The pharmacy gave me fat bottles instead of narrow bottles and the chubbier bottles don't fit on my medication shelf.

#chronicillnessproblems

Sorting through a mountain of compression socks I never wear
#chronicillnessproblems #NEISvoid #pots

I have my braces on now he helped me but ugh sometimes I just want my joints to behave so I can sleep in any comfortable position. Instead I move, something rolls out of place and I have to reset it or face worse pain tomorrow.

#chronicpain #chronicillnessproblems

Did the last day of #TIFF50 not only with lack of sleep and lack of food but also with an earache, head pain, body numbness, throat pain, and mouth pain. #ChronicIllnessProblems #RecoveryModeTime

not trying to negate what other people go through, but i WISH that when i felt bad it was only because I hadn't drank enough water recently #ChronicIllnessProblems

Sometimes you’ll get a win and they’ll give you the option of calling you back but sometimes that’s not an option. I’m looking forward to the iPhone upgrade coming out which will have hold assist features but I hope i won’t have to buy a new phone for that. #ChronicIllnessProblems #Disabled

a girl is sitting in front of a computer with her head on the keyboard . ALT: a girl is sitting in front of a computer with her head on the keyboard .

*sigh*
Why is it so God damn difficult to order something online and get it delivered TO YOUR DOOR?!!

I'm trying to buy an airfryer, but the online shops that got it only delivers with crap curriers or to parcel shops... and I can't go to a parcel shop to pick it up!

#chronicillnessproblems

Me, trying to move around more: *gets up & takes shower*
Fitbit: WHAT ARE YOU DOING?
Heart rate: 130bpm
Fitbit: YOU'RE GONNA DIE.
.
#chronicillness #chronicillnessproblems

I’m sorry! I totally relate to this. And then your muscles hurt just from being tense and shivering. 🥶 #ChronicIllnessProblems

The school is giving my kid problems because of her need for special accommodations and I’m gonna lose my shiiiiitttttt~* #chronicillnessproblems

Those minutes when you’re just waiting for the zofran to start working are some of the worst of the day. #ChronicIllnessProblems

Hungry, can’t face getting out of bed.
#chronicIllnessProblems

They wanted me to go without inhalers until after my appointment.

I got as far as dying at the train station in my hometown.

That’s just not possible.
And thanks to that I’m having the worst attack out of the house.

Fuck sake

#chronicillnessproblems

A reminder for all of us, especially those more likely to be impacted by health care trauma: disabled, chronically ill, neurodiverse, BIPOC, and women! 

You deserve love and consent, not just survival.

#chronicillnessproblems #chronicillnesssupport #healthcaretrauma #healthcare

a man is carrying a large piece of paper in front of a group of people sitting in a lecture hall . ALT: a man is carrying a large piece of paper in front of a group of people sitting in a lecture hall .

SSA: We'd like your medical records.

Me:

#chronicillnessproblems

Dark ocean stretching out to an orange sunset sky where the sun has almost completely set behind a cloud with orange & yellow overlaid text that says if it makes you feel any better you weren't going to survive the next 4 years anyway

Dark humor & new health concerns got me over here wildly swinging minute by minute between sobbing & cackling. I knew those ocean sunset pics would be good for something!

#ChronicIllnessProblems

I’ve been sick long enough to know better than to procrastinate on refilling my meds box - always refill when there is one day left. Otherwise you end up crawling into bed at 11:45 exhausted and ready to sleep only to realize you can’t take your bedtime meds. #chronicillnessproblems

...
On the other hand that means due to being #Bedbound my bones are starting to dissolve slightly... hence the kidney stones.

#ChronicIllnessProblems :S

#MyLifeIsAComedy

I have a brain MRI to schedule now. I swear by now i feel like my body will be radioactive by next year lmao #chronicillnessproblems

It's Monday, and I'm really trying to work up the energy to fill my med boxes.

*sigh*

#chronicillness #chronicpain #hEDS #SmallFiberNeuropathy #dysautonomia #fibromyalgia #migraine #fatigue #mecfs #pwME #spooniesky #disabledsky #ChronicIllnessProblems

Why am I so itchy & achy all of a sudden, and why is my skin on fire??? #chronicillnessproblems

I would very much like to take a nap but we haven’t eaten dinner yet and if I took a nap right now I’d never be able to sleep tonight. Boo hiss. #ChronicIllnessProblems

Old timey drawing of a woman in a bonnet with a bowl & cup staring contemplatively into the distance with text that says: Nothing refreshes my memory of what I need at the grocery store like coming home from the grocery store Artist Georg Melchior Kraus 1733 Graphic credit: CheesyLaVeda

Dat brain fog be hittin'.

#ChronicIllnessProblems #ChronicPainProblems

Y'all, I'm on a false energy surge bc I started on prednisone today. And the worst part about it is:

1) I haven't felt this much energy in 10 years.
2) I can't even use it to be genuinely productive bc it's a lie & the MCAS/POTS crash will probably kill me if I try.

#ChronicIllnessProblems