Our canine houseguest decided that it was best practice to make me get up at 3am so he could poop.
I'm glad he told me that he needed to go, but it completely threw off my equilibrium for the day.
#EDSlife #DogSitting

Friend, I am wrapping up a round of physical therapy bc I slept on my damn shoulder so wonky I couldn’t raise it over my head. #EDSlife

Tried to eat a waffle, accidentally inhaled a crumb. The resulting coughing fit made my arms and legs go numb. Now I’m in a severe flare up and am bed bound. EDS is so fun 🙃
#edslife #chronicallyill

Maandelijkse baxter 🙏🙏 #EDSlife #chronicpain

I forgot to tread lightly after recovering from a virus and derailed my energy pacing. Woke up with overwhelming pain. So, today is a bed-day and I’m rewatching “Stand by Me.” Then 2 days of Dr appointments I’m grateful to have. #EDSlife

Ik ben geen zomer/hitte persoon (POTS) maar die overgang is altijd zo lastig.

Plotse daling in temperatuur?
Mijn lichaam: "Wil je een heup of een duim? Ze zijn beide vers uit de kom"

Maar toch meer fan van herfst-lente als we het geleidelijk aan kunnen doen. 🙏 #EDSlife #chronicpain

tfw you've been fitted with so many braces they start interfering with each other and you look like a damn Borg when you're wearing everything you're supposed to...
#EDSlife

Ich hab mir grad beim *Absetzen der Kaffeetasse* den Rücken verrenkt! JFC! #EDSLife #NEIS

Scissors, a roll of KT tape and a pile of backing papers where it's been used

The true meaning of festival ready #edslife

When the Ghost Is You: Why People with Chronic Illness Disappear (And How We Can Show Up in Our Own Way) By Antonia at Unremarkable MeConfession time: I ghost people.I ghost friends, family, chat groups, even the pizza delivery guy once because I couldn’t cope with the doorbell. But before you slap a “ba...

Ghosting and Chronic illness. 👻 Here’s why we fade, and how we reclaim space on our own terms.
#ChronicIllness #InvisibleDisability #EDSLife #MCAS #POTS #UnremarkableMe #Ehlersdanlos
#ChiariMalformation

www.unremarkableme.com/post/when-th...

I’m pretty sure I herniated something or multiple things on my left side. #edslife #chrinicillness #chrinicpain

Hypermobile and Happy: Naturally Heal Symptoms of Hypermobile Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, and Many Secondary Conditions: ... Disorder, and Many Secondary Conditions Buy Hypermobile and Happy: Naturally Heal Symptoms of Hypermobile Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, and Many Secondary Conditions: ... Disorder, and Many Secondary Conditions by Gale, Shannon E. (ISBN: 9781965020005) from Amazon's Book Store. Everyday low prices and free delivery on eligible orders.

Todays good read, is for all my hypermobile friends #UnremarkableMe #EDSLife 🫶

Hypermobile and Happy: Naturally Heal Symptoms of Hypermobile Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, and Many Secondary Conditions: ... Disorder, and Many Secondary Conditions amzn.eu/d/in5sNRg

Ofc my neck is out, bc stress of yesterday and probably clenching my jaw in my sleep. Love having a stress responsive injury/chronic condition #EDSLife... so it's ibuprofen for breakfast again. Wish medicaid covered medical massage. Goodness knows how long that will even exist now.

Kocht ik wijn omdat er een zebra op het etiket stond? Uiteraard! Ga ik niet toegeven dat die eventueel slecht is omdat er een zebra op het etiket staat? Ook uiteraard! #zebralife #edslife

Dit jaar is onze kerstboom wel extra mooi 🥰 #zebra #edslife

LOL i feel this to a core #medicallycomplexlife #edslife #ehlersdanlos

Als hypermobiler Mensch Dehnübungen zu versuchen ist auch jedesmal albern 😂 #EDSLife