Train your inner algorithm: https://bit.ly/3JZSEMW

Columnist Dagmar Munn shares how she’s reprogramming her thoughts to focus on calm, gratitude, and joy while living with ALS.

#ALS #ALSLiving #MindsetMatters #PositiveThinking #ALSNewsToday #Bionews

'Letters to ALS: Our Journeys to Hope' — black book promoting personal ALS stories that foster understanding and connection.

Inside this new book: https://bit.ly/41sB1uB

A newly released collection, Letters to ALS: Our Journeys to Hope, shares personal letters from people living with ALS, along with families, advocates, and care teams.

#ALS #RareDiseaseAwareness #HealthStories #ALSNewsToday #Bionews

Your worth isn’t measured in tasks, energy, or output.

#ALS

Recognize early signs: https://bit.ly/3OfSXVU

Symptoms often begin subtly and can vary from person to person. Tracking changes and discussing concerns with a healthcare provider can help guide next steps.

#ALS #ALSSymptoms #ALSAwareness #LivingWithALS #RareDisease #Bionews #ALSNewsToday

Everyone in the ALS community has a “why.” 💙

For many, it’s a loved one or someone impacted by ALS. Today for #WhyWednesday, share yours—post a photo or comment your reason.

Your story raises awareness and reminds others they’re not alone. #ALSUnited #ALS #OurALSCommunity #TogetherWeEndALS

Neuralink ALS Speech: Useful Milestone, Not a Cure Yet Brad Smith sits in front of a monitor, perfectly still, while the cursor skates across the screen as if pulled by a ghost hand. A few seconds later, a familiar voice fills the room, his own, recorded years ago, now resurrected by an AI model reading out the words he just typed with his brain. This is the viral clip behind the “Neuralink ALS speech” headlines.

Neuralink gave a man his voice back. Huge milestone — not a cure. Here’s what the viral clip doesn’t tell you. #Neuralink #ALS #Neurotech

New AI model can detect multiple cognitive brain diseases from a single blood sample Lund University. Different neurodegenerative conditions can present with similar symptoms, making it difficult to distinguish between them, for example, Alzheimer’s disease and Lewy body disease, espe...

Researchers @lund-university.bsky.social have developed an AI model showing that it is possible to detect several neurodegenerative diseases from a single blood sample.
#research supported by Knut and Alice Wallenberg Foundation
#dementia #Alzheimers #Parkinsons #ALS #science
tinyurl.com/3n8hnw58

Ny AI-modell kan upptäcka flera kognitiva hjärnsjukdomar i samma blodprov Lunds universitet. Olika neurodegenerativa tillstånd kan uppvisa liknande symptom, vilket ofta göra det svårt att skilja de olika sjukdomstillstånden åt, exempelvis Alzheimers från Lewykroppssjukdom, ...

Forskare @lundsuniversitet.bsky.social har utvecklat en AI-modell som visar att det är möjligt att upptäcka flera neurodegenerativa sjukdomar från ett enda blodprov.
#forskning med stöd av Knut och Alice Wallenbergs Stiftelse
#demens #Alzheimer #Parkinson #ALS #vetenskap
tinyurl.com/4wn4cdv2

Accepting a feeding tube: https://bit.ly/3LoaU39

Nancy Muirhead shares how choosing a PEG feeding tube, lovingly nicknamed “Pegster,” is helping her reconnect with food and joy rather than struggle.

#ALS #Bionews #ALSNewsToday #ALSCommunity #LifeWithALS #PegTube #ALSSupport #AdaptiveLiving

BrainStorm Cell Therapeutics Reports 2025 Financial Results and Future Strategy Insights BrainStorm Cell Therapeutics shares its financial performance for 2025, focusing on ALS treatment advancements and corporate developments, alongside attention to regulatory approvals.

BrainStorm Cell Therapeutics Reports 2025 Financial Results and Future Strategy Insights #USA #New_York #BrainStorm #ALS #NurOwn

Share here: https://bit.ly/4qSyBRr

#ALS #ALSNewsToday #Bionews #LifeWithALS

RUN ALS with the Colfax Marathon! 🏃‍♂️💙

Join us May 16–17 and turn every mile into hope for families living with ALS.

💡 Check for matching gifts—many employers will double your impact!

Every step brings us closer to a cure. #RunColfax #ALSUnited #ALS

NeuroSense Therapeutics Discusses 2025 Year-End Financial Results and Business Advancements NeuroSense Therapeutics reveals transformative 2025 achievements, showcasing significant advancements in ALS treatment through PrimeC and the promising financial outlook.

NeuroSense Therapeutics Discusses 2025 Year-End Financial Results and Business Advancements #United_States #Cambridge #ALS #NeuroSense #PrimeC

Utrechtse onderzoekers ontdekken meer genen die ALS veroorzaken Onderzoekers van het UMC Utrecht hebben nieuwe genen ontdekt die een rol spelen bij het ontstaan van de zenuw- en spierziekte ALS. Daardoor kan bij meer patiënten een oorzaak worden vastgesteld: dat aandeel stijgt van 20 naar 25 procent.

🕜 13:16 | RTL Nieuws
🔸 #ALS #Genen #UMC #Utrecht #Ziekte

Four graphs show 'PrimeC' and 'Placebo' effects over time. Graph A: NFL geometric mean ratio to baseline, with GMR@1. 99 and GMR@2. 91 labels. Graph B: Ferritin mean concentration. Graph C: Transferrin mean concentration levels. Graph D: miRNA differential expression.

PrimeC demonstrated comparable safety to placebo and showed slowed functional decline, reduced ALS-related complications, and modulation of iron-regulatory and microRNA biomarkers in adults with #ALS over 18 months of treatment.

ja.ma/4m3oRBI

Great to see this ALS research move from preprint to publication. The newly published work from Fiskum et al. In 𝗡𝗲𝘁𝘄𝗼𝗿𝗸 𝗡𝗲𝘂𝗿𝗼𝘀𝗰𝗶𝗲𝗻𝗰𝗲 offers powerful new insight into how motor neurons are affected in ALS.

Congratulations to 𝗩𝗲𝗴𝗮𝗿𝗱 𝗙𝗶𝘀𝗸𝘂𝗺 and the 𝗜𝗼𝗮𝗻𝗻𝗮 𝗦𝗮𝗻𝗱𝘃𝗶𝗴 lab!

#ALS #HDMEA #iPSC

Frontiers | Early-onset, conjugal, twin-discordant, and clusters of sporadic ALS: Pathway to discovery of etiology via lifetime exposome research The identity and role of environmental factors in the etiology of sporadic amyotrophic lateral sclerosis (sALS) is poorly understood outside of three former ...

New research reviews published geographic clusters of #ALS cases in relation to their demographic, geographic and environmental associations. www.frontiersin.org/journals/neuroscience/ar...

'MAID is not death on demand': Physicians decry proposed Alberta assistance in dying bill | CBC News Some health-care workers who either directly provide medical assistance in dying or work in that field say they are strongly opposed to Bill 18 — which, if passed, would prevent doctors or nurse pract...

www.cbc.ca/news/canada/...

We need to get the #abucp to address how this bill will impact people with chronic neurodegenerative diseases like #ALS, #Parkinson's disease & #MS

#ableg
#abgov
#publichealth
#MAID

You’re moving through something complex, and it’s okay if your emotions are, too.

#ALS

Mike Strong has spent decades advancing research that could change the future for people living with #ALS. His team’s discovery of a protein that may slow — or potentially stop — the disease’s damaging effects is bringing new hope to patients and families.
www.theimpactproject.ca/stories/mike...

Macleans.ca Canada’s magazine

How #AI Gave Me My Voice Back: As my #ALS progressed, #voice cloning became a tool to preserve my identity @macleans.bsky.social

macleans.ca/technology-3...

#MedSky #AImedicine #AI #HealthAI #AIinHealthcare #MedTech

Diagnosis takes time: https://bit.ly/4qHWn16

There is no single test for ALS, so doctors often use multiple exams and scans to rule out other conditions and gather a clearer picture.

#ALS #ALSDiagnosis #Neurology #ALSAwareness #RareDisease #PatientEducation #Bionews #ALSNewsToday

Sweden: Plausible mechanisms exist connecting mRNA‑related pathways to neurodegeneration.

alter.systems/p/00c82f1f-5...

France: French pharmacovigilance admits connection ALS and the Covid mRNA (Pfizer).

nieuwrechts-nl.translate.goog/109429-mlani...

#ALS #mRNA #Covid19 #adverseevents

MultiSearch Tag Explorer MultiSearch Tag Explorer - Explore tags and search results by aéPiot - aéPiot: Independent SEMANTIC Web 4.0 Infrastructure (Est. 2009). High-density Functional Semantic Connectivity with 100/100 Trust...

#MEHR #ALS #NUR #ATOME
advanced-search.allgraph.ro/advanced-sea...
#HEINRICHSHOFEN #VERLAG
advanced-search.aepiot.com/advanced-sea...
headlines-world.com

Some moments carry a kind of meaning that only you can define.

#ALS

@bgeo-trees.bsky.social GEO-TREES would like to express its sincere thanks to all Panama Workshop participants. The collaborative work achieved will be invaluable for integrating the datasets ( #ALS, #TLS, #TreeInventory ) toward robust forest carbon estimation.
📷 J. Aleman
#forests #carbon #lidar

The time is now to defeat ALS! For people battling ALS, time is not a luxury to waste. With an average life expectancy of 2-5 years following diagnosis, there is clear urgency to optimize care and find effective treatments for thos...

90% of all cases of #ALS are sporadic, meaning there is no family history of the disease. I participate in the #WalktoDefeatALS to help find answers. Won't you support me with a gift? secure2.convio.net/alsa/site/TR...

March is National Nutrition Month 💙

For those living with ALS, nutrition is key to maintaining strength and quality of life. As needs change, small adjustments and expert guidance can make a big impact.

We’re here to support you. #NationalNutritionMonth #TogetherWeEndALS #ALS

Pallesthesia: https://bit.ly/4myfxFg

Pallesthesia, the sensation of a hum, was one of Dagmar Munn’s earliest ALS symptoms. Here’s how her body still feels when it’s doing its “humming thing.”

#ALS #ALSSymptoms #ALSResearch #ALSCommunity #ALSNewsToday #Bionews

The everyday, challenging moments, such as repositioning in bed, bathing, and waiting for help with the restroom, can be some of the hardest parts of this disease. Your experiences during these times are recognized within this community.

#ALS