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Posts by Louise Kenward

Photo of me with a tree. I'm wearing a black face mask with the word VOTE in large white letters. Around the edges of the photo is a LONG COVID AWARENESS 2026 ribbon in teal and grey. 

Long Covid Advocacy.

Photo of me with a tree. I'm wearing a black face mask with the word VOTE in large white letters. Around the edges of the photo is a LONG COVID AWARENESS 2026 ribbon in teal and grey. Long Covid Advocacy.

Screenshot of a graphic for Long COVID Awareness Month 2026. Green background with text in white that reads: LONG COVID isn't rare. Per the WHO, approximately 15 in 100 people still have symptoms at 12 months after contracting COVID-19. 

There is no cure for Long COVID. Wear a face mask and get vaccinated.

Screenshot of a graphic for Long COVID Awareness Month 2026. Green background with text in white that reads: LONG COVID isn't rare. Per the WHO, approximately 15 in 100 people still have symptoms at 12 months after contracting COVID-19. There is no cure for Long COVID. Wear a face mask and get vaccinated.

Today is the last day of #LongCovidAwarenessMonth. Four years ago, after a mild infection, I became one of the 400 million people worldwide who live with Long COVID. #LongCOVID is NOT RARE and there is NO CURE for it. Until there is, everyone remains at risk of developing it. Why does no one care?

3 weeks ago 15 6 1 0
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2026 Manchester Writing School Summer Festival - Products - Manchester Metropolitan University Shop for 2026 Manchester Writing School Summer Festival at https://mmu.estore.flywire.com. <div class="redactor-editor"><span class="Style1"><strong><p><strong>MANCHESTER WRITING SCHOOL SUMMER FESTIVA...

The new Writing School Summer Festival has been announced!

Open to all (& free for current English/creative writing students at MMU)

4 days of writing events 15–19 June from @manmetuni.bsky.social School of English, 2 days online & 2 days in person.

mmu.estore.flywire.com/products/202...

3 weeks ago 4 3 0 0

here's the "module 2" report of the inquiry

3 weeks ago 29 19 1 0
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This week over 100,000 ALCS members will receive their share of £34m. Let's celebrate the value of human creativity, something that isn't going anywhere 💡📖🌳

4 weeks ago 152 58 13 54
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Around 10k authors protest AI commercial research exception with publication of empty book

ICYMI: Around 10,000 authors have come together to publish Don’t Steal This Book, an empty book protesting the government’s proposed "commercial research exception" to copyright law 👇 #BookSky

1 month ago 28 9 0 0
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Almost 10,000 of us have co-authored this book, launched at London book fair today, in protest at copyright theft by tech companies to train AI.

All pages are blank except for our names.

“DON’T STEAL THIS BOOK” also protests government failure to act.

www.dontstealthisbook.com

#DontStealThisBook

1 month ago 12 6 0 0
ALIVE WITH CHRONIC ILLNESS
The Anthology
Our anthology seeks to capture what it means to live with and not in spite of chronic illness and disability.
We are looking for literature that fits the theme of living with and not 'in spite of chronic illness or disability. We seek to capture moments of joy, triumph, and growth, highlighting the resilience of the disabled community whilst acknowledging the struggles and challenges that come with living with chronic illness and disability.
We are looking for short pieces of literature, such as prose, poetry, and short stories (maximum 2,500 words), fiction or non-fiction.
NOW ACCEPTING SUBMISSIONS

ALIVE WITH CHRONIC ILLNESS The Anthology Our anthology seeks to capture what it means to live with and not in spite of chronic illness and disability. We are looking for literature that fits the theme of living with and not 'in spite of chronic illness or disability. We seek to capture moments of joy, triumph, and growth, highlighting the resilience of the disabled community whilst acknowledging the struggles and challenges that come with living with chronic illness and disability. We are looking for short pieces of literature, such as prose, poetry, and short stories (maximum 2,500 words), fiction or non-fiction. NOW ACCEPTING SUBMISSIONS

ALIVE WITH CHRONIC ILLNESS
The Anthology:
Letters to today's disabled youth
As part of our upcoming anthology which seeks to capture what it means to live with and not in spite of chronic illness and disability. We are looking for short reflections (around 250 words), on what you would tell your younger self or a disabled child or young person. We recognise that many of us walked hallways filled with peers who didn't understand what it was like to live with a health condition, not knowing what the future would look like. Children and young people are still walking those same hallways we once did, and this is our contribution to the next generation. So if you have a moment and a few words to spare, consider writing a letter to your childhood self and to the children and young people of the future.
NOW ACCEPTING SUBMISSIONS

ALIVE WITH CHRONIC ILLNESS The Anthology: Letters to today's disabled youth As part of our upcoming anthology which seeks to capture what it means to live with and not in spite of chronic illness and disability. We are looking for short reflections (around 250 words), on what you would tell your younger self or a disabled child or young person. We recognise that many of us walked hallways filled with peers who didn't understand what it was like to live with a health condition, not knowing what the future would look like. Children and young people are still walking those same hallways we once did, and this is our contribution to the next generation. So if you have a moment and a few words to spare, consider writing a letter to your childhood self and to the children and young people of the future. NOW ACCEPTING SUBMISSIONS

ALIVE WITH CHRONIC ILLNESS
The Anthology:
Parent and carers perspectives
As part of our upcoming anthology which seeks to capture what it means to live with and not in spite of chronic illness and disability. We are looking for written perspectives from parents and carers of disabled children, of up to 2,500 words.
We are looking for literature that fits the theme of living with and not 'in spite of chronic illness or disability. We seek to capture moments of joy, triumph, and growth, highlighting the resilience of the disabled community whilst acknowledging the struggles and challenges that come with living with chronic illness and disability.
NOW ACCEPTING SUBMISSIONS

ALIVE WITH CHRONIC ILLNESS The Anthology: Parent and carers perspectives As part of our upcoming anthology which seeks to capture what it means to live with and not in spite of chronic illness and disability. We are looking for written perspectives from parents and carers of disabled children, of up to 2,500 words. We are looking for literature that fits the theme of living with and not 'in spite of chronic illness or disability. We seek to capture moments of joy, triumph, and growth, highlighting the resilience of the disabled community whilst acknowledging the struggles and challenges that come with living with chronic illness and disability. NOW ACCEPTING SUBMISSIONS

#Chronicillness #invisibleillness #mecfs #ME/CFS #writing #Chronicpain

1 month ago 2 1 1 0
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The House of Lords Digital & Communications Committee just published their report on AI, copyright & the creative industries, and their conclusions could not be clearer.

🧵 1/5

1 month ago 1552 880 12 132
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Dressing through Pandemics: a special issue launch Join us for a virtual celebration of fashion resilience during tough times at the 'Dressing through Pandemics' launch.

Morolake Dairo & Sharon Nunoo feature in Dressing Through Pandemics: a special issue launch for Intellect @intellectbooks.bsky.social - how clothing & dress became central technologies of care, identity, politics & resilience during a period of global disruption.
www.eventbrite.co.uk/e/dressing-t...

1 month ago 2 3 0 0

Speakers include Christopher Armstrong, Chris Ponting @cgatist.bsky.social , Oystein Fluge, David Putrino @putrinolab.bsky.social , Carmen Scheibenbogen @scheibenbogen.bsky.social , and many other ME/CFS experts.
#MEcfs #LongCovid

1 month ago 25 15 0 0

fabulous!

1 month ago 1 0 1 0
The spine of Moving Mountains - navy blue with rainbow writing between two other nature books.

The spine of Moving Mountains - navy blue with rainbow writing between two other nature books.

First time I've seen the paperback of #MovingMountains in the wild! 😁 @louisekenward.bsky.social

uk.bookshop.org/p/books/movi...

1 month ago 20 4 1 0
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Poems that make things happen Online poetry workshops designed to make you think, bring you joy, make you a better reader and writer AND fit in with your busy schedule.

Online poetry workshops with Helen Mort? Yes please!

Poems that make things happen. One off or book the whole series - 1 hour sessions of creativity.
@helenmort.bsky.social
www.eventbrite.co.uk/e/poems-that...

2 months ago 6 5 0 0
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The Observer Anthony Burgess Prize for Arts Journalism - The International Anthony Burgess Foundation The Observer Anthony Burgess Prize for Arts Journalism is a writing competition which aims to encourage new journalistic talent. The competition is currently open for entries. The prize remembers the ...

Last call for entries
@anthonyburgess.bsky.social Prize for Arts Journalism.

www.anthonyburgess.org/observeranth...

2 months ago 1 3 0 0

As poster says, ignore the seemingly homophobic heading, this is a good read, particularly on her disability and challenges of access to public spaces. I still think she was foolish, voting Tory at one point, but her convictions seem generally sound.

2 months ago 5 2 1 0
Email sent to NHS elearning enquiries on 12 January 2026. 

Subject - Request for information.

Dear NHSE elearning hub,

I am making a freedom of information request (FOIA 2000) for the following data.

In 2024/5, the NHS England elfh e-learning hub introduced 3 new modules on ME/CFS:

1. An introduction to ME/CFS (May 2024).
2. ME/CFS: guidance for community-based healthcare practitioners (January 2025).
3. Managing Severe ME/CFS (September 2025).

Please can you tell me how many people have completed each module to date (from date of introduction), and what the breakdown is for logins by NHS staff (nhs.uk), and those in government (gov.uk), academic (ac.uk), and social care sectors (if available). 

I am happy for your response to be sent to this email address.

Many thanks for your help,

Lucy B

Email sent to NHS elearning enquiries on 12 January 2026. Subject - Request for information. Dear NHSE elearning hub, I am making a freedom of information request (FOIA 2000) for the following data. In 2024/5, the NHS England elfh e-learning hub introduced 3 new modules on ME/CFS: 1. An introduction to ME/CFS (May 2024). 2. ME/CFS: guidance for community-based healthcare practitioners (January 2025). 3. Managing Severe ME/CFS (September 2025). Please can you tell me how many people have completed each module to date (from date of introduction), and what the breakdown is for logins by NHS staff (nhs.uk), and those in government (gov.uk), academic (ac.uk), and social care sectors (if available). I am happy for your response to be sent to this email address. Many thanks for your help, Lucy B

About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...

🧵 1/n

2 months ago 91 44 7 7
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Publications Swimming the Seasons: A Freshwater Almanac (Saraband, 2026) COMING MAY 7TH 2026 A little book about swimming all year round in the lakes, rivers and tarns of the English Lake District, despite not …

I've updates my website with details of my TWO books - yes that's TWO books - out this year:

1. My 3rd poetry collection #EmergencyDream out with @serenbooks.bsky.social March 16th

2. #SwimmingTheSeasons: A freshwater Almanac, out with @saraband-books.bsky.social May 7th

#BookSky #BookNews

2 months ago 22 5 1 0

👀
well this is good news!

2 months ago 3 0 1 0

This is brilliant Jake, and it looks beautiful!
Wonderful news to see its return this year...v exciting x

2 months ago 0 0 0 0
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Say no to Palantir in the NHS NHS England is rolling out software to run our health records from Palantir - fight back

The NHS is under pressure to adopt Palantir software.

Palantir’s founder openly despises the NHS.

You can push back – use our tool to see if your local trust is using the software, then send an email to say no to Palantir
https://goodlaw.social/658abc

3 months ago 730 482 32 30
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The Independent Press Top 40 Bestsellers: Nonfiction Here are this week’s Independent Press Top 40 Bestsellers for fiction, based on sales in hundreds of independent bookstores nationwide, generously provided by the American Booksellers Association. …

Huge thanks to all the US indie booksellers who've taken #TheCompanyOfOwls to heart and to their shelves, meaning it's squeezed into the @lithub.com.web.brid.gy Indie Top 40 pre official pub date. My 1st time on a bestseller list other our own shop's. As a writer and bookseller it means so much.

2 months ago 17 5 1 0

Thank you Lea, it's lovely to be reminded of this - I loved writing and recording it!

2 months ago 1 0 1 1
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The Essay - A Landscape for Recovery - Louise Kenward on the Ocean as Mirror at Bexhill-on-Sea - BBC Sounds Writer, artist and psychologist Louise Kenward describes her relationship with the sea.

I also listened to a coastal themed essay by @louisekenward.bsky.social on BBC Sounds. Yes please, to have art accessible like this so I can enjoy it from home or wherever I might be ✨️

www.bbc.co.uk/sounds/play/...

2 months ago 8 3 1 0
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This in person (UK) and online!

A reading and discussion of Annah, Infinite, an experimental work of creative non-fiction that challenges #ArtHistory, confronts colonial #ableism, and reclaims a stolen spirit…

the young girl in Annah la Javanaise (1893-94), Gauguin’s famous painting. #Lit #ArtSky

2 months ago 15 9 2 3
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British Psychological Society MECFS Guidelines Update - Chronic Living Therapy Brief update on work by a group of psychologists who are creating up-to-date guidelines on M.E. for the British Psychological Society.

And a great post from @chronicliving123.bsky.social I think I missed at the end of last year - an update on the BPS guidelines for psychologists working with #pwME - essential work that is being co-produced w @actionforme.bsky.social & @meassociation.org.uk
chroniclivingtherapy.com/bps-guidelin...

2 months ago 8 7 2 0

What a lovely list to be a part of, thank you Tom!

#BookSky #CreativitySky

2 months ago 4 5 0 0
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Wild Women Writers. We will be talking about portals, edgelands, peatbogs & other marginal places. Here's the link for tickets:
www.eventbrite.co.uk/e/wild-women...

2 months ago 15 4 0 0

I'd be happy to write something/interview if you'd like sometime?

2 months ago 1 0 1 0
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British Psychological Society MECFS Guidelines Update - Chronic Living Therapy Brief update on work by a group of psychologists who are creating up-to-date guidelines on M.E. for the British Psychological Society.

And a great post from @chronicliving123.bsky.social I think I missed at the end of last year - an update on the BPS guidelines for psychologists working with #pwME - essential work that is being co-produced w @actionforme.bsky.social & @meassociation.org.uk
chroniclivingtherapy.com/bps-guidelin...

2 months ago 8 7 2 0

2/
- Jeremy Jeffs, Photography project @jeremy-jeffs.bsky.social

- ‘I would be there if I could’ – Alison Larkman’s Mirrorbox project

- Moving Mountains, edited by @louisekenward.bsky.social

- Crafting a Path Through Illness – by @germainehypher.bsky.social

#chroniclife #PwME #mirrorbox #CFS

2 months ago 4 3 2 0