Gracias a CureDuchenne por la invitación, por hacer posible este encuentro y por su dedicación constante con la comunidad.💙

#TheAkariFoundation #sanantoniotexas #enfermedadesraras #DistrofiaMuscularDeDuchenne #duchenneenepañol #CureDuchenne #duchenneméxico #UnidosPorDuchenne #AkariNoviembre

✨The Akari Foundation presente en la Conferencia CureDuchenne FUERZA: Unidos para cuidar, conectar y avanzar en CDMX.

Este encuentro reunió a familias, médico y organizaciones dedicadas a la comunidad Duchenne en un día lleno de aprendizaje, apoyo y conexión.🤝

#TheAkariFoundation #CureDuchenne

Será un espacio COMPLETAMENTE EN ESPAÑOL para aprender, conectar y avanzar juntos en la atención de la distrofia muscular de Duchenne.

Y miembros del equipo Akari estaremos presentes apoyando e informando sobre sus recursos para la comunidad hispana.💙

#TheAkariFoundation #CureDuchenne

Did you know that I carry Duchenne Muscular Dystrophy and have two sons with this terminal genetic illness?

9/7 is World Duchenne Awareness Day!

#CureDuchenne #WorldDuchenneAwarenessDay #duchenneawareness #duchennemusculardystrophy #duchenne

Did you know that I carry Duchenne Muscular Dystrophy and have two sons with this terminal genetic illness?
Today is World Duchenne Awareness Day!
Do you know that this is one of the leading causes of pediatric death?
#CureDuchenne #WorldDuchenneAwarenessDay #duchennemusculardystrophy

The Akari Foundation tuvo el honor de participar en The CureDuchenne FUTURES National Conference 2025.✨

Un evento anual que brinda educación, conexión y esperanza a la comunidad Duchenne.🤝

Agradecemos profundamente la oportunidad.💙🙌🏼

#TheAkariFoundation #CureDuchenne #DistrofiaMuscularDeDuchenne

CureDuchenne Ventures' $1M Investment in Entos Pharmaceuticals for Innovative Gene Therapy CureDuchenne Ventures has made a significant $1M investment in Entos Pharmaceuticals. This funding aims to advance the development of gene therapies for Duchenne muscular dystrophy.

CureDuchenne Ventures' $1M Investment in Entos Pharmaceuticals for Innovative Gene Therapy #USA #San_Antonio #CureDuchenne #Entos_Pharmaceuticals #Fusogenix_PLV

CureDuchenne Appoints Dr. Brenda Wong to Lead Medical Research for Duchenne Muscular Dystrophy CureDuchenne has selected Dr. Brenda Wong as Chief Medical Advisor to enhance research and care for Duchenne and Becker muscular dystrophy patients.

CureDuchenne Appoints Dr. Brenda Wong to Lead Medical Research for Duchenne Muscular Dystrophy #United_States #Newport_Beach,_California #CureDuchenne #Dr._Brenda_Wong #Duchenne_Care

CureDuchenne and CHOC Collaborate for Innovative Duchenne Muscular Dystrophy Care CureDuchenne teams up with Children's Hospital of Orange County to enhance care and research for families affected by Duchenne muscular dystrophy.

CureDuchenne and CHOC Collaborate for Innovative Duchenne Muscular Dystrophy Care #United_States #Orange #CureDuchenne #CHOC #DMD

So awesome to see the community support #CureDuchenne.

Blizzard Entertainment Raises $2 Million for CureDuchenne Through WoW Charity Pet Initiative Blizzard Entertainment's recent charity program for CureDuchenne raised over $2 million to support critical Duchenne muscular dystrophy research and care, inspiring global gamers.

Blizzard Entertainment Raises $2 Million for CureDuchenne Through WoW Charity Pet Initiative #United_States #Newport_Beach #CureDuchenne #World_of_Warcraft #Blizzard_Entertainment

I watched The Remarkable Life of Ibelin on #Netflix earlier today and it moved me to tears. It for sure helps solidify the point I have tried to make my own family so many times that there are real people behind the other players in MMOs and online friendships are impactful! #cureduchenne #WoW

Worth your time, #Warcraft folks. This is touching. #CureDuchenne

Today I have purchased the Reven pack <: )

Spanish:

Hoy he comprado el pack Reven <: )

#WoW #CureDuchenne

Comprei o Pacote Reven para ajudar na causa #CureDuchenne
Reven, que significa "raposa" em norueguês está disponível no #CataclysmClassic e para o retail #TheWarWithin, além de um transmog de mochilinha 💚🦊

Went and got Reven for my World of Warcraft OC, Detective Surelock Watts-On, and it is for an excellent cause!
All proceeds from The Reven Pack sales will support CureDuchenne and is in memory of Mats “Ibelin” Steen.

#WorldOfWarcraft #CureDuchenne #Ibeline