"Children with disabilities may be at higher risk for abuse or neglect than children without disabilities. There are steps that parents can take to protect children with disabilities from abuse or neglect."

#CYSHCN #Abuse #Neglect #ChildAbusePreventionMonth
www.cdc.gov/ncbddd/disab...

Understanding Growth Charts: A Parent's Guide to Percentiles & Z-Scores Learn how to read a child’s growth chart, understand percentiles and z‑scores, and track healthy growth from infancy through adolescence. Find out what pediatricians look for and when to ask questions...

​"A variety of factors, including genetics, environment, nutrition, activity and health problems, can influence how your child grows."

#GrowthCharts #Genetics #Nutrition #CYSHCN

www.healthychildren.org/English/heal...

"CP is caused by abnormal brain development or damage to the developing brain that affects a person's ability to control their muscles. CP is the most common motor disability in childhood."

#CerebralPalsyAwarenessMonth #GoGreen4CP #CerebralPalsy #CYSHCN

www.cdc.gov/cerebral-pal...

Personal Hygiene Checklist for Adults with Disabilities — ElevateAbility Explore a simple and supportive personal hygiene checklist for adults with disabilities that helps make daily care easier, safer, and more independent.

​"Personal hygiene means keeping your body clean and healthy through regular habits like bathing, brushing teeth, grooming, and wearing clean clothes."

#Hygiene #PersonalCare #PeopleWithDisabilities #CYSHCN

www.elevateability.com/resources/pe...

Graphic promoting the Close the Gap Challenge to improve health for children with special health care needs, featuring diverse children and a donate button.

We’re working to Close the Gap—and we can’t do it without you. Every donation helps a family get the support, advocacy, and resources they need to navigate complex health challenges.
Thank you for making a difference.
➡️ Donate today: familyvoices.org/closethegap
#CloseTheGap #FamilyVoices #CYSHCN

"Every February, National Children’s Dental Health Month (NCDHM) shines a spotlight on the importance of children’s oral health."

#ChildrensDentalHealthMonth #DentalHealth #CYSHCN

www.mychildrensteeth.org/ncdhm-2026/

The 2026 Family Voices Leadership Conference is approaching quickly (April 15-16), and we still have one Gold Sponsor opportunity available! See the list of sponsor benefits here: https://familyvoices.vfairs.com/en/sponsorship-page #Sponsor #Pediatrics #Conference #FamilyEngagement #CYSHCN #FVLC2026

Fast, Slow and Irregular Heartbeats (Arrythmia) What if your child’s heartbeat seems faster or slower than it should be, or has an unusual pattern? In this article, the American Academy of Pediatrics describes normal heart rate fluctuations in kids...

"The heart is one of the most active muscles in the body, beating some 50 million times in a child's first year of life. It's normal for a child's heartbeat to speed up or slows down as they play, sleep and grow."
#AmericanHeartMonth #HeartHealth #CYSHCN 
www.healthychildren.org/English/heal...

How to Discipline a Special Needs Child (When He Doesn’t Understand) - North Shore Pediatric Therapy Discipline Strategies for Special Needs Children:

"...while all children are different and demonstrate different behaviors as they grow, there are a few discipline techniques that are applicable for all special needs children."

#CYSHCN #Discipline 

www.nspt4kids.com/parenting/ho...

Bronze sponsor Children's Hospital Association thanked for supporting the 2026 Family Voices Leadership Conference focused on children and family care.

Family Voices thanks Children’s Hospital Association for sponsoring the 2026 Family Voices Leadership Conference. Learn more about our conference and sponsors at familyvoices.org/FVLC2026. #FamilyEngagement #Pediatrics #Sponsorship #cyshcn #YouthLeadership #FVLC2026

Emotional Regulation Strategies for Kids with Special Needs Emotional regulation is a crucial skill for all children, but it is especially vital for those with special educational needs (SEN). These children may face

"Emotional regulation is a crucial skill for all children, but it is especially vital for those with special educational needs (SEN). "

#EmotionalHealth #CYSHCN

learningmole.com/emotional-re...

Thank you Dr. Dennis Kuo, President of Family Voices Board, for sponsoring the 2026 Family Voices Leadership Conference.

Family Voices thanks Dr. Dennis Kuo, President of Family Voices’ Board of Directors, for sponsoring the 2026 Family Voices Leadership Conference. Register for the April virtual conference by visiting familyvoices.org/FVLC2026. #FamilyVoices #FVLC2026 #CYSHCN #DisabilityAdvocacy #FamilyCenteredCare

Altering IDEA Poses 'Substantial Risk' To Students With Disabilities, Advocates Warn Federal lawmakers are considering taking up legislation that would amend IDEA, a move that advocates fear could open the door to broader changes amid an already tumultuous time for special education.

"The idea of opening up the landmark special education law to changes is coming at a particularly uncertain moment for programs serving students with disabilities."

#IDEA #Education #SpecialEducation #CYSHCN

www.disabilityscoop.com/2026/02/09/a...

The 2026 Family Voices Leadership Conference is approaching quickly (April 15-16), and we still have one Gold Sponsor opportunity available! See the list of sponsor benefits here: https://familyvoices.vfairs.com/en/sponsorship-page #Sponsor #Pediatrics #Conference #FamilyEngagement #CYSHCN #FVLC2026

"Pediatric cholangiocarcinoma is usually associated with congenital hepatobiliary disorders..."

#CholangiocarcinomaAwarenessMonth #CYSHCN

link.springer.com/rwe/10.1007/...

Congenital heart defects in children - Symptoms and causes

​"Some congenital heart defects in children are simple and don't need treatment. Others are more complex. The child may need several surgeries done over a period of several years."

#CongentialHeartDefectAwarenessWeek #CYSHCN

www.mayoclinic.org/diseases-con...

Heart Failure in Children and Teens The American Heart Association explains heart failure in children and adolescents.

"Heart failure in children is most often caused by congenital heart defects, meaning defects present at birth. "

#CongentialHeartFailureAwarenessWeek #HeartFailureAwarenessWeek #Heart #CYSHCN

www.heart.org/en/health-to...

STEP Program The Staging Transition for Every Patient (STEP) program helps young adults with complex and chronic health conditions.

🔴 RESOURCE SPOTLIGHT 🔴

"The Staging Transition for Every Patient (STEP) program helps young adults with complex and chronic health conditions move from pediatric care at Children’s of Alabama hospital to adult care at UAB Medicine."

#STEPClinic #UAB #CYSHCN

www.uabmedicine.org/specialties/...

"A congenital heart defect is a problem with the heart that is present at birth. For example, a baby may be born with a hole in their heart or a leaky valve."

#AmericanHeartMonth #HeartHealth #CYSHCN

www.healthychildren.org/English/heal...

"Juvenile rheumatoid arthritis (JRA), often referred to by doctors today as juvenile idiopathic arthritis (JIA), is a type of arthritis that causes joint inflammation and stiffness for more than six weeks in a child aged 16 or younger.
#JRA #JIA #CYSHCN
www.webmd.com/rheumatoid-a...

Families feel encouraged when they have an equal seat and partnership in their child's healthcare team.

Our evidence-based framework for family engagement helps to make sure engagement is deep and meaningful. Find out how we help organizations develop sustainable family engagement plans at familyvoices.org/familyengagement. #familyengagement #pediatrics #CYSHCN

Depression and your child with disability, ADHD or a chronic condition: 5-11 years Childhood depression is a serious mental health issue. Children with disability are more likely to get depression than peers. They need professional support.

"Children often feel down, are cranky or have negative thoughts. This is part of healthy development. It’s also part of learning to understand and manage emotions."

#CYSHCN #Depression #MentalHealth

raisingchildren.net.au/disability/m...

Family Voices thanks Lucile Packard Foundation for Children's Health for being a Bronze level sponsor of the 2026 Family Voices Leadership Conference. Learn more at familyvoices.org/FVLC2026. #Pediatrics #FVLC2026 #FamilyEngagement #CYSHCN

Transitions of Care for Children and Youth with Special Health Care Needs: Policy Considerations and Options As children and youth with special health care needs (CYSHCN) reach adulthood, they need to transition from a pediatric to adult model of care. Findings from our work demonstrate that Medicaid-covered...

"As children and youth with special health care needs (CYSHCN) reach adulthood, they need to transition from a pediatric to adult model of care."

#CYSHCN #Healthcare #Transition

www.macpac.gov/publication/...

Medical Home The National Resource Center for Patient/Family-Centered Medical Home is a national technical assistance center focused on improving the health and well-being of, and strengthening the system of servi...

The American Academy of Pediatrics (AAP) defines the medical home as a primary care model that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate, and culturally effective. For more details, please visit www.medicalhomeinfo.org

#MedicalHome #CYSHCN

The shift from pediatric to adult health care takes time and planning. Our new data show how few youth with ID/DD are receiving transition guidance. Take a look at our new data profile at movingtoadulthealthcare.org/data and explore tools that support health care transition. #pediatrics #CYSHCN

January is National Birth Defects Awareness Month Discover the impact of birth defects on baby's health. 1 in 33 U.S. babies affected each year. Learn about common defects like heart issues, cleft lip, and spina bifida.

"About 1 in 33 babies in the U.S. is born with a birth defect each year, according to the CDC. Common birth defects include congenital heart defects, cleft lip and cleft palate and spina bifida."

#BirthDefectAwarenessAndPrevention #CYSHCN

www.marchofdimes.org/learn-more-a...

Researchers find autism can be broken down into four distinct groups — Express Autism is an inherently complex condition, but new research breaks it down into four distinct categories, each defined by a specific set of characteristics

#Autism #AutismResearch #CYSHCN

Excerpt From

“Researchers find autism can be broken down into four distinct groups”

Niti Majethia

Express

apple.news/A30T6YB5iR0G...

Behavior or Conduct Problems in Children Oppositional Defiant Disorder and Conduct Disorder are two types of disruptive behavior disorders.

"A behavior disorder may be diagnosed when these disruptive behaviors are uncommon for the child's age at the time, persist over time, or are severe."

#BehavioralDisorders #CYSHCN

www.cdc.gov/children-men...

Learn more about our Family Centered Care Assessment tool and the ways we can support your work by visiting https://familyvoices.org/fcca/.

Family-centered care is a way of providing services that assures the health and well-being of children and their families through respectful partnerships. Learn about our Family Centered Care Assessment tool by visiting https://familyvoices.org/fcca/ #Pediatrics #childHealth #CYSHCN