.6%.

Research from @ascopost.bsky.social, read more: ➡️ https://bit.ly/4ruVOc6

#Oncology #Survivorship #PublicHealth #PatientCare

Amazon.com

Or check out The Cancer Survivors Club book for more inspirational survival stories from people who refused to quit #CancerSurvivors #Hope #TCSC www.amazon.co.uk/Cancer-Survi...

Sheldon’s story is a reminder to celebrate every small win in recovery… step by step, scan by scan, mile by mile. Share this with someone who needs encouragement today. #CancerSurvivors #TCSC

We are still fighting! Stand with us & sign the petition. Please share with other #CancerSurvivors ! #Brigimadlin could mean hope for patients with dedifferentiated liposarcoma. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #PatientVoices #liposarcoma @boehringerglobal.bsky.social

Nutrition Counseling Could Support Fertility in Female Cancer Survivors - Oncology Nurse Advisor Semi-structured interviews with healthcare providers and female cancer survivors explored the perceived benefits of improved nutrition counseling for these survivors.

53.6% of female #cancersurvivors sought nutrition counseling.

Only 57% received professional support.

Primary drivers: weight management and #fertility.

Read more: https://bit.ly/3MA8nna

#Oncology #Nutrition #CancerSurvivorship

How to Outsmart Ovarian Cancer With One Surgery A simple add-on surgery could cut the risk of deadly ovarian cancer by about 80%, but most women aren’t told about it.

#CanSky #OncoSky #Cancer #CancerSurvivors
I don’t believe for a second that complete hysterectomy post-menopause is more costly than the combined costs of repro-organ cancer treatment and impacts from it. It would save too many women and put too many people out of a job though.

Cancer Survivors With Lower SES Find Return to Work More Challenging Socioeconomic status of cancer survivors or the neighborhood in which they live has a significant effect on their perceived work ability and functional outcomes. Cancer survivors with low socioeconomic status or who live in low SES neighborhoods need in...

Interventions may be necessary to reach #cancersurvivors in neighborhoods with low #socioeconomic status to help them be able to successfully return to work. Published in @oncologynurseadv.bsky.social.

https://bit.ly/469EPU1

Four graphs compare survival rates. (A) Overall survival among cancer survivors: HDHP(orange), Standard HP(blue). (B) Cancer-specific survival among cancer survivors. (C) Overall survival in others. (D) Cancer-specific survival in others.

Among US #CancerSurvivors, high-deductible health plans were associated with worse overall and cancer-specific survival, with financial barriers to care mediating a substantial portion of this association. ja.ma/3Mce2jf

#CancerSurvivors

Factual Friday:
Cancer survival rates have been steadily improving thanks to advances in early detection, treatment, and supportive care. HopeSpring is here to support every step of the journey toward better outcomes. 

#FactualFriday #CancerAwareness #HopeSpringCare #CancerSurvivors #EarlyDetection

Increased Cardiovascular Risk in Childhood Cancer Survivors Suggests Need for Lifestyle Interventions - Oncology Nurse Advisor In this analysis, researchers aimed to determine which factors play a role in cardiovascular risk in childhood cancer survivors.

Childhood #cancersurvivors are at risk for traditional #CVRF, independent of their underlying genetic risk and their #cancertreatment. Published by @cancertherapyadv.bsky.social.

https://bit.ly/3YG0izV

Rural Cancer Survivors More Likely Than Urban Survivors to Experience Chronic Pain Cancer survivors living in rural areas are more likely to experience chronic pain than urban cancer survivors.

#Cancersurvivors living outside of metropolitan areas are significantly more likely to experience #chronicpain than urban survivors. Published in @jamanetworkopen.com and @cancertherapyadv.bsky.social.

https://bit.ly/3Ls50yi

#cancerpain

in my experience the strangest things are possible ✨ #cancersurvivors <3

One of those Saturday nights when the spouse’s anticipatory grief requires a Lorazepam.
#Cansky #Oncosky #cancersurvivors

Rural Cancer Survivors More Likely Than Urban Survivors to Experience Chronic Pain Investigators sought to compare incidence of chronic pain in rural and urban survivors of cancer.

#CancerSurvivors living outside of metropolitan areas are significantly more likely to experience #chronicpain than urban survivors. Published in @jamanetworkopen.com research from @uvmvermont.bsky.social.

https://bit.ly/3YYPuwM

#cancerpain

Rural Cancer Survivors More Likely Than Urban Survivors to Experience Chronic Pain - Oncology Nurse Advisor Investigators sought to compare incidence of chronic pain in rural and urban survivors of cancer.

#CancerSurvivors living outside of metropolitan areas are significantly more likely to experience #chronicpain than urban survivors. Published in @jamanetworkopen.com and @cancertherapyadv.bsky.social.

https://bit.ly/4qCiM04

#cancerpain

Increased Cardiovascular Risk in Childhood Cancer Survivors Suggests Need for Lifestyle Interventions In this analysis, researchers aimed to determine which factors play a role in cardiovascular risk in childhood cancer survivors.

Childhood #cancersurvivors are at risk for traditional #cardiovascular risk factors, independent of their underlying genetic risk and their cancer treatment.

https://bit.ly/4sea8Xr

Introducing you all to @mishamehta.bsky.social who has spent tireless hours advocating for children with brain tumors, supporting researchers doing their work, and building community for other families.

We are indebted to her: www.youtube.com/watch?v=_r_7...

#PEDCan
#CanSky
#CancerSurvivors

Removing Barriers Along Oncofertility Pathway Helps Survivors Achieve Their Reproductive Goals Experts explore the multifaceted barriers to cryopreserved sperm use and propose specific solutions to help survivors achieve their reproductive goals.

Reproductive outcomes of #cancerSurvivors improve when clinicians proactively address the persistent barriers that hinder the use of cryopreserved sperm. Published in @oncologynurseadv.bsky.social.

https://bit.ly/497YC7e

#OncoFertility

Comorbidities, Socioeconomic Factors Linked to Late-Onset Depression in Long-Term Cancer Survivors In this retrospective cohort study, researchers aimed to characterize the risk factors associated with late-onset depression in long-term cancer survivors.

In long-term survivors of #cancer, socioeconomic vulnerability, having multiple comorbidities, and other factors are associated with a risk of late-onset #depression. Published in @jamanetworkopen.com.

https://bit.ly/48XZeMj

#cancersurvivors

Hi fellow #cancersurvivors! You will know how it feels: I just learned that my latest CT scan is clean! It was 4 months since my last and I have been so anxious. All I wanted for Christmas was some sleep and peace for the next few weeks. Sharing virtual hugs and warm fuzzy slippers to you all!
🫂🕊️💙🦋